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Get it right, make it easy, see it all: Viewpoints of autistic individuals and parents of autistic individuals about the autism diagnostic process in Australia
Telethon Kids Institute, University of Western Australia, Perth, Western Australia, Australia; School of Allied Health, Curtin University, Bentley, Western Australia, Australia; Cooperative Research Centre for Living with Autism (Autism CRC), Long Pocket, Brisbane, Queensland, Australia; Curtin Autism Research Group, Curtin University, Perth, Western Australia, Australia.
School of Allied Health, Curtin University, Bentley, Western Australia, Australia; Cooperative Research Centre for Living with Autism (Autism CRC), Long Pocket, Brisbane, Queensland, Australia; Curtin Autism Research Group, Curtin University, Perth, Western Australia, Australia; University of Western Australia, Perth, Western Australia, Australia; Center of Neurodevelopmental Disorders (KIND), Department of Women’s and Children’s Health, Karolinska Institutet, Stockholm, Sweden.
Jönköping University, School of Education and Communication, HLK, CHILD. School of Allied Health, Curtin University, Bentley, Western Australia, Australia; Cooperative Research Centre for Living with Autism (Autism CRC), Long Pocket, Brisbane, Queensland, Australia; Curtin Autism Research Group, Curtin University, Perth, Western Australia, Australia; Pain and Rehabilitation Centre, and Department of Medical and Health Sciences, Linköping University, Linköping, Sweden.ORCID iD: 0000-0001-7275-3472
Jönköping University, School of Health and Welfare, HHJ. CHILD. School of Allied Health, Curtin University, Bentley, Western Australia, Australia; c Cooperative Research Centre for Living with Autism (Autism CRC), Long Pocket, Brisbane, Queensland, Australia; Curtin Autism Research Group, Curtin University, Perth, Western Australia, Australia.ORCID iD: 0000-0002-0756-6862
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2021 (English)In: Research in Autism Spectrum Disorders, ISSN 1750-9467, E-ISSN 1878-0237, Vol. 85, article id 101792Article in journal (Refereed) Published
Sustainable development
Sustainable Development
Abstract [en]

Background: The clinical process for being evaluated for an autism diagnosis is often time consuming and stressful for individuals and their caregivers. While experience of and satisfaction with the diagnostic process has been reviewed in the literature, few studies have directly investigated the viewpoints of individuals diagnosed with autism and caregivers of autistic individuals about what is important in the autism diagnostic process.

Method: A Q methodological design was employed to capture the subjective viewpoints about the diagnostic process of individuals on the autism spectrum and caregivers of autistic individuals. Thirty-eight participants responded to a set of 66 statements representing different aspects of the autism diagnostic process.

Results: The analysis identified three significant viewpoints: Get it Right, Make it Easy, and See it All. Participants reflected upon the importance of a comprehensive diagnostic assessment process, ease of diagnostic processes, and a holistic approach to autism diagnosis for autistic individuals and caregivers of autistic individuals.

Conclusions: The findings provide a consumer perspective that encourages reform of the current process for diagnosing autism in Australia, and an insight into what consumers are wanting from diagnostic services. This information is useful for policy-makers and service providers to create a more supportive and client-centred diagnostic process at all levels of service delivery.

Place, publisher, year, edition, pages
Elsevier, 2021. Vol. 85, article id 101792
Keywords [en]
ASD, Diagnosis, Consumer perspective, Assessment
National Category
Psychiatry
Identifiers
URN: urn:nbn:se:hj:diva-55353DOI: 10.1016/j.rasd.2021.101792ISI: 000656684800005Local ID: ;intsam;1620586OAI: oai:DiVA.org:hj-55353DiVA, id: diva2:1620586
Available from: 2021-12-16 Created: 2021-12-16 Last updated: 2023-05-08Bibliographically approved

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Falkmer, MaritaFalkmer, Torbjörn

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