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Dental health care for children with Down syndrome – parents’ description of their children’s needs in dental health care settings
Jönköping University, School of Health and Welfare, HHJ, Department of Odontology and Oral Health Science. Jönköping University, School of Health and Welfare, HHJ. Centre for Oral Health. Jönköping University, School of Health and Welfare, HHJ. CHILD.ORCID iD: 0000-0002-5236-5533
Jönköping University, School of Health and Welfare, HHJ. CHILD. National Oral Disability Centre for Rare Disorders, The Institute for Postgraduate Dental Education, Jönköping, Sweden.ORCID iD: 0000-0003-3123-753X
School of Nursing, The University of North Carolina at Chapel Hill, USA.
Center for Dentistry and Oral hygiene, University Medical Center, Groningen, University of Groningen, The Netherlands; Dept. of Special Care in Dentistry, Oral Health Sciences, University of Gent, Gent, Belgium.
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2023 (English)Conference paper, Oral presentation with published abstract (Refereed)
Sustainable development
00. Sustainable Development, 3. Good health and well-being
Abstract [en]

A visit to the dental clinic may be challenging for a child with Downs syndrome due to medical and oral health problems as well as communication problems.

Aim: The aim of the present study was to explore how parents of children with Down syndrome describe their child’s needs in the dental health care setting.

Method: In a online survey concerning parental experiences with dental health care in Sweden, free comments were analysed with content analysis. By answering the survey, parents consented to participate. Ethical approval was obtained by from the Regional Ethics Committee for Human Research at Linköping University, Sweden.

Result: The analyse resulted in five categories: “Need for continuity of care in dental health care”; “Need for dental health care professionals to have knowledge and expertise in caring for children with Down syndrome and other disabilities”; “Need for dental health care professionals to use a caring approach with children with Down syndrome”; “Need for the child with Down syndrome to be prepared to participate in their dental health care visit” “Need for the child with Down syndrome to be given the same rights as typically developing children”.

Conclusion: To support children with Down syndrome in an optimal way, dental health care needs to be tailored to meet the child’s unique needs. When visiting dental health care services, children with Downs syndrome need continuity, and they need to meet professionals who have a caring approach and knowledge and experience of children with Down syndrome.

Place, publisher, year, edition, pages
2023.
National Category
Dentistry
Identifiers
URN: urn:nbn:se:hj:diva-62842OAI: oai:DiVA.org:hj-62842DiVA, id: diva2:1809353
Conference
The 26th conference of the International Association for Disability and Oral Health (iADH 2022), Paris, France, 23-26 August 2022
Available from: 2023-11-03 Created: 2023-11-03 Last updated: 2023-11-03Bibliographically approved

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Stensson, MalinNorderyd, JohannaBjörk, Maria

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