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Lu, Q., Mårtensson, J., Zhao, Y. & Johansson, L. (2019). Living on the edge: Family caregivers’ experiences of caring for post-stroke family members in China: A qualitative study. International Journal of Nursing Studies, 94, 1-8
Open this publication in new window or tab >>Living on the edge: Family caregivers’ experiences of caring for post-stroke family members in China: A qualitative study
2019 (English)In: International Journal of Nursing Studies, ISSN 0020-7489, E-ISSN 1873-491X, Vol. 94, p. 1-8Article in journal (Refereed) Published
Abstract [en]

Background: Globally, one-third of the 15 million people with stroke suffer permanent physical, cognitive, and emotional impairment. Because of traditional Chinese culture and the limited development of the primary healthcare system, most stroke survivors are cared for and live with their family after hospital discharge. However, previous literature shows a lack of qualitative studies on family caregivers’ experience of caring for their relatives in China. Objectives: The aim of this study was to explore the experience of family caregivers taking care of stroke survivors in China. Methods: An explorative design was used wherein qualitative semi-structured interviews were conducted with family caregivers in China. Family caregivers were selected from one city and three communities using a purposive sampling method until no new data were generated (n = 26). A thematic analysis was used for the data analysis in this study. Findings: Family caregivers’ experience was described as living on the edge, which pulled their lives in multiple directions, created an unstable situation, and reduced their well-being and health. The participants believed they had total responsibility and felt that this was expected from both themselves and society. Little external understanding and insufficient support was emphasised, resulting in the caregivers feeling all alone, drained by caring, and like prisoners in their own lives. The family caregivers had to face all of the family events and make all of the decisions by themselves. They expressed love for their family members with stroke, but this was often overshadowed by feelings of sadness, depression, sensitivity, and anger. This resulted in an inability to see how things could improve and in the family caregivers being uncertain about the future. Conclusion: All of these findings increased understanding and added knowledge of this topic that has been seldom studied in China. Healthcare authorities and professionals should recognise and understand the lives and situations of family caregivers since their relatives had a stroke to further identify their difficulties and needs. Appropriate and effective support, both from government and society, should be planned and implemented for family caregivers to relieve them from caring for their relatives with stroke and maintaining the quality of their own lives.

Place, publisher, year, edition, pages
Elsevier, 2019
Keywords
China, Experience, Family caregiver, Interview, Qualitative research, Stroke
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-43453 (URN)10.1016/j.ijnurstu.2019.02.016 (DOI)30928717 (PubMedID)2-s2.0-85063428035 (Scopus ID)HHJADULTIS (Local ID)HHJADULTIS (Archive number)HHJADULTIS (OAI)
Available from: 2019-04-11 Created: 2019-04-11 Last updated: 2019-04-15Bibliographically approved
Lindmark, U., Bülow, P. H., Mårtensson, J. & Rönning, H. (2019). The use of the concept of transition in different disciplines within health and social welfare: An integrative literature review.
Open this publication in new window or tab >>The use of the concept of transition in different disciplines within health and social welfare: An integrative literature review
2019 (English)In: Article, review/survey (Refereed) Epub ahead of print
Abstract [en]

Aims

To continuing the quest of the concept of transition in nursing research and to explore how the concept of transition is used in occupational therapy, oral health and social work as well as in interdisciplinary studies in health and welfare, between 2003–2013.

Design

An integrative literature review.

Methods

PubMed, CINAHL, PsycINFO, DOSS, SocIndex, Social Science Citation Index and AMED databases from 2003–2013 were used. Identification of 350 articles including the concept of transition in relation to disciplines included. Assessment of articles are in accordance to Meleis' typologies of transition by experts in each discipline. Chosen key factors were entered into Statistical Package for the Social Sciences (SPSS).

Results

Meleis' four typologies were found in all studied disciplines, except development in oral health. The health‐illness type was the most commonly explored, whereas in social work and in occupation therapy, situational transitions dominated.

