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Web-based counselling to patients with haematological diseases
Högskolan i Jönköping, Hälsohögskolan, HHJ. ADULT.
2015 (engelsk)Doktoravhandling, med artikler (Annet vitenskapelig)
Abstract [en]

Patients with haematological diseases are entitled to supportive care. Considering organisational and technological development, support in the form of caring communication provided through the web is today a possible alternative. The aim of this thesis was to examine the usefulness and importance of a web-based counselling service to patients with haematological diseases. The basis for the thesis was a development project funded by the Swedish Cancer Society, which provided an opportunity to offer patients communication with a nurse through a web-based counselling service.

Four studies were performed from a patient perspective. Study I had a cross-sectional design, measuring occurrence of anxiety and depression, and these variables’ associations to mastery, social support, and insomnia among patients with haematological diseases. Study II was a qualitative content analysis focusing on conditions for provision and use of the web-based counselling service. Study III used a qualitative hermeneutical approach to focus on patients’ experiences of using the counselling service. Study IV was a qualitative deductive analysis examining how communication within the web-based counselling service can be caring in accordance to caring theory.

The results revealed that females of 30-49 years of age are vulnerable to experiencing anxiety. Low sense of mastery and support are associated with anxiety and/or depression. Being able to self-identify the need for support as well as appreciate the written medium are necessary conditions for the web-based counselling service to be used. The counselling service must also be part of a comprehensive range of supportive activities and web-based services to be useful. The main importance of the communication is that the patient’s influence on the communication is strengthened, and that the constant access to individual medical and caring assessment can imply a sense of safety. When patients share their innermost concerns and search for support, nursing compassion and competence can substantiate in explicit written responses.

A conclusion is that there is a caring potential in communication within a web-based counselling service. To make this form of communication possible, nurses should take possession of and ensure that this medium for communication is offered to patients. Nurses should also increase their knowledge of caring communication in writing and how this possibly can impact patients.

sted, utgiver, år, opplag, sider
Jönköping: School of Health Sciences, Jönköping University , 2015. , s. 85
Serie
Dissertation Series. School of Health Sciences, ISSN 1654-3602 ; 57
Emneord [en]
haematological disease, web-based counselling, caring communication
HSV kategori
Identifikatorer
URN: urn:nbn:se:hj:diva-26454ISBN: 978-91-85835-56-0 (tryckt)OAI: oai:DiVA.org:hj-26454DiVA, id: diva2:810758
Disputas
2015-05-29, Sparbankssalen, Borås, 13:00 (svensk)
Opponent
Veileder
Tilgjengelig fra: 2015-05-08 Laget: 2015-05-08 Sist oppdatert: 2015-05-11bibliografisk kontrollert
Delarbeid
1. Psychosocial factors associated with anxiety and depression in patients with hematological diseases
Åpne denne publikasjonen i ny fane eller vindu >>Psychosocial factors associated with anxiety and depression in patients with hematological diseases
Vise andre…
(engelsk)Manuskript (preprint) (Annet vitenskapelig)
HSV kategori
Identifikatorer
urn:nbn:se:hj:diva-26448 (URN)
Tilgjengelig fra: 2015-05-08 Laget: 2015-05-08 Sist oppdatert: 2015-05-08
2. Prerequisites required for the provision and use of web-based communication for psychosocial support in haematologic care
Åpne denne publikasjonen i ny fane eller vindu >>Prerequisites required for the provision and use of web-based communication for psychosocial support in haematologic care
Vise andre…
2013 (engelsk)Inngår i: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 17, nr 5, s. 596-602Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

Purpose

The purpose of this study was to describe the prerequisites required for the provision and use of web-based communication for psychosocial support within a haematology clinic, from a patient and family perspective.

Method

A qualitative design using content analysis was used. A strategically selected sample of patients (n = 11) and family members (n = 6) were offered access to a web-based communication capability with a nurse. After four months, individual interviews were conducted with all participants, in order to identify necessary prerequisites.

