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Parental perspectives on family mealtimes related to gastrostomy tube feeding in children
Halmstad University, Halmstad, Sweden; Region Halland, Kungsbacka, Sweden.
Jönköping University, Hälsohögskolan, HHJ, Avd. för socialt arbete. Jönköping University, Hälsohögskolan, HHJ. CHILD. Jönköping University, Högskolan för lärande och kommunikation, HLK, CHILD.ORCID-id: 0000-0001-9597-039X
Region Halland, Kungsbacka, Sweden.
2021 (engelsk)Inngår i: Qualitative Health Research, ISSN 1049-7323, E-ISSN 1552-7557, Vol. 31, nr 9, s. 1596-1608Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

Built on the important functions daily routines serve families and child health, this study aimed to explore parents' descriptions of mealtimes and food-related challenges when living with a child using a gastrostomy feeding tube. The study was informed by ecocultural theory and based on in-depth interviews combined with stimulated recall. The interviews of 10 parents were inductively analyzed by means of qualitative content analysis. Four main categories comprised the parents' descriptions: "One situation, different functions," "On the child's terms," "Doing something to me," and "An unpredictable pattern," with one overarching theme. The analyses showed that the parents strived to establish mealtimes in line with their cultural context, although they struggled to reach a point of satisfaction. The study highlights the importance of health care professionals to address the medical aspects of caring for a child with a G-tube, but also the potential psychological and social consequences for ordinary family life.

sted, utgiver, år, opplag, sider
Sage Publications, 2021. Vol. 31, nr 9, s. 1596-1608
Emneord [en]
Sweden, developmental disabilities, ecocultural theory, enteral nutrition, interviews, pediatrics, qualitative, stimulated recall
HSV kategori
Identifikatorer
URN: urn:nbn:se:hj:diva-52000DOI: 10.1177/1049732321997133ISI: 000627084200001PubMedID: 33666118Scopus ID: 2-s2.0-85102151433Lokal ID: HOA;;726581OAI: oai:DiVA.org:hj-52000DiVA, id: diva2:1535484
Tilgjengelig fra: 2021-03-09 Laget: 2021-03-09 Sist oppdatert: 2021-12-12bibliografisk kontrollert

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