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Factors Influencing the Research Participation of Adults with Autism Spectrum Disorders
Autism Spectrum Australia, Frenchs Forest, NSW, Australia.
Autism Spectrum Australia, Frenchs Forest, NSW, Australia.
School of Occupational Therapy and Social Work, Curtin University, Bentley, WA, Australia.
Olga Tennison Autism Research Centre, La Trobe University, Bundoora, VIC, Australia.
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2016 (English)In: Journal of autism and developmental disorders, ISSN 0162-3257, E-ISSN 1573-3432, Vol. 46, no 5, 1793-1805 p.Article in journal (Refereed) Published
Abstract [en]

Recruiting adults with autism spectrum disorders (ASD) into research poses particular difficulties; longitudinal studies face additional challenges. This paper reports on a mixed methods study to identify factors influencing the participation in longitudinal autism research of adults with ASD, including those with an intellectual disability, and their carers. Common and differentiating factors influencing the research participation of participants are identified and discussed. Factors influencing participation were found to differ both between and within participant categories. We propose a dichotomy whereby factors influencing research participation can be classified as those arising from a participant’s values, which act as either a motivator or a deterrent; and those based on convenience, which act as either an enabler or inhibitor. These findings are applicable to research studies that seek to recruit adults with ASD as participants. 

Place, publisher, year, edition, pages
2016. Vol. 46, no 5, 1793-1805 p.
Keyword [en]
Asperger syndrome, Autism, Incentive, Longitudinal studies, Motivation, Research participation, Research recruitment
National Category
Psychology Occupational Therapy
URN: urn:nbn:se:hj:diva-34319DOI: 10.1007/s10803-016-2708-6ISI: 000373995500026PubMedID: 26810436ScopusID: 2-s2.0-84955267343Local ID: HHJCHILDISOAI: diva2:1056329
Available from: 2016-12-14 Created: 2016-12-14 Last updated: 2016-12-14Bibliographically approved

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Falkmer, Torbjörn
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HHJ. CHILDHHJ, Dep. of Rehabilitation
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