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Simeonsson, Rune J.
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Publications (10 of 11) Show all publications
Pan, Y.-L., Hwang, A.-W., Simeonsson, R. J., Lu, L. & Liao, H.-F. (2019). Utility of the early delay and disabilities code set for exploring the linkage between ICF-CY and assessment reports for children with developmental delay. Infants and young children, 32(3), 215-227
Open this publication in new window or tab >>Utility of the early delay and disabilities code set for exploring the linkage between ICF-CY and assessment reports for children with developmental delay
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2019 (English)In: Infants and young children, ISSN 0896-3746, E-ISSN 1550-5081, Vol. 32, no 3, p. 215-227Article in journal (Refereed) Published
Abstract [en]

The International Classification of Functioning, Disability and Health (ICF) offers a universal language of codes to document childhood functioning. The ICF-CY Code Set for Infants with Early Delay and Disabilities (EDD Code Set) has been developed to facilitate the practical application of the ICF for children. The purpose of this study was to examine the utility of the EDD Code Set by exploring the linkage between ICF and children's assessment reports. We reviewed 30 Comprehensive Assessment Reports (CAR) for children with developmental delay (DD), aged 9-34 months in a joint evaluation center. Meaningful concepts in compulsory and supplementary sections of the CAR were identified and linked to the EDD Code Set. Linkage was measured by (a) number of linked codes and (b) average of code-only and code-with-qualifier percentages. Content in the CAR was linked to 72 of the 82 EDD codes with more codes linked from the supplementary (71) than the compulsory section (58). The largest proportion of linked codes was activities and participation (85%). The EDD Code Set can be used to examine the ICF linkage of pediatric assessment reports and guide future development or revision of pediatric documentation and participation-based intervention. 

Place, publisher, year, edition, pages
Wolters Kluwer, 2019
Keywords
assessment, code set, developmental delay, developmental disabilities, early intervention, functioning profile, ICF-CY
National Category
Psychology Pediatrics
Identifiers
urn:nbn:se:hj:diva-45477 (URN)10.1097/IYC.0000000000000144 (DOI)2-s2.0-85068336379 (Scopus ID);HLKCHILDIS (Local ID);HLKCHILDIS (Archive number);HLKCHILDIS (OAI)
Available from: 2019-08-07 Created: 2019-08-07 Last updated: 2019-08-07Bibliographically approved
Vale, M. d., Pereira-da-Silva, L., Pimentel, M. J., Marques, T. N., Rodrigues, H., Cunha, G., . . . Simeonsson, R. J. (2017). Classifying Functioning of Children and Adolescents with Intellectual Disability: The Utility of the International Classification of Functioning, Disability and Health for Children and Youth. Journal of Policy and Practice in Intellectual Disabilities, 14(4), 285-292
Open this publication in new window or tab >>Classifying Functioning of Children and Adolescents with Intellectual Disability: The Utility of the International Classification of Functioning, Disability and Health for Children and Youth
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2017 (English)In: Journal of Policy and Practice in Intellectual Disabilities, ISSN 1741-1122, E-ISSN 1741-1130, Vol. 14, no 4, p. 285-292Article in journal (Refereed) Published
Abstract [en]

Observational cross-sectional study carried out in a pediatric neurodevelopment unit of a tertiary-care hospital. A sample of 355 children with median ((min.–max.) 1.0–17.3) years with intellectual disability (30.4% borderline, 43.1% mild, 19.7% moderate, 5.1% severe, and 1.7% profound disability) was seen over a period of 3 years. Based on clinical observation and psychological evaluation, a neurodevelopmental pediatrician selected ICF-CY body functions codes, and respective qualifiers, to effectively describe functioning of children. Based on evaluation reports, a psychologist and a special educator assigned the previously chosen ICF-CY body functions codes to 139 and 67 children, respectively. Inter-rater agreement was estimated using simple and weighted Cohen's kappa coefficients and Gwet's AC1 statistic and Gwet's weighted kappa coefficient statistic. A set of eight ICF-CY codes was identified as efficiently describing impairments of body functions of children with intellectual disability: global mental functions b117 and b122; specific mental functions b147, b163, b164, and b167; and voice and speech functions b320 and b330. Results indicate a correspondence between the level of severity of qualifiers assigned to ICF-CY codes and the level of intellectual disability. Inter-rater agreement was variable among raters, with the best agreements found for qualifying intellectual functions (b117) and psychomotor functions (b122). A profile of eight ICF-CY codes effectively describes functioning of children with intellectual disability, providing an alternative to medically based classification, based on diagnoses with functionally based classification of children's characteristics. The findings contribute to define a comprehensive set of codes to reliably record individual differences of functioning in this population.

