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Algurén, B., Coenen, M., Malm, D., Fridlund, B., Mårtensson, J. & Årestedt, K. (2020). A scoping review and mapping exercise comparing the content of patient-reported outcome measures (PROMs) across heart disease-specific scales. Journal of Patient-Reported Outcomes, 4(1), Article ID 7.
Open this publication in new window or tab >>A scoping review and mapping exercise comparing the content of patient-reported outcome measures (PROMs) across heart disease-specific scales
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2020 (English)In: Journal of Patient-Reported Outcomes, ISSN 2509-8020, Vol. 4, no 1, article id 7Article, review/survey (Refereed) Published
Abstract [en]

BACKGROUND: Over the past decade, the importance of person-centered care has led to increased interest in patient-reported outcome measures (PROMs). In cardiovascular care, selecting an appropriate PROM for clinical use or research is challenging because multimorbidity is often common in patients. The aim was therefore to provide an overview of heart-disease specific PROMs and to compare the content of those outcomes using a bio-psycho-social framework of health.

METHODS: A scoping review of heart disease-specific PROMs, including arrhythmia/atrial fibrillation, congenital heart disease, heart failure, ischemic heart disease, and valve diseases was conducted in PubMed (January 2018). All items contained in the disease-specific PROMs were mapped to WHO's International Classification of Functioning, Disability and Health (ICF) according to standardized linking rules.

RESULTS: A total of 34 PROMs (heart diseases in general n = 5; cardiac arrhythmia n = 6; heart failure n = 14; ischemic heart disease n = 9) and 147 ICF categories were identified. ICF categories covered Body functions (n = 61), Activities & Participation (n = 69), and Environmental factors (n = 17). Most items were about experienced problems of Body functions and less often about patients' daily activities, and most PROMs were specifically developed for heart failure and no PROM were identified for valve disease or congenital heart disease.

CONCLUSIONS: Our results motivate and provide information to develop comprehensive PROMs that consider activity and participation by patients with various types of heart disease.

Place, publisher, year, edition, pages
Springer, 2020
Keywords
Healthcare quality, Patient outcome assessment, Heart disease, International Classification of Functioning, Disability and Health, Patient-reported outcome measures, Person-centered, Review
National Category
Cardiac and Cardiovascular Systems Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
urn:nbn:se:hj:diva-47543 (URN)10.1186/s41687-019-0165-7 (DOI)31974688 (PubMedID)2-s2.0-85078179151 (Scopus ID)GOA HHJ 2020;HHJADULTIS,HHJIMPROVEIS (Local ID)GOA HHJ 2020;HHJADULTIS,HHJIMPROVEIS (Archive number)GOA HHJ 2020;HHJADULTIS,HHJIMPROVEIS (OAI)
Note

On behalf of the Collaboration and Exchange in Swedish cardiovascular caring Academic Research (CESAR) group.

Available from: 2020-01-27 Created: 2020-01-27 Last updated: 2020-02-04Bibliographically approved
Vellone, E., Chialà, O., Boyne, J., Klompstra, L., Evangelista, L. S., Back, M., . . . Jaarsma, T. (2019). Cognitive impairment in patients with heart failure: an international study. ESC Heart Failure
Open this publication in new window or tab >>Cognitive impairment in patients with heart failure: an international study
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2019 (English)In: ESC Heart Failure, E-ISSN 2055-5822Article in journal (Refereed) Epub ahead of print
Abstract [en]

Aims: Cognitive impairment (CI) in heart failure (HF) patients has mostly been studied in single countries in specific health care settings. Sociodemographic and clinical predictors of the global CI and CI dimensions are still unclear. We described CI in a diverse HF population recruited in several countries and in different health care settings and investigated sociodemographic and clinical factors associated with the global and specific CI dimensions in HF patients.

