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Partnernas upplevelser av att leva med en person med demenssjukdom.: En litteraturöversikt.
Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
2017 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
Partners' experiences of living with a person with dementia. : A literature review (English)
Abstract [sv]

Bakgrund: Demenssjukdom är ett samlingsbegrepp för olika symtom och förändringar i hjärnan. Det är förknippat med stigande ålder men tillhör inte det normala åldrandet. Det finns inget botemedel mot demens endast symtomlindrande behandling. Demensdiagnosen påverkar inte bara individen med demenssjukdom utan även hens partner. Konflikter uppstod på grund av oförståelse och okunskap. Vårdandet av en person med demenssjukdom var ansträngande och svårigheter att tillfredsställa sina egna och livskamratens behov blev en del av vardagen.  

Syfte: Syftet var att beskriva partnernas upplevelser av att leva med en person med demenssjukdom.

Metod: Litteraturöversikt med kvalitativ design och deduktiv ansats. Antonovskys begrepp begriplighet, hanterbarhet och meningsfullhet har använts som teoretisk referensram. Vetenskapliga artiklar har analyserats utifrån Fribergs femstegsmodell.

Resultat: Partner upplevde brister i information och stöd från hälso- och sjukvård. De kände rädsla, skuld, oro och ångest på grund av obegripligheten kring sjukdomsförloppet och framtiden. Livet uppfattades som svårt att hantera och frustrerande på grund av förlusten av den personen de levt med. Trots olika begränsningar hittade partner meningsfullhet i situationen och det skapade strategier som motiverade dem att fortsätta vårda sin livskamrat.

Slutsatser: Vårdande partnernas hälsa, vardag och framtid påverkades av att leva med en person med demens. De riskerade sin egen hälsa, förlorade meningsfullt socialt umgänge samt att partnern kände osäkerhet inför framtiden. Trots det ville många partner fortsätta ta hand om sin livskamrat.  

Abstract [en]

Background: Dementia is a collective term for various symptoms and changes in the brain. It is associated with increasing age but is not part of the normal aging process. There is no cure for dementia only symptomatic treatment. Dementia affects not only the individual with dementia but also the partner. Conflicts arose because of misunderstanding and lack of knowledge. The care of a person with dementia was demanding and difficulty in satisfying their own and the needs of their life partner became part of everyday life.

Aim: The aim was to describe the partners ' experiences of living with a person with dementia.

Method: Literature review with qualitative design and deductive approach. Antonovsky's concept of comprehensibility, manageability and meaningfulness has been used as a theoretical reference framework. Scientific articles have been analyzed according to Friberg's five-step model.

Results: Partners experience lack of information and support from health care professionals. They feel fear, guilt and anxiety because of the uncertainty surrounding the progression of the disease and the future. Life was difficult to manage and frustrating due to loss of the person they have lived with. Despite various restrictions found in the partner situation and purpose created strategies that motivated them to continue caring for their life partner.

Conclusions: The caring partners ' health, everyday lives and futures were affected by living with a demented life partner. The partners risked their own health, lost meaningful social intercourse, and felt uncertainty about the future. Despite that, many partners would continue to take care of their life partner. 

Place, publisher, year, edition, pages
2017. , 20 p.
Keyword [en]
husband/wife, dementia, sense of coherence, the literature review.
Keyword [sv]
make/maka, demens, känsla av sammanhang, litteraturöversikt.
National Category
Nursing
Identifiers
URN: urn:nbn:se:hj:diva-35918ISRN: JU-HHJ-OMA-1-20170217OAI: oai:DiVA.org:hj-35918DiVA: diva2:1106957
Subject / course
HHJ, Nursing Science
Supervisors
Examiners
Available from: 2017-06-09 Created: 2017-06-08 Last updated: 2017-06-09Bibliographically approved

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