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Linking youths’ mental, psychosocial, and emotional functioning to ICF-CY: Lessons learned
Högskolan i Jönköping, Högskolan för lärande och kommunikation, HLK, CHILD. Kristianstad University, Sweden.ORCID-id: 0000-0003-4079-8902
Högskolan i Jönköping, Hälsohögskolan, HHJ. CHILD.ORCID-id: 0000-0003-2827-9325
Högskolan i Jönköping, Hälsohögskolan, HHJ, Avd. för socialt arbete. Högskolan i Jönköping, Högskolan för lärande och kommunikation, HLK, CHILD. Högskolan i Jönköping, Hälsohögskolan, HHJ. CHILD. Högskolan i Jönköping, Hälsohögskolan, HHJ. SALVE (Socialt arbete, Livssammanhang, Välfärd).ORCID-id: 0000-0001-9597-039X
Högskolan i Jönköping, Högskolan för lärande och kommunikation, HLK, CHILD.
2018 (Engelska)Ingår i: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 40, nr 19, s. 2293-2299Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Purpose: Linking ready-made questionnaires to codes within the International Classification of Functioning, Disability and Health, Children and Youth Version with the intention of using the information statistically for studying mental health problems can pose several challenges. Many of the constructs measured are latent, and therefore, difficult to describe in single codes. The aim of this study was to describe and discuss challenges encountered in this coding process.

Materials and methods: A questionnaire from a Swedish research programme was linked to the International Classification of Functioning, Disability and Health, Children and Youth Version and the agreement was assessed.

Results: Including the original aim of the questionnaire into the coding process was found to be very important for managing the coding of the latent constructs of the items. Items from the International Classification of Functioning, Disability and Health, Children and Youth Version chapters with narrow definitions for example mental functions, were more easily translated to meaningful concepts to code, while broadly defined chapters, such as interactions and relationships, were more difficult.

Conclusion: This study stresses the importance of a clear, predefined coding scheme as well as the importance of not relying too heavily on common linking rules, especially in cases when it is not possible to use multiple codes for a single item.

  • Implications for rehabilitation
  • The International Classification of Functioning, Disability and Health, Children and Youth Version, is a useful tool for merging assessment data from several sources when documenting adolescents’ mental functioning in different life domains.

  • Measures of mental health are often based on latent constructs, often revealed in the description of the rationale/aim of a measure. The latent construct should be the primary focus in linking information.

  • By mapping latent constructs to the International Classification of Functioning, Disability and Health, Children and Youth Version, users of the classification can capture a broad range of areas relevant to everyday functioning in adolescents with mental health problems.

  • The subjective experience of participation, i.e., the level of subjective involvement, is not possible to code into the International Classification of Functioning, Disability and Health, Children and Youth Version. However, when linking mental health constructs to the International Classification of Functioning, Disability and Health, Children and Youth Version codes, the two dimensions of participation (the being there, and the level of involvement) need to be separated in the linking process. This can be performed by assigning codes focusing on being there as separate from items focusing on the subjective experience of involvement while being there.

Ort, förlag, år, upplaga, sidor
Taylor & Francis, 2018. Vol. 40, nr 19, s. 2293-2299
Nyckelord [en]
Mental health, participation, linking rules, adolescents
Nationell ämneskategori
Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi
Identifikatorer
URN: urn:nbn:se:hj:diva-35864DOI: 10.1080/09638288.2017.1334238ISI: 000440026500010PubMedID: 28573885Scopus ID: 2-s2.0-85020216652OAI: oai:DiVA.org:hj-35864DiVA, id: diva2:1106364
Tillgänglig från: 2017-06-07 Skapad: 2017-06-07 Senast uppdaterad: 2018-09-17Bibliografiskt granskad
Ingår i avhandling
1. Participation in and outside school: Self-ratings by Swedish adolescents with and without impairments and long-term health conditions
Öppna denna publikation i ny flik eller fönster >>Participation in and outside school: Self-ratings by Swedish adolescents with and without impairments and long-term health conditions
2018 (Engelska)Doktorsavhandling, sammanläggning (Övrigt vetenskapligt)
Abstract [en]

This thesis concerns the short-term state of and changes in self-rated participation in domestic life, peer relations and, to some extent, school. Participants were adolescents with and without self-reported impairments and long-term health conditions. It is a thesis in disability research and a functional perspective on the participation of adolescents in everyday activities is applied. The thesis is one of several sub-studies in the Swedish research program LoRDIA (Longitudinal Research on Development in Adolescence).

Aim: The aim was to study the relationships between individual and environmental factors and participation in a two-time point longitudinal study within the frame of the health classification system ICF-CY. The aim was also to study the impact of environmental and individual factors on self-reported participation in adolescents with and without impairments and long-term health conditions.

Methods: The study designs in the four studies are cross-sectional (studies I and II), and prospective longitudinal (studies III & IV). A combination of person-based (such as cluster analysis in studies II and IV) and variable-based methods (such as ANOVA, multiple regressions, logistic regressions (studies I, II, III and IV)) were used.

Results: When linking items from a questionnaire aiming to measure mental health in adolescents to codes in the International Classification of Functioning, Disability and Health, Children and Youth version, latent coding is preferable to manifest coding. The focus should be on the underlying meaning of the item and the primary aim of the scale from which the item originated should be taken into consideration. Concerning the self-rated experience of participation, it was stable over time when investigated from a two-time point longitudinal perspective. Results revealed that type of impairment cannot be considered the sole predictor of the experience of participation at home, with peers and in school. Factors in the microsystem, e.g. sibling support, and perceived communication within the family, are of greater importance for the level of both participation attendance and the perceived importance of participating in domestic life and peer relations.

Conclusion: Everyday functioning in adolescents with self-reported neurodevelopmental impairments is partially affected by the same factors as for children without self-reported neurodevelopmental impairments. The effect of the neurodevelopmental impairment seems more evident in school and decreases in importance with age. Factors in the environment such as the experience of sibling support and communication patterns in the family must be taken into consideration when investigating influences on participation. When measuring participation both the frequency of attendance dimension as well as the perceived importance of the activity should be included as they seem to be related to partly differing influences.

Ort, förlag, år, upplaga, sidor
Jönköping: Jönköping University, School of Health and Welfare, 2018. s. 91
Serie
Dissertation Series. School of Health and Welfare, ISSN 1654-3602 ; 093
Nyckelord
participation, adolescents, everyday functioning, ICF-CY, self-ratings, self-reported neurodevelopmental impairments, person-oriented design
Nationell ämneskategori
Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi
Identifikatorer
urn:nbn:se:hj:diva-41236 (URN)978-91-85835-92-8 (ISBN)
Disputation
2018-10-26, Forum Humanum, School of Health and Welfare, Jönköping, 13:00 (Engelska)
Opponent
Handledare
Tillgänglig från: 2018-08-24 Skapad: 2018-08-24 Senast uppdaterad: 2018-10-17Bibliografiskt granskad

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Augustine, LillyLygnegård, FridaGranlund, MatsAdolfsson, Margareta

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Augustine, LillyLygnegård, FridaGranlund, MatsAdolfsson, Margareta
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HLK, CHILDHHJ. CHILDHHJ, Avd. för socialt arbeteHHJ. SALVE (Socialt arbete, Livssammanhang, Välfärd)
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Disability and Rehabilitation
Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi

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