Methods and results: A secondary analysis from the baseline data of the Wii-HF trial. Patients (n = 605) were enrolled in Sweden, Italy, Israel, The Netherlands, Germany, and the United States. We used the Montreal Cognitive Assessment to evaluate CI and the 6 minute walk test (6MWT) to measure exercise capacity. Patients were on average 67 years old (SD, 12), and 86% were in New York Heart Association Class II and III. The mean Montreal Cognitive Assessment score was 24 (SD, 4), and 67% of patients had at least a mild CI. The item evaluating short-term memory had a considerable proportion of low scoring patients (28.1%). Worse CI was associated with patients' older age, lower education, and lower 6MWT scores (R2 = 0.27). CI dimension scores were differently associated with specific clinical and demographic variables, but the 6MWT scores were associated with five out of seven CI dimension scores.

Conclusions: CI is an important problem in HF patients, with specific challenges in regard to memory. Exercise capacity is a modifiable factor that could be improved in HF patients with the potential to improve cognition and other outcomes in this population.

Place, publisher, year, edition, pages
John Wiley & Sons, 2019
Keywords
Cognitive impairment, Exercise capacity, Heart failure
National Category
Cardiac and Cardiovascular Systems
Identifiers
urn:nbn:se:hj:diva-47225 (URN)10.1002/ehf2.12542 (DOI)000503196400001 ()31854133 (PubMedID)2-s2.0-85076880136 (Scopus ID);HHJADULTIS (Local ID);HHJADULTIS (Archive number);HHJADULTIS (OAI)
Funder
Swedish Research Council, K2013-69X-22302-01-3; 2016-01390Forte, Swedish Research Council for Health, Working Life and Welfare, 2014-4100Swedish Heart Lung Foundation, E085/12; 20130340; 20160439Vårdal Foundation, 2014-0018Medical Research Council of Southeast Sweden (FORSS), FORSS 474681
Available from: 2020-01-03 Created: 2020-01-03 Last updated: 2020-01-03
Björklund, M., Fridlund, B. & Mårtensson, J. (2019). Experiences of psychological flow as described by people diagnosed with and treated for head and neck cancer. European Journal of Oncology Nursing, 43, Article ID 101671.
Open this publication in new window or tab >>Experiences of psychological flow as described by people diagnosed with and treated for head and neck cancer
2019 (English)In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 43, article id 101671Article in journal (Refereed) Published
Abstract [en]

PURPOSE: To describe flow as experienced by people diagnosed with and treated for head and neck cancer.

METHOD: A descriptive design based on a deductive qualitative content analysis was used to explain Csikszentmihalyi's flow theory from the perspective of people living with head and neck cancer. Interviews were conducted with seven participants diagnosed with and treated for different forms and stages of head and neck cancer.

RESULTS: Experiences of flow were associated with people's interests, skill levels and actions involving and creating both happiness and the feeling of something worth living for. Optimal flow was a state of consciousness in which mind and body work together, and the people were completely absorbed in an activity related to nature, hobbies or family. Microflow occurred as part of everyday life, relieving stress and anxiety and helping them to focus on their daily routines. This included humming, listening to the radio or watching TV.

CONCLUSIONS: The people's inner strength and desire to feel better made flow possible, and they used unknown skills that enhanced self-satisfaction. Managing self-care activities increased feelings of control, participation and enjoyment. This calls for person-centred care with a salutogenic approach based on the people's own interests, skill levels and actions; what makes the person feel happy.

Place, publisher, year, edition, pages
Elsevier, 2019
Keywords
Empowerment, Flow theory, Happiness, Head and neck cancer, Life experiences, Person-centred care, Qualitative content analysis, Salutogenic approach
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-46677 (URN)10.1016/j.ejon.2019.09.012 (DOI)000505109300009 ()31622871 (PubMedID)2-s2.0-85073105785 (Scopus ID)PP HHJ 2019 embargo 12 (Local ID)PP HHJ 2019 embargo 12 (Archive number)PP HHJ 2019 embargo 12 (OAI)
Note

