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Att leva i en hemmiljö med döden närvarande: Närståendes upplevelser av palliativ hemsjukvård
Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science. 1995.
Jönköping University, School of Health and Welfare, HHJ, Dep. of Nursing Science.
2019 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
To live in a home environment with death present : relatives’ experiences of palliative home care (English)
Abstract [sv]

Bakgrund: Hur en person väljer att leva sin sista tid i livet, samt hur personen väljer att dö har en stor påverkan på de närstående. Målet med palliativ vård är att förbättra livskvaliteten för både patient samt närstående. Numera förväntas familj och närstående ta rollen som vårdare. Syfte: Litteraturöversiktens syfte var att beskriva närståendes upplevelser av palliativ hemsjukvård. Metod: En kvalitativ litteraturöversikt med en induktiv ansats grundades på 14 vetenskapliga artiklar. Artikelsökningen gjordes i CINAHL och Medline. Resultat: Resultatet presenterades i sju subteman som genererade tre huvudteman; Att anta en vårdarroll, Begränsningar i det vardagliga livet och Behov av stöd. Närstående såg sin roll som en självklarhet trots de förändringar det medföljde. Otillräcklighet, isolering och ensamhet var känslor som framkom. En god etablerad relation med hemsjukvårdspersonalen minskade dessa känslor. Konklusion: Behov av stöd, god relation, information, trygghet och delaktighet var faktorer som påverkade upplevelsen av den palliativa hemsjukvården. Detta möjliggörs genom att hemsjukvårdpersonal applicerar familjefokuserad omvårdnad i vården.  

Abstract [en]

Background: How a person chooses to live the last time in life, as well as how the person decides to die has a major impact on their relatives. The goal of palliative care is to improve the quality of life for both patient and relatives. Nowadays relatives are expected to take the role as a caregiver. Purpose: The purpose of the literature review was to describe the relatives’ experiences of palliative home care. Method: A qualitative literature review with an inductive approach was based on 14 scientific articles. The article search was made in CINAHL and Medline. Result: The result was presented in seven sub themes that generated three main themes; To adopt a healthcare role, Restrictions in everyday life and Need for Support. Relatives saw their role as a matter of necessity despite the changes that followed. Insufficiency, isolation and loneliness were feelings that emerged. A well-established relation with home care professionals reduced these feelings. Conclusion: The need for support, good relations, information, safety and participating were factors that affected the experience of palliative home care. Home nursing staff enabled this by applying family-focused nursing care. 

Place, publisher, year, edition, pages
2019. , p. 26
Keywords [en]
Experience, Home care, Palliative care, Qualitative, Relatives
Keywords [sv]
Hemsjukvård, Kvalitativ, Närstående, Palliativ vård, Upplevelser
National Category
Nursing
Identifiers
URN: urn:nbn:se:hj:diva-42747ISRN: JU-HHJ-OMA-1-20190428OAI: oai:DiVA.org:hj-42747DiVA, id: diva2:1282173
Subject / course
HHJ, Nursing Science
Supervisors
Examiners
Available from: 2019-01-28 Created: 2019-01-24 Last updated: 2019-01-28Bibliographically approved

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CiteExportLink to record
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