Place, publisher, year, edition, pages
John Wiley & Sons, 2019
Keywords
literature review, nursing theory, occupational therapy, oral health, social welfare, social work, theory–practice gap, transition
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-43307 (URN)10.1002/nop2.249 (DOI)
Available from: 2019-03-07 Created: 2019-03-07 Last updated: 2019-03-07
Iversen, E., Kolltveit, B.-C. H., Hernar, I., Mårtensson, J. & Haugstvedt, A. (2019). Transition from paediatric to adult care: a qualitative study of the experiences of young adults with type 1 diabetes.. Scandinavian Journal of Caring Sciences
Open this publication in new window or tab >>Transition from paediatric to adult care: a qualitative study of the experiences of young adults with type 1 diabetes.
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2019 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712Article in journal (Refereed) Epub ahead of print
Abstract [en]

AIM: The aim of the present study was to explore how young adults with type 1 diabetes (T1D) experienced the transition from paediatric to adult health care services.

DESIGN: A qualitative, explorative design was used.

METHODS: Eleven young adults with T1D receiving adult diabetes care at a hospital in western Norway participated in semi-structured interviews. Data were analysed using Interpretive Description, an inductive approach inspired by grounded theory, ethnography and phenomenology, and specifically designed to explore phenomena in clinical practice aiming to generate new knowledge and skills.

RESULTS: Four main themes regarding the adolescents' experiences of the transfer from paediatric to adult care emerged: (i) limited information about the transition; (ii) transition from frequent, thorough and personal follow-up to a less comprehensive and less personal follow-up; (iii) the importance of being seen as a whole person; (iv) limited expectations of how the health care services were organised.

CONCLUSIONS: The study showed that the existing routines for transfer between paediatric and adult care are not optimal. The participants expressed that they were not prepared for the dissimilarities in follow-up and were predominantly less pleased with the adult care follow-up.

RELEVANCE TO CLINICAL PRACTICE: The findings support a need for structured transition programmes, that is programmes that contribute to young adults with T1D receiving a safe and positive transition at an otherwise demanding life phase. Young peoples' individual needs for the transition to and follow-up in adult care may be promoted by an approach based on person-centred care.

Place, publisher, year, edition, pages
John Wiley & Sons, 2019
Keywords
adolescents, transition to adult care, type 1 diabetes, young adults
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-43405 (URN)10.1111/scs.12668 (DOI)30866071 (PubMedID)2-s2.0-85062978847 (Scopus ID)HHJADULTIS (Local ID)HHJADULTIS (Archive number)HHJADULTIS (OAI)
Available from: 2019-04-02 Created: 2019-04-02 Last updated: 2019-04-02
Lin, C.-Y., Broström, A., Årestedt, K., Mårtensson, J., Steinke, E. E. & Pakpour, A. H. (2019). Using extended theory of planned behavior to determine factors associated with help-seeking behavior of sexual problems in women with heart failure: a longitudinal study. Journal of Psychosomatic Obstetrics and Gynaecology, 1-8
Open this publication in new window or tab >>Using extended theory of planned behavior to determine factors associated with help-seeking behavior of sexual problems in women with heart failure: a longitudinal study
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2019 (English)In: Journal of Psychosomatic Obstetrics and Gynaecology, ISSN 0167-482X, E-ISSN 1743-8942, p. 1-8Article in journal (Refereed) Epub ahead of print
Abstract [en]

INTRODUCTION: This study used extended theory of planned behavior (extended TPB) to understand the underlying factors related to help-seeking behavior for sexual problems among Iranian women with heart failure (HF).

METHODS: We recruited 758 women (mean age = 61.21 ± 8.92) with HF at three university-affiliated heart centers in Iran. Attitude, subjective norms, perceived behavioral control, behavioral intention, self-stigma of seeking help, perceived barriers, frequency of planning, help-seeking behavior, and sexual function were assessed at baseline. Sexual function was assessed again after 18 months. Structural equation modeling was used to explain change in sexual functioning after 18 months.