PP-check HHJ 2019 embargo 12 / PP-klar HHJ 2019 / EE

Available from: 2019-10-24 Created: 2019-10-24 Last updated: 2020-01-16Bibliographically approved
Wu, E., Broström, A. & Mårtensson, J. (2019). Experiences of Undergoing Enhanced External Counterpulsation in Patients With Refractory Angina Pectoris: A Qualitative Study. Journal of Cardiovascular Nursing, 34(2), 147-158
Open this publication in new window or tab >>Experiences of Undergoing Enhanced External Counterpulsation in Patients With Refractory Angina Pectoris: A Qualitative Study
2019 (English)In: Journal of Cardiovascular Nursing, ISSN 0889-4655, E-ISSN 1550-5049, Vol. 34, no 2, p. 147-158Article in journal (Refereed) Published
Abstract [en]

BACKGROUND:

Enhanced external counterpulsation (EECP) is a noninvasive treatment recommended for patients with refractory angina pectoris (RAP), which generally includes 35 one-hour sessions over 7 weeks. No study has described how patients experience the time before, during, and between sessions, as well as the time after EECP treatment.

OBJECTIVE:

The aim of this study was to describe how patients with RAP experience EECP treatment.

METHODS:

Semistructured interviews took place with 15 strategically selected patients (11 men, 58-91 years old) who had finished 7 weeks of EECP at the 2 existing EECP clinics in Sweden. Data were analyzed using inductive qualitative content analysis.

RESULTS:

The results were divided into 4 content areas, each comprising 3 categories: (1) experiences before EECP was initiated comprised uncharted territory, being given a new opportunity, and gain insight; (2) experiences during EECP sessions comprised physical discomfort, need of distraction, and sense of security; (3) experiences between EECP sessions comprised physical changes, socializing, and coordinating everyday life; and (4) experiences after 1 course of EECP treatment comprised improved physical well-being, improved mental well-being, and maintaining angina in check.

CONCLUSIONS:

Enhanced external counterpulsation was perceived as an unknown treatment option among these patients with RAP. Nurses should emphasize education before and during treatment based on individualized care needs to improve knowledge and treatment experience, as well as prevent discomfort. There is a great need to increase the awareness of EECP among healthcare professionals because it can improve the life situation for patients with RAP.

Place, publisher, year, edition, pages
Lippincott Williams & Wilkins, 2019
Keywords
alternative therapies, angina pectoris, coronary artery disease, qualitative research
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-46430 (URN)10.1097/JCN.0000000000000530 (DOI)000480798800021 ()30273260 (PubMedID)2-s2.0-85061249170 (Scopus ID)
Available from: 2019-10-03 Created: 2019-10-03 Last updated: 2019-10-03Bibliographically approved
Lu, Q., Mårtensson, J., Zhao, Y. & Johansson, L. (2019). Living on the edge: Family caregivers’ experiences of caring for post-stroke family members in China: A qualitative study. International Journal of Nursing Studies, 94, 1-8
Open this publication in new window or tab >>Living on the edge: Family caregivers’ experiences of caring for post-stroke family members in China: A qualitative study
2019 (English)In: International Journal of Nursing Studies, ISSN 0020-7489, E-ISSN 1873-491X, Vol. 94, p. 1-8Article in journal (Refereed) Published
Abstract [en]

Background: Globally, one-third of the 15 million people with stroke suffer permanent physical, cognitive, and emotional impairment. Because of traditional Chinese culture and the limited development of the primary healthcare system, most stroke survivors are cared for and live with their family after hospital discharge. However, previous literature shows a lack of qualitative studies on family caregivers’ experience of caring for their relatives in China.

Objectives: The aim of this study was to explore the experience of family caregivers taking care of stroke survivors in China.

Methods: An explorative design was used wherein qualitative semi-structured interviews were conducted with family caregivers in China. Family caregivers were selected from one city and three communities using a purposive sampling method until no new data were generated (n = 26). A thematic analysis was used for the data analysis in this study.

Findings: Family caregivers’ experience was described as living on the edge, which pulled their lives in multiple directions, created an unstable situation, and reduced their well-being and health. The participants believed they had total responsibility and felt that this was expected from both themselves and society. Little external understanding and insufficient support was emphasised, resulting in the caregivers feeling all alone, drained by caring, and like prisoners in their own lives. The family caregivers had to face all of the family events and make all of the decisions by themselves. They expressed love for their family members with stroke, but this was often overshadowed by feelings of sadness, depression, sensitivity, and anger. This resulted in an inability to see how things could improve and in the family caregivers being uncertain about the future.

