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An experience-based co-design to accomplish person-centered self-care support for elderly persons with heart failure
Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. IMPROVE (Improvement, innovation, and leadership in health and welfare).
Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. ADULT.
Linköping University, Department of Medical and Health Science, Linköping, Sweden.
Linköping University, Department of Medical and Health Science, Linköping, Sweden.
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2015 (English)In: European Journal of Cardiovascular Nursing, ISSN 1474-5151, E-ISSN 1873-1953, Vol. 14, 51-52 p., 139Article in journal, Meeting abstract (Refereed) Published
Abstract [en]

Introduction: Self-care refers to activities performed with the intention of improving or restoring health and well-being. A good understanding of the adaptations needed in daily life is a prerequisite to motivate individuals to implement such changes. Facilitating the person with heart-failure’s (HF) understanding of the diagnosis, how to handle symptoms, and when to seek healthcare, is one way of proactive self-care. Previous Information and communication technology (ICT) support has proved to be effective in younger patients, but the development has not been user-driven, i.e. involving references and experiences from the patient, their family members or healthcare professionals and have rarely been implemented in clinical practice. In addition, disregard of the user hands over control and responsibility to the healthcare professionals and misses the patient’s desires and requirements.

Aim: To describe an experience-based co-design of ICT for self-care support in the context of heart failure care

Methods: The steps in the process of developing ICT support programs for self-care were guided by an experienced based co-design methodology including: 1) Workshops regarding self-care needs. 2) Workshops regarding self-care support as a means to cope with the phases of the disease. 3) Workshops to assess the usability of the suggested ideas. 4) Workshops to test the different supports in action. The project involved older persons with HF, their family members, healthcare professionals, IT-developers, informatics, development leaders, and researchers. There was also a quality improvement process involved to improve working routines and communication between the person with HF and the healthcare professionals, which in turn, increases the value of the innovation. Data collection include tape- and video recorded workshops and diary notes supplied by the informants. All data are to be analyzed by content analysis to identify needs, opportunities and challenges of self-care.

Results and conclusion: This design was found to be a useful method for finding and assess usability of person-centered self-care ICT support. To involve users in the development of self-care support has improved the opportunities to realize support needed. Sharing these perspectives increases professionally and organizationally learning in order to accomplish person-centered self-care. Preliminary findings show that ICT will be a part of solving some of the self-care needs described by patients, family member and health care providers and the next step in the project will be to test and adapt these tools.

Place, publisher, year, edition, pages
2015. Vol. 14, 51-52 p., 139
National Category
Cardiac and Cardiovascular Systems Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
URN: urn:nbn:se:hj:diva-34666OAI: oai:DiVA.org:hj-34666DiVA: diva2:1063820
Conference
EuroHeartCare 2015
Note

Moderated Poster Session, Psycho-social & Prevention, Sunday 14 June 2015 – 10:00 – 11:00

Available from: 2017-01-11 Created: 2017-01-11 Last updated: 2017-11-29Bibliographically approved

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Nygårdh, AnetteMårtensson, Jan

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HHJ, Dep. of Nursing ScienceHHJ. IMPROVE (Improvement, innovation, and leadership in health and welfare)HHJ. ADULT
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European Journal of Cardiovascular Nursing
Cardiac and Cardiovascular SystemsHealth Care Service and Management, Health Policy and Services and Health Economy

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