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Hellström, A., Hagell, P., Broström, A., Ulander, M., Luik, A. I., Espie, C. A. & Årestedt, K. (2019). A classical test theory evaluation of the Sleep Condition Indicator accounting for the ordinal nature of item response data. PLoS ONE, 14(3), 1-13, Article ID e0213533.
Open this publication in new window or tab >>A classical test theory evaluation of the Sleep Condition Indicator accounting for the ordinal nature of item response data
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2019 (English)In: PLoS ONE, ISSN 1932-6203, E-ISSN 1932-6203, Vol. 14, no 3, p. 1-13, article id e0213533Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Insomnia symptoms are common among young adults and affect about 5% to 26% of 19 to 34-year-olds. In addition, insomnia is associated with poor mental health and may affect daily performance. In research, as well as in clinical practice, sleep questionnaires are used to screen for and diagnose insomnia. However, most questionnaires are not developed according to current DSM-5 diagnostic criteria. An exception is the recently developed Sleep Condition Indicator (SCI), an eight-item scale screening for insomnia.

AIM: The aim of this study was to perform a Classical Test Theory (CTT) based psychometric evaluation of the SCI in a sample of Swedish university students, by taking the ordinal nature of item level data into account.

METHODS: The SCI was translated into Swedish and distributed online to undergraduate students at three Swedish universities, within programs of health, psychology, science or economy. Of 3673 invited students, 634 (mean age 26.9 years; SD = 7.4) completed the questionnaire that, in addition to the SCI, comprised other scales on sleep, stress, lifestyle and students' study environment. Data were analyzed according to CTT investigating data completeness, item homogeneity and unidimensionality.

RESULTS: Polychoric based explorative factor analysis suggested unidimensionality of the SCI, and internal consistency was good (Cronbach's alpha, 0.91; ordinal alpha, 0.94). SCI scores correlated with the Insomnia Severity Index (-0.88) as well as with sleep quality (-0.85) and perceived stress (-0.50), supporting external construct validity.

CONCLUSIONS: These observations support the integrity of the of the SCI. The SCI demonstrates sound CTT-based psychometric properties, supporting its use as an insomnia screening tool.

Place, publisher, year, edition, pages
Public Library of Science, 2019
National Category
Psychology Neurology
Identifiers
urn:nbn:se:hj:diva-43397 (URN)10.1371/journal.pone.0213533 (DOI)000461166300038 ()30870454 (PubMedID)2-s2.0-85062951355 (Scopus ID)GOA HHJ 2019;HHJADULTIS (Local ID)GOA HHJ 2019;HHJADULTIS (Archive number)GOA HHJ 2019;HHJADULTIS (OAI)
Available from: 2019-03-29 Created: 2019-03-29 Last updated: 2019-03-29Bibliographically approved
Saffari, M., Lin, C.-Y., Koenig, H. G., O’Garo, K.-G. N., Broström, A. & Pakpour, A. H. (2019). A Persian version of the Affiliate Stigma Scale in caregivers of people with dementia. Health Promotion Perspectives, 9(1), 31-39
Open this publication in new window or tab >>A Persian version of the Affiliate Stigma Scale in caregivers of people with dementia
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2019 (English)In: Health Promotion Perspectives, ISSN 2228-6497, Vol. 9, no 1, p. 31-39Article in journal (Refereed) Published
Abstract [en]

Background:

Dementia is prevalent among older adults and frequently causes dependence on family caregivers. Caregivers may experience a form of stigmatization called affiliate stigma that negatively affects their mental health. The current study sought to establish the psychometric properties of a tool to measure affiliate stigma among Iranian caregivers.

Methods:

Overall, 541 caregivers of older people with dementia were included in this cross-sectional study. Several measures were used to assess the psychometric properties of the Affiliate Stigma Scale (ASS) including the Zarit Burden Interview (ZBI), Hospital Anxiety and Depression Scale (HADS), Short Form 12 (SF-12), Rosenberg Self-Esteem Scale (RSES), and Multidimensional Scale of Perceived Social Support (MSPSS). Convergent and discriminate validity were examined. Exploratory and confirmatory factor analyses were utilized to assess the factor structure of the ASS and a Rasch model was used to evaluate the measurement functioning of the scale.