Conclusion: All of these findings increased understanding and added knowledge of this topic that has been seldom studied in China. Healthcare authorities and professionals should recognise and understand the lives and situations of family caregivers since their relatives had a stroke to further identify their difficulties and needs. Appropriate and effective support, both from government and society, should be planned and implemented for family caregivers to relieve them from caring for their relatives with stroke and maintaining the quality of their own lives.

Place, publisher, year, edition, pages
Elsevier, 2019
Keywords
China, Experience, Family caregiver, Interview, Qualitative research, Stroke
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-43453 (URN)10.1016/j.ijnurstu.2019.02.016 (DOI)000473120700003 ()30928717 (PubMedID)2-s2.0-85063428035 (Scopus ID);HHJADULTIS (Local ID);HHJADULTIS (Archive number);HHJADULTIS (OAI)
Available from: 2019-04-11 Created: 2019-04-11 Last updated: 2020-01-21Bibliographically approved
Wu, E., Desta, L., Broström, A. & Mårtensson, J. (2019). Long-term effects of enhanced external counterpulsation treatment on symptom burden, usage of nitrates, physical capacity and health-related quality of life in patients with refractory angina pectoris. European Heart Journal, 40(1), 1634-1634
Open this publication in new window or tab >>Long-term effects of enhanced external counterpulsation treatment on symptom burden, usage of nitrates, physical capacity and health-related quality of life in patients with refractory angina pectoris
2019 (English)In: European Heart Journal, ISSN 0195-668X, E-ISSN 1522-9645, Vol. 40, no 1, p. 1634-1634Article in journal, Meeting abstract (Refereed) Published
Abstract [en]

Background

Patients with refractory angina pectoris (RAP) suffer from debilitating symptoms with considerable limitation of functional capacity and impaired health-related quality of life (HRQoL) despite optimized medical therapy. Recurrent angina symptoms are strongly associated with psychological distress and cardiac anxiety (i.e., a subtype of anxiety related to cardiac sensations). Enhanced external counterpulsation (EECP) is an alternative non-invasive treatment for these patients. An EECP course includes 35 1-hour sessions over 7 weeks. No previous study has explored long-term EECP effects on cardiac anxiety in patients with RAP.

Objective

To evaluate the effects of EECP treatment in patients with RAP regarding usage of nitrates, physical capacity, cardiac anxiety and HRQoL.

Methods

A quasi experimental design with long-term follow-up (6 months) involving 50 patients (men=37, 47–91 years) who had finished one course of EECP. Assessment of average use of nitrates, six-minute walk test, functional class with Canadian Cardiovascular Society (CCS) classification and questionnaires for cardiac anxiety and HRQoL were collected pre and post treatment. In addition, the questionnaires were collected 6 months after completion of EECP.

Results

Patients used significantly less nitrates (p<0.001) compared to at the start of treatment. They enhanced the walking distance on average by 46 m after EECP (p<0.001) and CCS class also improved (p<0.001). All subscales except for one in cardiac anxiety were significantly reduced (p<0.05). All dimensions in HRQoL improved significantly (p<0.01). The positive effects in both cardiac anxiety and HRQoL were maintained 6 months after the treatment.

Conclusions

Patients with RAP received beneficial effects from EECP. Reduced symptom burden and improved physical capacity enable engagement in physical activities. Furthermore, less cardiac anxiety and improved HRQoL may enhance life satisfaction for these patients. EECP treatment should be considered to a greater extent to improve the life situation for these patients.

Place, publisher, year, edition, pages
Oxford University Press, 2019
Keywords
Coronary Artery Disease, Non-pharmacological Treatment
National Category
Cardiac and Cardiovascular Systems
Identifiers
urn:nbn:se:hj:diva-47757 (URN)10.1093/eurheartj/ehz748.1000 (DOI)000507313001506 ()
Note

Congress of the European-Society-of-Cardiology (ESC) / World Congress of Cardiology, Paris, FRANCE, AUG 31-SEP 04, 2019

Available from: 2020-02-17 Created: 2020-02-17 Last updated: 2020-02-17Bibliographically approved
Klompstra, L., Johansson Östbring, M., Jaarsma, T., Ågren, S., Fridlund, B., Hjelm, C., . . . Strömberg, A. (2019). The appropriateness and presentation of commonly available cardiovascular web pages providing information about cardiovascular diseases. Computers, Informatics, Nursing, 37(10), 493-497
Open this publication in new window or tab >>The appropriateness and presentation of commonly available cardiovascular web pages providing information about cardiovascular diseases
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2019 (English)In: Computers, Informatics, Nursing, ISSN 1538-2931, E-ISSN 1538-9774, Vol. 37, no 10, p. 493-497Article in journal (Refereed) Published
Place, publisher, year, edition, pages
Wolters Kluwer, 2019
National Category
Information Systems Nursing
Identifiers
urn:nbn:se:hj:diva-47430 (URN)10.1097/CIN.0000000000000595 (DOI)000505544100001 ()31633511 (PubMedID)2-s2.0-85073605939 (Scopus ID);HHJADULTIS (Local ID);HHJADULTIS (Archive number);HHJADULTIS (OAI)
Available from: 2020-01-16 Created: 2020-01-16 Last updated: 2020-01-16Bibliographically approved
Lindmark, U., Bülow, P. H., Mårtensson, J., Rönning, H., Ahlstrand, I., Broström, A., . . . Sandgren, A. (2019). The use of the concept of transition in different disciplines within health and social welfare: An integrative literature review. Nursing Open, 6(3), 664-675
Open this publication in new window or tab >>The use of the concept of transition in different disciplines within health and social welfare: An integrative literature review
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2019 (English)In: Nursing Open, E-ISSN 2054-1058, Vol. 6, no 3, p. 664-675Article, review/survey (Refereed) Published
Abstract [en]

Aims

To continuing the quest of the concept of transition in nursing research and to explore how the concept of transition is used in occupational therapy, oral health and social work as well as in interdisciplinary studies in health and welfare, between 2003–2013.

Design

An integrative literature review.

Methods

PubMed, CINAHL, PsycINFO, DOSS, SocIndex, Social Science Citation Index and AMED databases from 2003–2013 were used. Identification of 350 articles including the concept of transition in relation to disciplines included. Assessment of articles are in accordance to Meleis' typologies of transition by experts in each discipline. Chosen key factors were entered into Statistical Package for the Social Sciences (SPSS).

Results

Meleis' four typologies were found in all studied disciplines, except development in oral health. The health‐illness type was the most commonly explored, whereas in social work and in occupation therapy, situational transitions dominated.

Place, publisher, year, edition, pages
John Wiley & Sons, 2019
Keywords
literature review, nursing theory, occupational therapy, oral health, social welfare, social work, theory–practice gap, transition
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-43307 (URN)10.1002/nop2.249 (DOI)000476917700002 ()31367388 (PubMedID)2-s2.0-85069778425 (Scopus ID)GOA HHJ 2019 (Local ID)GOA HHJ 2019 (Archive number)GOA HHJ 2019 (OAI)
Available from: 2019-03-07 Created: 2019-03-07 Last updated: 2019-09-13Bibliographically approved
Iversen, E., Kolltveit, B.-C. H., Hernar, I., Mårtensson, J. & Haugstvedt, A. (2019). Transition from paediatric to adult care: a qualitative study of the experiences of young adults with type 1 diabetes.. Scandinavian Journal of Caring Sciences, 33(3), 723-730
Open this publication in new window or tab >>Transition from paediatric to adult care: a qualitative study of the experiences of young adults with type 1 diabetes.
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2019 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 33, no 3, p. 723-730Article in journal (Refereed) Published
Abstract [en]

AIM: The aim of the present study was to explore how young adults with type 1 diabetes (T1D) experienced the transition from paediatric to adult health care services.

DESIGN: A qualitative, explorative design was used.

METHODS: Eleven young adults with T1D receiving adult diabetes care at a hospital in western Norway participated in semi-structured interviews. Data were analysed using Interpretive Description, an inductive approach inspired by grounded theory, ethnography and phenomenology, and specifically designed to explore phenomena in clinical practice aiming to generate new knowledge and skills.

RESULTS: Four main themes regarding the adolescents' experiences of the transfer from paediatric to adult care emerged: (i) limited information about the transition; (ii) transition from frequent, thorough and personal follow-up to a less comprehensive and less personal follow-up; (iii) the importance of being seen as a whole person; (iv) limited expectations of how the health care services were organised.

CONCLUSIONS: The study showed that the existing routines for transfer between paediatric and adult care are not optimal. The participants expressed that they were not prepared for the dissimilarities in follow-up and were predominantly less pleased with the adult care follow-up.

RELEVANCE TO CLINICAL PRACTICE: The findings support a need for structured transition programmes, that is programmes that contribute to young adults with T1D receiving a safe and positive transition at an otherwise demanding life phase. Young peoples' individual needs for the transition to and follow-up in adult care may be promoted by an approach based on person-centred care.

Place, publisher, year, edition, pages
John Wiley & Sons, 2019
Keywords
adolescents, transition to adult care, type 1 diabetes, young adults
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-43405 (URN)10.1111/scs.12668 (DOI)000486090000022 ()30866071 (PubMedID)2-s2.0-85062978847 (Scopus ID);HHJADULTIS (Local ID);HHJADULTIS (Archive number);HHJADULTIS (OAI)
Available from: 2019-04-02 Created: 2019-04-02 Last updated: 2019-10-10Bibliographically approved
Lin, C.-Y., Broström, A., Årestedt, K., Mårtensson, J., Steinke, E. E. & Pakpour, A. H. (2019). Using extended theory of planned behavior to determine factors associated with help-seeking behavior of sexual problems in women with heart failure: a longitudinal study. Journal of Psychosomatic Obstetrics and Gynaecology, 1-8
Open this publication in new window or tab >>Using extended theory of planned behavior to determine factors associated with help-seeking behavior of sexual problems in women with heart failure: a longitudinal study
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2019 (English)In: Journal of Psychosomatic Obstetrics and Gynaecology, ISSN 0167-482X, E-ISSN 1743-8942, p. 1-8Article in journal (Refereed) Epub ahead of print
Abstract [en]

INTRODUCTION: This study used extended theory of planned behavior (extended TPB) to understand the underlying factors related to help-seeking behavior for sexual problems among Iranian women with heart failure (HF).

METHODS: We recruited 758 women (mean age = 61.21 ± 8.92) with HF at three university-affiliated heart centers in Iran. Attitude, subjective norms, perceived behavioral control, behavioral intention, self-stigma of seeking help, perceived barriers, frequency of planning, help-seeking behavior, and sexual function were assessed at baseline. Sexual function was assessed again after 18 months. Structural equation modeling was used to explain change in sexual functioning after 18 months.

RESULTS: Attitude and perceived behavioral control were positively correlated to behavioral intention. Behavioral intention was negatively and self-stigma in seeking help was positively correlated to perceived barriers. Behavioral intention was positively and self-stigma in seeking help was negatively correlated to frequency of planning. Perceived behavioral control, behavior intention, and frequency of planning were positively and self-stigma in seeking help and perceived barriers were negatively correlated to help-seeking behavior. Help-seeking behavior was positive correlated to the change of FSFI latent score.

CONCLUSIONS: The extended TPB could be used by healthcare professionals to design an appropriate program to treat sexual dysfunction in women with HF.

Place, publisher, year, edition, pages
Taylor & Francis, 2019
Keywords
Extended theory of planned behavior, heart failure, help-seeking, sexual function, women
National Category
Cardiac and Cardiovascular Systems
Identifiers
urn:nbn:se:hj:diva-43368 (URN)10.1080/0167482X.2019.1572743 (DOI)30829094 (PubMedID)2-s2.0-85062442921 (Scopus ID);HHJADULTIS (Local ID);HHJADULTIS (Archive number);HHJADULTIS (OAI)
Available from: 2019-03-21 Created: 2019-03-21 Last updated: 2019-03-21
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0002-7406-8732

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