Place, publisher, year, edition, pages
John Wiley & Sons, 2017
Keywords
Disability and Health for Children and Youth (ICF-CY), intellectual disabilities, International Classification of Functioning, interobserver agreement
National Category
Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
urn:nbn:se:hj:diva-39129 (URN)10.1111/jppi.12199 (DOI)000418429400003 ()2-s2.0-85034762443 (Scopus ID)HLKCHILDIS (Local ID)HLKCHILDIS (Archive number)HLKCHILDIS (OAI)
Available from: 2018-04-13 Created: 2018-04-13 Last updated: 2018-04-13Bibliographically approved
Simeonsson, R. J., Lollar, D., Björck-Åkesson, E., Granlund, M., Brown, S. C., Zhuoying, Q., . . . Pan, Y. (2014). ICF and ICF-CY lessons learned: Pandora’s box of personal factors. Disability and Rehabilitation, 36(25), 2187-2194
Open this publication in new window or tab >>ICF and ICF-CY lessons learned: Pandora’s box of personal factors
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2014 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 36, no 25, p. 2187-2194Article in journal (Refereed) Published
Abstract [en]

Purpose: The aim of this article is to examine the component of “personal factors” described as a contextual factor in the ICF and ICF-CY.

Methods: A critical examination of the construct of “personal factors” and description of the component was made with reference to conceptual and taxonomic criteria.

Results: The “personal factors” component in the ICF/ICF-CY is not defined, there is no taxonomy of codes, there is no explicit purpose stated for its use and no guidelines are provided for its application. In spite of these constraints, the component of “personal factors” is being applied as part of the classifications. Such uncontrolled applications constitute significant risks for the status of ICF/ICF-CY as the WHO reference classification in that: (a) the component is accepted for use by default simply by being applied; (b) component content is expanded with idiosyncratic exemplars by users; and (c) there is potential misuse of “personal factors” in documenting personal attributes, including “blaming the victim”.

Conclusion: In the absence of formal codes, any application of the component of “personal factors” lacks the legitimacy that documentation with a scientific taxonomy should provide. Given the growing use of the ICF/ICF-CY globally, a priority for the revision process should be to determine if there is in fact need for “personal” or any other factors in the ICF/ICF-CY.

Keywords
classification, ICF, ICF-CY, personal factors
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:hj:diva-23172 (URN)10.3109/09638288.2014.892638 (DOI)000346060300010 ()24601863 (PubMedID)2-s2.0-84916605827 (Scopus ID)HHJCHILDIS, HLKCHILDIS (Local ID)HHJCHILDIS, HLKCHILDIS (Archive number)HHJCHILDIS, HLKCHILDIS (OAI)
Available from: 2014-01-21 Created: 2014-01-21 Last updated: 2017-12-06Bibliographically approved
Björck-Åkesson, E. & Simeonsson, R. (2007). The International Consortium for Early Childhood Intervention. In: : . Paper presented at The EC/US Programme for Cooperation in Higher Eucation and Vocational Training: European Commission, Directorate-General Education and Culture & US Fund for the Improvement of Postsecondary Education. March 15-16th 2007.
Open this publication in new window or tab >>The International Consortium for Early Childhood Intervention
2007 (English)Conference paper, Published paper (Other academic)
National Category
Social Sciences Interdisciplinary
Identifiers
urn:nbn:se:hj:diva-3605 (URN)
Conference
The EC/US Programme for Cooperation in Higher Eucation and Vocational Training: European Commission, Directorate-General Education and Culture & US Fund for the Improvement of Postsecondary Education. March 15-16th 2007
Available from: 2007-09-26 Created: 2007-09-26 Last updated: 2018-01-12Bibliographically approved
Björck-Åkesson, E., Granlund, M. & Simeonsson, R. J. (2006). Early Childhood Intervention. In: Encyclopedia of Disability: . London: Sage Publications
Open this publication in new window or tab >>Early Childhood Intervention
2006 (English)In: Encyclopedia of Disability, London: Sage Publications , 2006Chapter in book (Other academic)
Place, publisher, year, edition, pages
London: Sage Publications, 2006
National Category
Social Sciences Interdisciplinary
Identifiers
urn:nbn:se:hj:diva-5148 (URN)9780761925651 (ISBN)
Available from: 2008-01-09 Created: 2008-01-09 Last updated: 2018-01-12Bibliographically approved
Simeonsson, R., Granlund, M. & Björck-Åkesson, E. (2006). The Concept and Classification of Mental Retardation. In: What is mental retardation?: Ideas for an evolviong Disability in the 21st Century (pp. 245-264). Washington D.C.: American Association on Mental Retardation
Open this publication in new window or tab >>The Concept and Classification of Mental Retardation
2006 (English)In: What is mental retardation?: Ideas for an evolviong Disability in the 21st Century, Washington D.C.: American Association on Mental Retardation , 2006, p. 245-264Chapter in book (Other (popular science, discussion, etc.))
Place, publisher, year, edition, pages
Washington D.C.: American Association on Mental Retardation, 2006
National Category
Social Sciences
Identifiers
urn:nbn:se:hj:diva-3611 (URN)0-940898-93-4 (ISBN)
Available from: 2007-09-26 Created: 2007-09-26 Last updated: 2016-03-07Bibliographically approved
Björck-Åkesson, E., Granlund, M. & Simeonsson, R. (2005). Special education: a systems theory perspective. In: Mångsidigt samspel: en vänbok till Siv Fischbein (pp. 41-55). Stockholm: Hls Förlag
Open this publication in new window or tab >>Special education: a systems theory perspective
2005 (English)In: Mångsidigt samspel: en vänbok till Siv Fischbein, Stockholm: Hls Förlag , 2005, p. 41-55Chapter in book (Other academic)
Place, publisher, year, edition, pages
Stockholm: Hls Förlag, 2005
Identifiers
urn:nbn:se:hj:diva-5152 (URN)91-7656-596-3 (ISBN)
Available from: 2008-01-09 Created: 2008-01-09 Last updated: 2016-03-07Bibliographically approved
Simeonsson, R. ., Leonardi, M., Lollar, D., Björck-Åkesson, E., Hollenweger, J. & Martinuzzi, A. (2003). Applying the International Classification of Functioning, Disability and Health (ICF) to measure childhood disability. Disability and Rehabilitation, 25(11-12), 602-610
Open this publication in new window or tab >>Applying the International Classification of Functioning, Disability and Health (ICF) to measure childhood disability
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2003 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 25, no 11-12, p. 602-610Article in journal (Refereed) Published
Abstract [en]