Results:

Factor loadings ranged from 0.69 to 0.83 and test-retest reliability from 0.72 to 0.89. Item difficulty ranged widely from -0.66 to 0.89. No considerable differential item functioning (DIF) was found across gender. Confirmatory factor analysis confirmed the three cognitive, affective, and behavioral dimensions of the scale (comparative fit index [CFI]=0.931 to 0.995, root mean square error of approximation [RMSEA]=0.046 to 0.068). Internal consistency was acceptable (Cronbach’s alpha: 0.88 to 0.94). Significant and positive relationships were found between affiliate stigma and depression, anxiety, and caregiving burden (beta = 0.35 to 0.46).

Conclusion:

The ASS is a psychometrically valid measure for assessing affiliate stigma in Iranian caregivers of people with dementia. Application of this tool among other caregivers, languages and cultures deserves further study.

Place, publisher, year, edition, pages
Tabriz University of Medical Sciences, 2019
Keywords
Stigma, Family caregivers, Dementia, Psychometrics
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-43112 (URN)10.15171/hpp.2019.04 (DOI)000456575000004 ()POA HHJ;HHJADULTIS (Local ID)POA HHJ;HHJADULTIS (Archive number)POA HHJ;HHJADULTIS (OAI)
Available from: 2019-02-20 Created: 2019-02-20 Last updated: 2019-02-20Bibliographically approved
Strand, M., Broström, A. & Haugstvedt, A. (2019). Adolescents' perceptions of the transition process from parental management to self-management of type 1 diabetes.. Scandinavian Journal of Caring Sciences, 33(1), 128-135
Open this publication in new window or tab >>Adolescents' perceptions of the transition process from parental management to self-management of type 1 diabetes.
2019 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 33, no 1, p. 128-135Article in journal (Refereed) Published
Abstract [en]

AIM: The aim of this study was to describe how adolescents perceive the transition from being dependent on their parents to managing their own type 1 diabetes.

DESIGN: An explorative design with a phenomenographic approach was used.

METHODS: Semistructured interviews took place during 2016-2017 with 18 strategically sampled adolescents (7 boys and 11 girls, aged 16-18 years) with type 1 diabetes from five Norwegian paediatric diabetes centres.

FINDINGS: Three descriptive categories, each comprising three perceptions, emerged: (1) Taking responsibility for own diabetes is a process comprised 'It is natural to take over responsibility for own diabetes', 'Expectations from parents and healthcare personnel', and 'The adolescents want more independence'. (2) Taking responsibility for own diabetes was dependent on coping comprised 'Feeling proud to handle their own diabetes', 'The transition is like a roller coaster', and 'Taking responsibility means that it is your fault if you make mistakes'. (3) It is demanding to take responsibility for own diabetes comprised 'Taking responsibility for own diabetes requires knowledge and skills', 'It is time-consuming to take responsibility for own diabetes', and 'Having responsibility for own diabetes is like being examined every day'.

CONCLUSIONS: Adolescents want to take over the responsibility for their diabetes treatment from their parents, but they need knowledge, experience and skills to succeed. Parents, friends and health professionals are important supporters during the transition.

RELEVANCE TO CLINICAL PRACTICE: Health professionals need to know their patients to identify the adolescents' need for support. Self-care is considered essential in the management of diabetes. Education sessions are an important part of the transition to control own diabetes. Such education should also include parents and friends.