RESULTS: Attitude and perceived behavioral control were positively correlated to behavioral intention. Behavioral intention was negatively and self-stigma in seeking help was positively correlated to perceived barriers. Behavioral intention was positively and self-stigma in seeking help was negatively correlated to frequency of planning. Perceived behavioral control, behavior intention, and frequency of planning were positively and self-stigma in seeking help and perceived barriers were negatively correlated to help-seeking behavior. Help-seeking behavior was positive correlated to the change of FSFI latent score.

CONCLUSIONS: The extended TPB could be used by healthcare professionals to design an appropriate program to treat sexual dysfunction in women with HF.

Place, publisher, year, edition, pages
Taylor & Francis, 2019
Keywords
Extended theory of planned behavior, heart failure, help-seeking, sexual function, women
National Category
Cardiac and Cardiovascular Systems
Identifiers
urn:nbn:se:hj:diva-43368 (URN)10.1080/0167482X.2019.1572743 (DOI)30829094 (PubMedID)2-s2.0-85062442921 (Scopus ID);HHJADULTIS (Local ID);HHJADULTIS (Archive number);HHJADULTIS (OAI)
Available from: 2019-03-21 Created: 2019-03-21 Last updated: 2019-03-21
Pettersen, T. R., Mårtensson, J., Axelsson, Å., Jørgensen, M., Strömberg, A., Thompson, D. & Norekvål, T. M. (2018). European cardiovascular nurses' and allied professionals' knowledge and practical skills regarding cardiopulmonary resuscitation.. European Journal of Cardiovascular Nursing, 17(4), 336-344
Open this publication in new window or tab >>European cardiovascular nurses' and allied professionals' knowledge and practical skills regarding cardiopulmonary resuscitation.
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2018 (English)In: European Journal of Cardiovascular Nursing, ISSN 1474-5151, E-ISSN 1873-1953, Vol. 17, no 4, p. 336-344Article in journal (Refereed) Published
Abstract [en]

PURPOSE: Cardiopulmonary resuscitation (CPR) remains a cornerstone in the treatment of cardiac arrest, and is directly linked to survival rates. Nurses are often first responders and need to be skilled in the performance of cardiopulmonary resuscitation. As cardiopulmonary resuscitation skills deteriorate rapidly, the purpose of this study was to investigate whether there was an association between participants' cardiopulmonary resuscitation training and their practical cardiopulmonary resuscitation test results.

METHODS: This comparative study was conducted at the 2014 EuroHeartCare meeting in Stavanger ( n=133) and the 2008 Spring Meeting on Cardiovascular Nursing in Malmö ( n=85). Participants performed cardiopulmonary resuscitation for three consecutive minutes CPR training manikins from Laerdal Medical®. Data were collected with a questionnaire on demographics and participants' level of cardiopulmonary resuscitation training.

RESULTS: Most participants were female (78%) nurses (91%) from Nordic countries (77%), whose main role was in nursing practice (63%), and 71% had more than 11 years' experience ( n=218). Participants who conducted cardiopulmonary resuscitation training once a year or more ( n=154) performed better regarding ventilation volume than those who trained less (859 ml vs. 1111 ml, p=0.002). Those who had cardiopulmonary resuscitation training offered at their workplace ( n=161) also performed better regarding ventilation volume (889 ml vs. 1081 ml, p=0.003) and compression rate per minute (100 vs. 91, p=0.04) than those who had not.

CONCLUSION: Our study indicates a positive association between participants' performance on the practical cardiopulmonary resuscitation test and the frequency of cardiopulmonary resuscitation training and whether cardiopulmonary resuscitation training was offered in the workplace. Large ventilation volumes were the most common error at both measuring points.

Place, publisher, year, edition, pages
Sage Publications, 2018
Keywords
Cardiopulmonary resuscitation, cardiovascular nursing, knowledge, skills, sudden cardiac arrest
National Category
Nursing Cardiac and Cardiovascular Systems
Identifiers
urn:nbn:se:hj:diva-38894 (URN)10.1177/1474515117745298 (DOI)000429799600006 ()29172687 (PubMedID)2-s2.0-85041412792 (Scopus ID)HHJADULTIS (Local ID)HHJADULTIS (Archive number)HHJADULTIS (OAI)
Available from: 2018-02-21 Created: 2018-02-21 Last updated: 2019-03-07Bibliographically approved
Wang, L., Mårtensson, J., Zhao, Y. & Nygårdh, A. (2018). Experiences of a health coaching self-management program in patients with COPD: a qualitative content analysis.. The International Journal of Chronic Obstructive Pulmonary Disease, 13, 1527-1536
Open this publication in new window or tab >>Experiences of a health coaching self-management program in patients with COPD: a qualitative content analysis.
2018 (English)In: The International Journal of Chronic Obstructive Pulmonary Disease, ISSN 1176-9106, E-ISSN 1178-2005, Vol. 13, p. 1527-1536Article in journal (Refereed) Published
Abstract [en]

Purpose: To describe the experiences of patients with COPD participating in a health coaching self-management program.

Patients and methods: Twenty patients who had participated in a 6-month health coaching self-management program intervention were purposefully selected for a qualitative evaluation of the program using semi-structured interviews. The interviews were analyzed using inductive qualitative content analysis.

Results: Four categories and 13 subcategories emerged describing the participants' experiences of the program. Their experiences were expressed as gaining insight into the importance of knowledge and personal responsibilities in the management of COPD, taking action to maintain a healthy lifestyle, feeling supported by the program, and being hindered by individual and program limitations.

Conclusion: Iterative interactions between patients and health care professionals together with the content of the program are described as important to develop skills to manage COPD. However, in future self-management programs more awareness of individual prerequisites should be considered.

Place, publisher, year, edition, pages
Dove Medical Press, 2018
Keywords
chronic obstructive pulmonary disease, health coaching, qualitative content analysis, self-management
National Category
Respiratory Medicine and Allergy Nursing
Identifiers
urn:nbn:se:hj:diva-41081 (URN)10.2147/COPD.S161410 (DOI)000432048200001 ()29785102 (PubMedID)2-s2.0-85047080588 (Scopus ID)HHJADULTIS, HHJIMPROVEIS (Local ID)HHJADULTIS, HHJIMPROVEIS (Archive number)HHJADULTIS, HHJIMPROVEIS (OAI)
Available from: 2018-07-31 Created: 2018-07-31 Last updated: 2019-03-07Bibliographically approved
Jiang, N., Zhao, Y., Jansson, H., Chen, X. & Mårtensson, J. (2018). Experiences of xerostomia after radiotherapy in patients with head and neck cancer: A qualitative study. Journal of Clinical Nursing, 27(1-2), e100-e108
Open this publication in new window or tab >>Experiences of xerostomia after radiotherapy in patients with head and neck cancer: A qualitative study
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2018 (English)In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 27, no 1-2, p. e100-e108Article in journal (Refereed) Published
Abstract [en]

AIMS AND OBJECTIVES: To describe the experiences of radiation-induced xerostomia in patients with head and neck cancer.

BACKGROUND: Xerostomia is the most commonly occurring complication during and following radiotherapy. It can persist for several months or years and can have a significant impact on patients' quality of life.

DESIGN: This was a qualitative descriptive study.

METHODS: Semi-structured interviews were conducted with a sample of 20 participants. Inductive content analysis was used to analyse the qualitative data.

RESULTS: Analysis of the manifest content identified five categories: communication problems, physical problems, psychosocial problems, treatment problems and relief strategies. The latent content was formulated into a theme: due to lack of information from professionals, the patients had to find their own solutions for their problems.

CONCLUSIONS: Xerostomia is not only a biophysical symptom but also has a profound effect on the emotional, intellectual and sociocultural dimensions of life. The majority of patients continued to suffer from xerostomia and its associated symptoms after radiotherapy, in part, because of a lack of professional support, including the inability of nurses to provide oral health care.

RELEVANCE TO CLINICAL PRACTICE: Nurses need to be knowledgeable about the effects of radiotherapy on oral mucosa and about appropriate interventions. The healthcare system requires a symptom management platform for radiation-induced complications, to help patients, their families and healthcare professionals obtain information about self-care, treatments and relief strategies.

Place, publisher, year, edition, pages
John Wiley & Sons, 2018
Keywords
cancer, content analysis, oncology nursing, oral care, qualitative study
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-38615 (URN)10.1111/jocn.13879 (DOI)000418871000019 ()28514511 (PubMedID)2-s2.0-85021822353 (Scopus ID)HHJADULTIS, HHJARNIS (Local ID)HHJADULTIS, HHJARNIS (Archive number)HHJADULTIS, HHJARNIS (OAI)
Available from: 2018-01-19 Created: 2018-01-19 Last updated: 2019-03-07Bibliographically approved
Hjelmfors, L., Sandgren, A., Strömberg, A., Mårtensson, J., Jaarsma, T. & Friedrichsen, M. (2018). “I was told that I would not die from heart failure”: Patient perceptions of prognosis communication. Applied Nursing Research, 41, 41-45
Open this publication in new window or tab >>“I was told that I would not die from heart failure”: Patient perceptions of prognosis communication
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2018 (English)In: Applied Nursing Research, ISSN 0897-1897, E-ISSN 1532-8201, Vol. 41, p. 41-45Article in journal (Refereed) Published
Abstract [en]

Aim and objectives

To describe patients’ experiences of communication about their heart failure prognosis and explore how these experiences affected their preferences for future communication about the prognosis.

Background

Professionals need to discuss about the heart failure prognosis with patients in order to improve their understanding of their illness and address palliative care needs.

Methods

An inductive and exploratory design was used. A total of 24 patients (75% men, 52–87 years of age) in New York Heart Association class I-III from primary outpatient care participated in focus group-, or individual semi-structured interviews. Thematic analysis was used to identify and interpret patterns in the data.

Findings

Two overarching themes, “The message sent” and “Hoping for the best or preparing for the worst”, each with three sub-themes, were discovered during the thematic analysis. Many patients described that professionals had not provided them with any prognosis information at all. Other patients described professional information about prognosis that was given in an either very optimistic or very negative way. However, patients also described situations where professionals had given information in a way that they thought was perfect for them to handle, and in accordance with their preferences.

Conclusion

This study shows that patients have different experiences and preferences for communication about prognosis and uses different approaches in order to cope living with a chronic illness such as heart failure. 

Place, publisher, year, edition, pages
Elsevier, 2018
Keywords
Communication, Coping, Heart failure, Palliative care, Prognosis
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-40948 (URN)10.1016/j.apnr.2018.03.007 (DOI)000435427100008 ()29853212 (PubMedID)2-s2.0-85044112095 (Scopus ID)
Funder
Swedish Heart Lung Foundation, 20110417
Available from: 2018-07-05 Created: 2018-07-05 Last updated: 2019-03-07Bibliographically approved
Tingsvik, C., Hammarskjöld, F., Mårtensson, J. & Henricson, M. (2018). Patients' lived experience of intensive care when being on mechanical ventilation during the weaning process: A hermeneutic phenomenological study.. Intensive & Critical Care Nursing, 47, 46-53
Open this publication in new window or tab >>Patients' lived experience of intensive care when being on mechanical ventilation during the weaning process: A hermeneutic phenomenological study.
2018 (English)In: Intensive & Critical Care Nursing, ISSN 0964-3397, E-ISSN 1532-4036, Vol. 47, p. 46-53Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: The medical and nursing care of the patient on mechanical ventilation has developed and proceeds in terms of ventilator functions, sedation strategies and patient participation. New data are needed to explore the weaning process from the patients' perspective. Therefore, the aim of this study was to explore the meaning of being a patient on mechanical ventilation during the weaning process in the intensive care unit.

METHODS: This study used van Manen's hermeneutic phenomenological approach. Interviews were conducted, including twenty former intensive care patients from three different hospitals in Sweden.

