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Experiences From a Coaching Program for Parents of Children and Adolescents With Type 1 Diabetes Developed Through Experienced-Based Co-Design (EBCD)
Ryhov Hospital, Jönköping, Jönköping, Sweden.ORCID iD: 0000-0001-5350-3419
Jönköping University, School of Health and Welfare, HHJ, Department of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. CHILD. Jönköping University, School of Health and Welfare, HHJ. IMPROVE (Improvement, innovation, and leadership in health and welfare).ORCID iD: 0000-0002-5123-032x
Jönköping University, School of Health and Welfare, The Jönköping Academy for Improvement of Health and Welfare. Jönköping University, School of Health and Welfare, HHJ. CHILD.
2020 (English)In: Journal of Patient Experience, ISSN 2374-3735, Vol. 7, no 6, p. 1181-1188Article in journal (Refereed) Published
Abstract [en]

Many children and adolescents with type 1 diabetes (T1D) have difficulties reaching the national treatment goal for HbA1c (long-term blood sugar) which is associated with increased risk for complications. This makes it important to explore what patients and their caregivers describe important in coping with everyday life. The study has been conducted within a pediatric diabetes team in the south of Sweden. The aim was to explore how Experienced-Based Co-Design (EBCD) can be used to identify, test, and evaluate improvement efforts in order to support the family with a child with T1D. A modified variant of EBCD based on focus groups, workshops, and interviews with stakeholders was used. The improvement proposal parental coaching was tested and was appreciated by the participants. The qualitative content analysis of the interviews showed that the coaching program contributed to better confidence and self-efficacy. Both coaches and coachees described that the coaching contributed to better competence and a feeling of hope after attending the coach program. Experienced-Based Co-Design gave an opportunity to explore what?s important to improve, based on experiences and needs of several stakeholders.

Place, publisher, year, edition, pages
Sage Publications, 2020. Vol. 7, no 6, p. 1181-1188
National Category
Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
URN: urn:nbn:se:hj:diva-51310DOI: 10.1177/2374373520969005ISI: 000604911300065PubMedID: 33457563Local ID: POA HHJ 2020OAI: oai:DiVA.org:hj-51310DiVA, id: diva2:1512163
Available from: 2020-12-22 Created: 2020-12-22 Last updated: 2024-10-17Bibliographically approved

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Ramfelt, KerstinPetersson, ChristinaÅkesson, Karin

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HHJ, Department of Nursing ScienceHHJ. CHILDHHJ. IMPROVE (Improvement, innovation, and leadership in health and welfare)The Jönköping Academy for Improvement of Health and Welfare
Health Care Service and Management, Health Policy and Services and Health Economy

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