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Participation profiles in domestic life and peer relations as experienced by adolescents with and without impairments and long-term health conditions
Jönköping University, School of Health and Welfare, HHJ, Dep. of Behavioural Science and Social Work. Jönköping University, School of Health and Welfare, HHJ. CHILD.ORCID iD: 0000-0003-2827-9325
Jönköping University, School of Education and Communication, HLK, CHILD. Mälardalen University.
Jönköping University, School of Health and Welfare, HHJ, Dep. of Behavioural Science and Social Work. Jönköping University, School of Health and Welfare, HHJ. CHILD. Jönköping University, School of Education and Communication, HLK, CHILD.ORCID iD: 0000-0001-9597-039X
Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. CHILD.ORCID iD: 0000-0003-4599-155X
2018 (English)In: Developmental Neurorehabilitation, ISSN 1751-8423, E-ISSN 1751-8431Article in journal (Refereed) Epub ahead of print
Abstract [en]

PURPOSE: To investigate how individual and environmental factors relate to self-reported participation profiles in adolescents with and without impairments or long-term health conditions.

METHODS: A person-oriented approach (hierarchical cluster analysis) was used to identify cluster groups of individuals sharing participation patterns in the outcome variables frequency perceived importance in domestic life and peer relations. Cluster groups were compared using one-way analysis of variance (ANOVA).

RESULTS: A nine-cluster solution was chosen. All clusters included adolescents with impairment and long-term health conditions. Perceived importance of peer relations was more important than frequent attendance in domestic-life activities. Frequency of participation in dialogues and family interaction patterns seemed to affect the participation profiles more than factors related to body functions.

CONCLUSION: Type of impairment or long-term health condition is a weaker determinant of membership in clusters depicting frequency and perceived importance in domestic life or peer relations than dialogue and family environment.

Place, publisher, year, edition, pages
Taylor & Francis, 2018.
Keywords [en]
ICF-CY, Participation pattern, cluster analysis, everyday functioning, person-oriented method
National Category
Pediatrics
Identifiers
URN: urn:nbn:se:hj:diva-38459DOI: 10.1080/17518423.2018.1424266ISI: XYZPubMedID: 29313401Scopus ID: 2-s2.0-85040965252OAI: oai:DiVA.org:hj-38459DiVA, id: diva2:1173200
Available from: 2018-01-11 Created: 2018-01-11 Last updated: 2018-08-24
In thesis
1. Participation in and outside school: Self-ratings by Swedish adolescents with and without impairments and long-term health conditions
Open this publication in new window or tab >>Participation in and outside school: Self-ratings by Swedish adolescents with and without impairments and long-term health conditions
2018 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

This thesis concerns the short-term state of and changes in self-rated participation in domestic life, peer relations and, to some extent, school. Participants were adolescents with and without self-reported impairments and long-term health conditions. It is a thesis in disability research and a functional perspective on the participation of adolescents in everyday activities is applied. The thesis is one of several sub-studies in the Swedish research program LoRDIA (Longitudinal Research on Development in Adolescence).

Aim: The aim was to study the relationships between individual and environmental factors and participation in a two-time point longitudinal study within the frame of the health classification system ICF-CY. The aim was also to study the impact of environmental and individual factors on self-reported participation in adolescents with and without impairments and long-term health conditions.

Methods: The study designs in the four studies are cross-sectional (studies I and II), and prospective longitudinal (studies III & IV). A combination of person-based (such as cluster analysis in studies II and IV) and variable-based methods (such as ANOVA, multiple regressions, logistic regressions (studies I, II, III and IV)) were used.

Results: When linking items from a questionnaire aiming to measure mental health in adolescents to codes in the International Classification of Functioning, Disability and Health, Children and Youth version, latent coding is preferable to manifest coding. The focus should be on the underlying meaning of the item and the primary aim of the scale from which the item originated should be taken into consideration. Concerning the self-rated experience of participation, it was stable over time when investigated from a two-time point longitudinal perspective. Results revealed that type of impairment cannot be considered the sole predictor of the experience of participation at home, with peers and in school. Factors in the microsystem, e.g. sibling support, and perceived communication within the family, are of greater importance for the level of both participation attendance and the perceived importance of participating in domestic life and peer relations.

Conclusion: Everyday functioning in adolescents with self-reported neurodevelopmental impairments is partially affected by the same factors as for children without self-reported neurodevelopmental impairments. The effect of the neurodevelopmental impairment seems more evident in school and decreases in importance with age. Factors in the environment such as the experience of sibling support and communication patterns in the family must be taken into consideration when investigating influences on participation. When measuring participation both the frequency of attendance dimension as well as the perceived importance of the activity should be included as they seem to be related to partly differing influences.

Place, publisher, year, edition, pages
Jönköping: Jönköping University, School of Health and Welfare, 2018. p. 91
Series
Hälsohögskolans avhandlingsserie, ISSN 1654-3602 ; 093
Keywords
participation, adolescents, everyday functioning, ICF-CY, self-ratings, self-reported neurodevelopmental impairments, person-oriented design
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:hj:diva-41236 (URN)978-91-85835-92-8 (ISBN)
Public defence
2018-10-26, Forum Humanum, School of Health and Welfare, Jönköping, 13:00 (English)
Opponent
Supervisors
Available from: 2018-08-24 Created: 2018-08-24 Last updated: 2018-10-17Bibliographically approved

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Lygnegård, FridaAlmqvist, LenaGranlund, MatsHuus, Karina

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