FINDINGS: Five themes emerged including thirteen related themes; Maintaining human dignity, Accepting the situation, Enduring the difficulties, Inadequate interaction and A sense of unreality. The experiences differed from each other and varied over time, and the same patient expressed both pleasant and unpleasant experiences. Weaning was not a separate experience but intertwined with that of being on mechanical ventilation in the intensive care unit.

CONCLUSIONS: The patient's experiences differ and vary over time, with the same patient expressing various experiences. The favourable experiences were more clearly described, compared to previous research, this might depend on factors related to communication, participation and proximity to healthcare professionals and next-of-kin.

Place, publisher, year, edition, pages
Elsevier, 2018
Keywords
Hermeneutic phenomenology, Intensive care, Mechanical ventilation, Nursing, Patients, Weaning
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-41003 (URN)10.1016/j.iccn.2018.03.004 (DOI)000436619800008 ()29628332 (PubMedID)2-s2.0-85044926036 (Scopus ID)
Available from: 2018-07-18 Created: 2018-07-18 Last updated: 2019-03-07Bibliographically approved
Lin, C.-Y., Pakpour, A. H., Broström, A., Fridlund, B., Årestedt, K., Strömberg, A., . . . Mårtensson, J. (2018). Psychometric Properties of the 9-item European Heart Failure Self-care Behavior Scale Using Confirmatory Factor Analysis and Rasch Analysis Among Iranian Patients.. Journal of Cardiovascular Nursing, 33(3), 281-288
Open this publication in new window or tab >>Psychometric Properties of the 9-item European Heart Failure Self-care Behavior Scale Using Confirmatory Factor Analysis and Rasch Analysis Among Iranian Patients.
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2018 (English)In: Journal of Cardiovascular Nursing, ISSN 0889-4655, E-ISSN 1550-5049, Vol. 33, no 3, p. 281-288Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: The 9-item European Heart Failure Self-Care Behavior scale (EHFScB-9) is a self-reported questionnaire commonly used to capture the self-care behavior of people with heart failure (HF).

OBJECTIVE: The aim of this study was to investigate the EHFScB-9's factorial structure and categorical functioning of the response scale and differential item functioning (DIF) across subpopulations in Iran.

METHODS: Patients with HF (n = 380; 60.5% male; mean [SD] age, 61.7 [9.1] years) participated in this study. The median (interquartile range) of the duration of their HF was 6.0 (2.4-8.8) months. Most of the participants were in New York Heart Association classification II (NYHA II, 61.8%); few of them had left ventricular ejection fraction assessment (11.3%). All participants completed the EHFScB-9. Confirmatory factor analysis was used to test the factorial structure of the EHFScB-9; Rasch analysis was used to analyze categorical functioning and DIF items across 2 characteristics (gender and NYHA).

RESULTS: The 2-factor structure ("adherence to regimen" and "consulting behavior") of the EHFScB-9 was confirmed, and the unidimensionality of each factor was found. Categorical functioning was supported for all items. No items displayed substantial DIF across gender (DIF contrast, -0.25-0.31). Except for item 3 ("Contact doctor or nurse if legs/feet are swollen"; DIF contrast, -0.69), no items displayed substantial DIF across NYHA classes (DIF contrast, -0.40 to 0.47).

CONCLUSIONS: Despite the DIF displayed in 1 item across the NYHA classes, the EHFScB-9 demonstrated sound psychometric properties in patients with HF.

Place, publisher, year, edition, pages
Lippincott Williams & Wilkins, 2018
Keywords
confirmatory factor analysis, heart failure, Rasch, self-care behavior scale
National Category
Nursing Cardiac and Cardiovascular Systems
Identifiers
urn:nbn:se:hj:diva-39222 (URN)10.1097/JCN.0000000000000444 (DOI)000440243400021 ()28858887 (PubMedID)2-s2.0-85045200162 (Scopus ID)HHJADULTIS (Local ID)HHJADULTIS (Archive number)HHJADULTIS (OAI)
Available from: 2018-04-25 Created: 2018-04-25 Last updated: 2019-03-07Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0002-7406-8732

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