Place, publisher, year, edition, pages
John Wiley & Sons, 2019
Keywords
adolescents, interviews, phenomenographic approach, qualitative method, transition, type 1 diabetes
National Category
Endocrinology and Diabetes
Identifiers
urn:nbn:se:hj:diva-41572 (URN)10.1111/scs.12611 (DOI)000462154100013 ()30152532 (PubMedID)2-s2.0-85053204767 (Scopus ID)HHJADULTIS (Local ID)HHJADULTIS (Archive number)HHJADULTIS (OAI)
Available from: 2018-09-25 Created: 2018-09-25 Last updated: 2019-04-11Bibliographically approved
Lin, C.-Y., Imani, V., Broström, A., Årestedt, K., Pakpour, A. H. & Griffiths, M. D. (2019). Evaluating the Psychometric Properties of the 7-Item Persian Game Addiction Scale for Iranian Adolescents.. Frontiers in Psychology, 10, Article ID 149.
Open this publication in new window or tab >>Evaluating the Psychometric Properties of the 7-Item Persian Game Addiction Scale for Iranian Adolescents.
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2019 (English)In: Frontiers in Psychology, ISSN 1664-1078, E-ISSN 1664-1078, Vol. 10, article id 149Article in journal (Refereed) Published
Abstract [en]

The 7-item Gaming Addiction Scale (GAS) is a brief instrument based on DSM criteria to assess gaming addiction. Although the psychometric properties of the GAS have been tested using classical test theory, its psychometric properties have never been tested using modern test theory (e.g., Rasch analysis). The present study used a large adolescent sample in Iran to test the psychometric properties of the Persian GAS through both classical test and modern test theories. Adolescents (n = 4442; mean age = 15.3 years; 50.3% males) were recruited from Qazvin, Iran. In addition to the GAS, all of them completed the following instruments: the nine-item Internet Gaming Disorder Scale-Short Form (IGDS-SF9), Depression Anxiety Stress Scale (DASS), Pittsburgh Sleep Quality Index (PSQI), and a generic quality of life instrument. Two weeks later, all participants completed the GAS again. Confirmatory factor analysis (CFA) and Rasch analysis were used to test the unidimensionality of the GAS. Pearson correlation coefficients were used to test the test-retest reliability, and a regression model was used to test the criterion-related validity of the GAS. Both CFA and Rasch analysis supported the unidimensionality of the GAS. Pearson correlations coefficients showed satisfactory test-retest reliability of the GAS (r = 0.78 to 0.86), and the regression model demonstrated the criterion-related validity of the GAS (β = 0.31 with IGDS-SF9; 0.41 with PSQI). Based on the results, the Persian GAS is a reliable and valid instrument for healthcare providers to assess the level of gaming addiction among Persian-speaking adolescents.

Place, publisher, year, edition, pages
Frontiers Media S.A., 2019
Keywords
Rasch model, adolescent gaming, confirmatory factor analysis, gaming addiction, online addiction
National Category
Psychology
Identifiers
urn:nbn:se:hj:diva-43223 (URN)10.3389/fpsyg.2019.00149 (DOI)000457845600002 ()30804841 (PubMedID)2-s2.0-85061038332 (Scopus ID)GOA HHJ 2019;HHJADULTIS (Local ID)GOA HHJ 2019;HHJADULTIS (Archive number)GOA HHJ 2019;HHJADULTIS (OAI)
Available from: 2019-03-01 Created: 2019-03-01 Last updated: 2019-03-01Bibliographically approved
Neher, M., Nygårdh, A., Nilsen, P., Broström, A. & Johansson, P. (2019). Implementing internet-delivered cognitive behavioural therapy for patients with cardiovascular disease and psychological distress: a scoping review.. European Journal of Cardiovascular Nursing
Open this publication in new window or tab >>Implementing internet-delivered cognitive behavioural therapy for patients with cardiovascular disease and psychological distress: a scoping review.
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2019 (English)In: European Journal of Cardiovascular Nursing, ISSN 1474-5151, E-ISSN 1873-1953Article in journal (Refereed) Epub ahead of print
Abstract [en]

BACKGROUND: Comorbid psychological distress (i.e. insomnia and depression) is experienced by 20-40% of patients with cardiovascular disease. This has a considerable impact on their health and quality of life, leading to frequent re-hospitalisations, higher healthcare costs and a shorter life expectancy. Internet-based cognitive behavioural therapy shows great potential for treating psychological distress in cardiovascular disease. Effective and feasible treatments can, however, only benefit patients if they are fully implemented in clinical care.

