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An exploration of the experience of parents with children with autism spectrum disorder after diagnosis and intervention
Curtin Univ, CHIRI, Sch Occupat Therapy & Social Work, Perth, WA, Australia.
Jönköping University, School of Education and Communication, HLK, CHILD. Jönköping University, School of Health and Welfare, HHJ. CHILD. Jönköping University, School of Health and Welfare, HHJ, Dep. of Rehabilitation. Curtin Univ, CHIRI, Sch Occupat Therapy & Social Work, Perth, WA, Australia.ORCID iD: 0000-0001-7275-3472
Curtin Univ, CHIRI, Sch Occupat Therapy & Social Work, Perth, WA, Australia.
Curtin Univ, CHIRI, Sch Occupat Therapy & Social Work, Perth, WA, Australia.
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2017 (English)In: Scandinavian Journal of Child and Adolescent Psychiatry and Psychology, E-ISSN 2245-8875, Vol. 5, no 3, p. 104-110Article in journal (Refereed) Published
Abstract [en]

Delays and difficulties in both diagnosis and access to services can compound existing stressors experienced by families with children with autism spectrum disorder Early and accurate diagnosis and appropriate intervention may not only improve child-specific outcomes but may also mitigate some of the stressors impacting family relationships and quality of life. We aimed to understand the experience of over 500 families that had sought autism spectrum disorder diagnosis and intervention, their perceptions of the efficacy of these services, and the impact that this process had on their family life. Parents overwhelmingly described frustration with access to a timely diagnosis, specialized intervention services, and funding that impacted their family life and relationships. However, parents simultaneously reported positive perceptions of change as a consequence of diagnosis and effective intervention.

Place, publisher, year, edition, pages
Psychiatric Research Unit, Region Zealand , 2017. Vol. 5, no 3, p. 104-110
Keyword [en]
autism; diagnosis; services; family; qualitative
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Health Sciences
Identifiers
URN: urn:nbn:se:hj:diva-39042DOI: 10.21307/sjcapp-2017-014ISI: 000426421200003Local ID: HLKCHILDIS, HHJCHILDISOAI: oai:DiVA.org:hj-39042DiVA, id: diva2:1192686
Available from: 2018-03-23 Created: 2018-03-23 Last updated: 2018-03-23Bibliographically approved

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Falkmer, MaritaFalkmer, Torbjörn

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  • apa
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