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Like being covered in a wet and dark blanket – Parents' lived experiences of losing a child to cancer
Jönköping University, School of Health and Welfare, HHJ. CHILD. Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. Division of Nursing, Department of Health and Learning, University of Skövde, Sweden.ORCID iD: 0000-0001-6419-2417
Division of Nursing, Department of Health and Learning, University of Skövde, Sweden.
Department of Health Sciences, Faculty of Medicine, Lund University, Sweden.
Division of Nursing, Department of Health and Learning, University of Skövde, Sweden.
2016 (English)In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 25, 40-45 p.Article in journal (Refereed) Published
Abstract [en]

Purpose The aim of this study was to illuminate parents' lived experiences of losing a child to cancer.

Method Interviews and a narrative about parents' experiences of losing a child to cancer were gathered from six parents of children whom had participated in a longitudinal study across the child's illness trajectory. The analysis of the data was inspired by van Manen's hermeneutic phenomenological approach.

Results One essential theme emerged: Like being covered in a wet and dark blanket, as well as six related themes: Feeling conflicting emotions, Preparing for the moment of death, Continuing parenting after death, Recollecting and sharing memories, Working through the sorrow and New perspectives in life.

Conclusion There is a need for good palliative care. If not, there is a risk that the parent will perseverate and blame themselves for not being a good parent during the suffering child's last time in life. Meetings with the parents six months and two years after the child's death might facilitate healing through the grief process.

Place, publisher, year, edition, pages
2016. Vol. 25, 40-45 p.
Keyword [en]
Death, Lived experience, Nursing, Paediatric cancer, Palliative care, Parents
National Category
Nursing
Identifiers
URN: urn:nbn:se:hj:diva-32055DOI: 10.1016/j.ejon.2016.08.007PubMedID: 27865251ScopusID: 2-s2.0-84988644276OAI: oai:DiVA.org:hj-32055DiVA: diva2:1040076
Available from: 2016-10-26 Created: 2016-10-26 Last updated: 2016-11-30Bibliographically approved

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