The International Classification of Functioning, Disability and Health-ICF addresses the broad need for a common language and classification of functioning and disability. A parallel need is appropriate measures compatible with the content of the ICF to document the nature and impact of limitations of function, activities and participation. The interaction of developmental characteristics and disability among children represent special challenges for classification as well as measurement. Demographic trends emphasize the need for universal measures that encompass the components of the ICF and can be used in surveillance, screening and evaluation. This paper identifies issues related to application of the ICF to measure disability in childhood; reviews approaches and tools to assess childhood disability and identifies priorities for the development of measures of functioning and disability in children based on the ICF. The development of measures should be framed within a framework of children's rights and application of the biopsychosocial model to document profiles of functioning and disability of children.

National Category
Social Sciences
Identifiers
urn:nbn:se:hj:diva-4130 (URN)10.1080/0963828031000137117 (DOI)
Available from: 2007-07-19 Created: 2007-07-19 Last updated: 2017-12-12Bibliographically approved
Björck-Åkesson, E. & Simeonsson, R. (2003). Varför behövs en barnversion av ICF?. Socialmedicinsk Tidskrift, 6, 510-514
Open this publication in new window or tab >>Varför behövs en barnversion av ICF?
2003 (Swedish)In: Socialmedicinsk Tidskrift, ISSN 0037-833X, Vol. 6, p. 510-514Article in journal (Other academic) Published
National Category
Pedagogy
Identifiers
urn:nbn:se:hj:diva-2268 (URN)
Available from: 2007-05-29 Created: 2007-05-29 Last updated: 2017-12-12Bibliographically approved
Simeonsson, R., Granlund, M. & Björck-Åkesson, E. (2002). Classifying mental retardation: impairment, disability, handicap, limitations or restrictions?. In: What is mental retardation?: Ideas for an evolving disability (pp. 309-329). Washington DC.: American Association on Mental retardation
Open this publication in new window or tab >>Classifying mental retardation: impairment, disability, handicap, limitations or restrictions?
2002 (English)In: What is mental retardation?: Ideas for an evolving disability, Washington DC.: American Association on Mental retardation , 2002, p. 309-329Chapter in book (Other academic)
Place, publisher, year, edition, pages
Washington DC.: American Association on Mental retardation, 2002
National Category
Social Sciences
Identifiers
urn:nbn:se:hj:diva-5160 (URN)
Available from: 2008-01-09 Created: 2008-01-09 Last updated: 2016-03-07Bibliographically approved
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