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Sharing experiences of contested illness by storytelling
Linköping University.
2004 (English)In: Discourse & Society, ISSN 0957-9265, E-ISSN 1460-3624, Vol. 15, no 1, p. 33-53Article in journal (Refereed) Published
Abstract [en]

Based on audiotaped conversations from a patient school for adults suffering from chronic fatigue syndrome, this article examines sharing experiences of illness as a mutual activity. The analysis shows that sharing experiences in this context is primarily of the narrative kind. Three main types of narratives were found: self-contained personal stories, orchestrated chained personal stories, and co-narrated collectivized stories. Through sharing three things seem to happen: (1) the participants jointly created experiential knowledge and a mutual image of the illness, (2) the individual sufferers could compare themselves to the jointly constructed image, (3) the active sharing of experience bestows a mutual confirmation of suffering irrespective of whether the individual’s experiences correspond or deviate from the common picture. Two parallel transitions seemed to occur: the transformation of personal experience into shared collectivized experiences and the transition when the individual sufferer perceives his/her private suffering through sharing experiences with co-sufferers.

Place, publisher, year, edition, pages
2004. Vol. 15, no 1, p. 33-53
Keywords [en]
chronic illness, co-narration, identity, illness experience, narrative
National Category
Communication Studies
Identifiers
URN: urn:nbn:se:hj:diva-5622DOI: 10.1177/0957926504038943OAI: oai:DiVA.org:hj-5622DiVA, id: diva2:36442
Available from: 2008-05-27 Created: 2008-05-27 Last updated: 2017-12-12Bibliographically approved

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CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf