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Pain management for children with cerebral palsy in school settings in two cultures: Action and reaction approaches
Jönköping University, School of Education and Communication, HLK, CHILD.
Centre for Augmentative and Alternative Communication, University of Pretoria, South Africa.
Jönköping University, School of Education and Communication, HLK, CHILD. University of Gothenburg, Sweden.
2018 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 40, no 18, p. 2152-2162Article in journal (Refereed) Published
Abstract [en]

Background: Children with cerebral palsy (CP) face particular challenges, e.g. daily pain that threaten their participation in school activities. This study focuses on how teachers, personal assistants, and clinicians in two countries with different cultural prerequisites, Sweden and South Africa, manage the pain of children in school settings.

Method: Participants’ statements collected in focus groups were analysed using a directed qualitative content analysis framed by a Frequency of attendance-Intensity of involvement model, which was modified into a Knowing-Doing model.

Results: Findings indicated that pain management focused more on children’s attendance in the classroom than on their involvement, and a difference between countries in terms of action-versus-reaction approaches. Swedish participants reported action strategies to prevent pain whereas South African participants primarily discussed interventions when observing a child in pain.

Conclusion: Differences might be due to school- and healthcare systems. To provide effective support when children with CP are in pain in school settings, an action-and-reaction approach would be optimal and the use of alternative and augmentative communication strategies would help to communicate children’s pain. As prevention of pain is desired, structured surveillance and treatment programs are recommended along with trustful collaboration with parents and access to “hands-on” pain management when needed.

Place, publisher, year, edition, pages
Taylor & Francis, 2018. Vol. 40, no 18, p. 2152-2162
Keywords [en]
Intervention, involvement, participation, prevention, strategy
National Category
Other Medical Sciences not elsewhere specified
Identifiers
URN: urn:nbn:se:hj:diva-35597DOI: 10.1080/09638288.2017.1327987ISI: 000437334400007PubMedID: 28521563Scopus ID: 2-s2.0-85019569130Local ID: HLKCHILDISOAI: oai:DiVA.org:hj-35597DiVA, id: diva2:1098602
Available from: 2017-05-24 Created: 2017-05-24 Last updated: 2018-08-22Bibliographically approved

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Adolfsson, Margareta

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