Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Att vara närståendevårdare i livets slutskede
Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
2017 (Swedish)Independent thesis Advanced level (degree of Master (One Year)), 10 credits / 15 HE creditsStudent thesisAlternative title
Being a family carer at the end of life (English)
Abstract [sv]

Sammanfattning

 

Bakgrund: Palliativ vård har utvecklats för att lindra lidande och främja livskvalitet i livets slutskede. Den palliativa vården delas in i främst två faser; tidig och sen fas. Symtomlindring är en av hörnstenarna i palliativ vård och ofta utförs palliativ vård i hemmen av närstående. Detta kan innebära en påfrestning för de närstående då familjestrukturer kan komma att förändras.

Syfte: Att beskriva upplevelsen av att vara närståendevårdare till en person som vårdas palliativt i hemmet.

Metod: En kvalitativ litteraturöversikt där teorin om KASAM har använts. Elva artiklar har analyserats utifrån Fribergs femstegsmodell.

Resultat: Närståendevårdarna upplevde att de inte fick tillräckligt med information eller kunskap från sjukvården samt att kommunikationen med denna var bristfällig. De upplevde att detta påverkade deras känsla av kontroll i situationen och att deras delaktighet i omvårdnaden av den sjuke individen inte togs på allvar. De saknade ofta stöd från sjukvården men tog sig ändå an uppgiften som vårdare och uttryckte tacksamhet över att ha kunnat finnas där för sin sjuke familjemedlem.

Slutsatser: Närståendevårdarna behöver ett bättre stöd från sjukvårdens sida i form av information, fysiskt och psykiskt stöd och bättre kunskap. Sjuksköterskan kommer att spela en stor roll i mötet med dessa personer och det är viktigt att inse vilken stor roll närståendevårdarna spelar i vårdandet av den sjuke individen. 

Abstract [en]

Summary

Being a family carer at the end of life – a review focused on palliative home care

Background: Palliative care was developed to ease suffering and improve quality of life at the end of life. The palliative care is divided into two phases; early palliative care and end-of-life care. The easing of symptoms is one of the palliative cornerstones and the palliative care is often conducted at home by family carers. This can become a burden for the family carers when family structures are changing.

Aim: To describe the experience of being a family carer to a person within palliative home care.

Method: A qualitative literature review was conducted, where the theory of KASAM was used. Eleven articles were reviewed and analysed using Friberg’s five step model.

Results: The family carers felt like they didn’t receive enough information or knowledge from the health care and felt like the communication between them was lacking. The control they experienced in the situation was negatively affected by this and they felt like their involvement in the care of the sick individual was not taken seriously. They were often missing support from the health care but they still adapted the task of being the family carer and expressed gratitude of being able to take care of their sick family member.

Conclusion: Family carers need better support from the health care in the shape of information, physical and psychological support and better knowledge. The role of the nurse is going to be important in meeting these individuals and it’s important to realise the potential these family carers have in nursing the sick person.

Place, publisher, year, edition, pages
2017. , p. 31
Keywords [en]
End of life, family carers, nursing, experience
Keywords [sv]
Livets slutskede, omvårdnad, närstående, upplevelse
National Category
Nursing
Identifiers
URN: urn:nbn:se:hj:diva-35760ISRN: JU-HHJ-OMA-1-20170206OAI: oai:DiVA.org:hj-35760DiVA, id: diva2:1105284
Subject / course
HHJ, Nursing Science
Supervisors
Examiners
Available from: 2017-06-08 Created: 2017-06-02 Last updated: 2017-06-08Bibliographically approved

Open Access in DiVA

fulltext(465 kB)135 downloads
File information
File name FULLTEXT01.pdfFile size 465 kBChecksum SHA-512
a22e76f4150d2b2de5d04e1e5a5868408358e960aeaa94e9f5406bdbd053ac7fe61a302e7d763650da9389b269a123edbf6ed7c77002377b6ea4c2143237396a
Type fulltextMimetype application/pdf

By organisation
HHJ, Dep. of Nursing Science
Nursing

Search outside of DiVA

GoogleGoogle Scholar
Total: 135 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

urn-nbn

Altmetric score

urn-nbn
Total: 654 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf