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Disability, coping and quality of life in individuals with muscular dystrophy: a prospective study over five years.
Jönköping University, School of Health Science, HHJ, Dep. of Nursing Science. Jönköping University, School of Health Science, HHJ. Quality improvements, innovations and leadership in health care and social work.
2000 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 22, no 17, p. 776-785Article in journal (Refereed) Published
Abstract [en]

PURPOSE: The present study investigates progressive muscular dystrophy over a five year period. The purpose is twofold: to describe changes over time and to investigate relations between disability, coping and quality of life. METHOD: The study group comprised 45 adults (16 men and 29 women), with an average age of 44 years. All were assessed in 1991 and 1996, with the following instruments: the ADL staircase, the Self-report ADL, the Mental Adjustment to Cancer scale, the Sickness Impact Profile and the Psychosocial well-being questionnaire (Kaasa). RESULTS: Increasing disability was accompanied by an increase in dependence on others and a significant deterioration of health-related quality of life and with regard to 'Satisfaction'. The predominant type of coping was 'Fighting spirit', whilst 'Fatalism' showed the greatest decline over time. 'Ambulation' and the ADL staircase correlated with 'Physical index' on the SIP. Correlations between disability, coping and quality of life were moderate. The results can serve as a basis for planning and evaluation of recurring rehabilitation for persons with MD.

Place, publisher, year, edition, pages
2000. Vol. 22, no 17, p. 776-785
Keywords [en]
Activities of Daily Living, Adaptation; Psychological, Adult, Disability Evaluation, Female, Humans, Male, Muscular Dystrophies/*psychology, Prospective Studies, Quality of Life, Questionnaires, Self Assessment (Psychology)
National Category
Nursing Nursing
Identifiers
URN: urn:nbn:se:hj:diva-3697DOI: 10.1080/09638280050200278PubMedID: 11194618OAI: oai:DiVA.org:hj-3697DiVA, id: diva2:34517
Available from: 2007-10-10 Created: 2007-10-10 Last updated: 2017-12-12Bibliographically approved

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Ahlström, Gerd

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CiteExportLink to record
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