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Parents’ perceptions of how nurses care for children as relatives of an ill patient: Experiences from an oncological outpatient department
Jönköping University, School of Health and Welfare, HHJ. CHILD. Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. Child Health Services and Futurum Academy for Health and Care, Region Jönköping County, Jönköping, Sweden.ORCID iD: 0000-0002-0156-6677
Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. CHILD.ORCID iD: 0000-0001-8596-6020
Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. Jönköping University, School of Health and Welfare, HHJ. CHILD.
2019 (English)In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 39, p. 35-40Article in journal (Refereed) Published
Abstract [en]

Purpose:

Research has shown that a child's knowledge about what is happening to a parent when he/she has a cancer disease is crucial to the child's health and wellbeing. Therefore the purpose of this study was to explore parents’ perceptions of how nurses in clinical practice care for children as relatives when one parent in the family has a cancer disease.

Method:

A qualitative explorative design with interviews was used. Altogether 28 parents (17 patients and 11 partners) were interviewed. The transcripts from the interviews were subjected to qualitative content analysis.

Results:

The parents perceive that the nurses make efforts to support the child as well as them as parents, but feel that the care needs to be more tailored to the specific child and his/her situation. The children are initially invited, generally informed and seen by the nurses, but the parents perceive that they themselves need repeated support and advice over time to uphold their parental responsibility for caring for their children during the illness trajectory.

Conclusion:

The parents argue for the importance of receiving repeated advice and support for how to talk to their children about the disease and treatment. The parents describe how the nurses were helpful by asking after the children and explaining the value of their visiting the hospital.

Place, publisher, year, edition, pages
Churchill Livingstone , 2019. Vol. 39, p. 35-40
Keywords [en]
Children as relatives, Co-production, Nursing, Parents, Qualitative research
National Category
Nursing
Identifiers
URN: urn:nbn:se:hj:diva-43114DOI: 10.1016/j.ejon.2019.01.004ISI: 000462419500005PubMedID: 30850136Scopus ID: 2-s2.0-85060543265OAI: oai:DiVA.org:hj-43114DiVA, id: diva2:1290596
Available from: 2019-02-21 Created: 2019-02-21 Last updated: 2019-04-11Bibliographically approved

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Golsäter, MarieEnskär, KarinKnutsson, Susanne

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