Results

Preferences and characteristics of the individual patient or family member are crucial as to whether web-based communication for support is perceived as useful. To feel comfortable with writing and to self-identify the need for support are fundamental in getting motivated to use web-based communication. An effective organization around psychosocial support in general is another prerequisite. Goals and responsibilities must be clearly defined for patients and family members to understand their rights and enable the transformation of opportunities into practice. The use of web-based communication must also be a convenient and naturally incorporated part of both individual and organizational use of the web in general.

Conclusions

Prerequisites of taking into account caretakers' different preferences and needs, providing highly structured psychosocial support activities and providing a congruent range of web services, are necessary for successful provision and use of web-based communication for psychosocial support.

Emneord
Social support; Supportive care; Communication; Internet; Cancer; Haematology
HSV kategori
Identifikatorer
urn:nbn:se:hj:diva-26450 (URN)10.1016/j.ejon.2013.01.005 (DOI)000325600800012 ()23453568 (PubMedID)2-s2.0-84883765683 (Scopus ID)
Tilgjengelig fra: 2015-05-08 Laget: 2015-05-08 Sist oppdatert: 2018-03-16bibliografisk kontrollert
3. The meaning of web-based communication for support: From the patients' perspective within a hematological healthcare setting
Åpne denne publikasjonen i ny fane eller vindu >>The meaning of web-based communication for support: From the patients' perspective within a hematological healthcare setting
Vise andre…
2015 (engelsk)Inngår i: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 38, nr 2, s. 145-154Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

BACKGROUND:

Being critically ill with a hematological disease is a challenge, sometimes causing a need for support in the adjustment to the stressful life situation. By providing Web-based communication for support from a nurse, patients get access to an alternative and untraditional way to communicate their issues.

OBJECTIVE:

The aim was to describe the meaning of using Web-based communication for support from a patient perspective.

METHODS:

A comprehensive randomized pilot study (n = 30) was conducted, allowing 15 patients in the experimental group to have access to the Web-based communication, to evaluate feasibility. Of these 15 participants, 10 were interviewed, focusing on their experiences. An empirical hermeneutical approach was used and the interpretive analysis focused on the meanings.

RESULTS:

Web-based communication for support means a space for patients to have their say, consolidation of a matter, an extended caring relationship, access to individual medical assessment, and an opportunity for emotional processing. The main interpretation indicates that the patient's influence on the communication strengthens according to the asynchronous, faceless, and written communication. The increased, and in some sense constant, access to an individual medical and caring assessment, in turn, implies a feeling of safety.

CONCLUSION:

Web-based communication for support seems to have the potential to enhance patients' participation on their own terms.

IMPLICATIONS FOR PRACTICE:

To achieve the possible advantages of Web-based communication for support, nurses must acquire knowledge about caring writing. It requires respect for the patient and articulated accuracy and attention in the response given.

Emneord
Cancer, Communication, Hematology, Hermeneutics, Internet, Social support, Supportive care, Web
HSV kategori
Identifikatorer
urn:nbn:se:hj:diva-25553 (URN)10.1097/NCC.0000000000000145 (DOI)000349907900015 ()24831039 (PubMedID)
Tilgjengelig fra: 2015-01-09 Laget: 2015-01-09 Sist oppdatert: 2017-12-05bibliografisk kontrollert
4. Caring through web-based counselling — A nursing intervention
Åpne denne publikasjonen i ny fane eller vindu >>Caring through web-based counselling — A nursing intervention
2015 (engelsk)Inngår i: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122Artikkel i tidsskrift (Annet vitenskapelig) Submitted
HSV kategori
Identifikatorer
urn:nbn:se:hj:diva-26452 (URN)
Tilgjengelig fra: 2015-05-08 Laget: 2015-05-08 Sist oppdatert: 2017-12-04

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