AIM: This scoping review aimed to explore the literature for internet-based cognitive behavioural therapy in cardiovascular disease and for strategies to implement the intervention.

METHODS: We searched electronic databases, journals and internet sources to find original studies about internet-based cognitive behavioural therapy in cardiovascular disease, adhering to scoping methodology guidelines. After identifying 267 titles, we screened 40 abstracts and chose 11 full-text articles for full-text screening. The results sections in four articles were searched for outcomes that related to the effectiveness and implementation of internet-based cognitive behavioural therapy by directed qualitative content analysis using an implementation framework.

RESULTS: Three of the four articles fulfilling the inclusion criteria concerned internet-based cognitive behavioural therapy for treating mild to moderate depressive symptoms in cardiovascular disease, and none focused on insomnia. The studies showed evidence for the effectiveness of internet-based cognitive behavioural therapy, and/or described patient factors influencing clinical effectiveness. Our qualitative content analysis showed that many implementation aspects and stakeholder perspectives remain unexplored.

CONCLUSIONS: Internet-based cognitive behavioural therapy promises to alleviate patient suffering in cardiovascular disease. There is, however, little research about internet-based cognitive behavioural therapy for cardiovascular disease, and about how this evidence-based intervention is implemented.

Place, publisher, year, edition, pages
Sage Publications, 2019
Keywords
Implementation, computer-assisted therapy, depression, insomnia, internet, remote consultation
National Category
Cardiac and Cardiovascular Systems Psychiatry
Identifiers
urn:nbn:se:hj:diva-43367 (URN)10.1177/1474515119833251 (DOI)30795698 (PubMedID)2-s2.0-85062326670 (Scopus ID)
Available from: 2019-03-21 Created: 2019-03-21 Last updated: 2019-03-21
Wikström, L., Nilsson, M., Broström, A. & Eriksson, K. (2019). Patients’ self-reported nausea: Validation of the Numerical Rating Scale and of a daily summary of repeated Numerical Rating Scale scores. Journal of Clinical Nursing, 28(5-6), 959-968
Open this publication in new window or tab >>Patients’ self-reported nausea: Validation of the Numerical Rating Scale and of a daily summary of repeated Numerical Rating Scale scores
2019 (English)In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 28, no 5-6, p. 959-968Article in journal (Refereed) Published
Abstract [en]

Aim and objectives: To validate the Numeric Rating Scale (NRS) for postoperative nausea assessments, and determine whether a central tendency, median, based on patients’ self-rated nausea is a clinically applicable daily measure to describe patients’ nausea after major surgery.

Background: Postoperative nausea causes major discomfort, risks for complications and prolonged hospital stays. The NRS is recommended for the assessment of pain but is little explored for assessing nausea.

Design: A repeated measure design was carried out on patients who had undergone major surgery in three Swedish hospitals.

Methods: Nonparametric statistical methods were used to analyse (a) associations between the NRS and a verbal scale (no, mild, moderate and severe) and (b) to analyse associations between Measure 1 (nausea scores postoperative Day 1) and Measure 2 (retrospective nausea scores at rest and during activity, postoperative Day 2). Reporting of this research adheres to the Strobe Guidelines.

Results: The mean age of the 479 patients (44% women) in the sample was 65 years (range, 22–93 years). Self-assessed nausea scores from the NRS and the verbal scale correlated well (rS pearman= 0.79). Correlation between nausea at rest and nausea during activity was rS pearman= 0.81. The calculated median scores (Measure 1) showed only moderate correlations with retrospective nausea scores (Measure 2); 4–9 ratings, rS pearman= 0.41; 6–9 ratings, rS pearman= 0.54.

Conclusions: Numeric Rating Scale scores showed strong associations with a verbal scale; therefore, the NRS seems to be a valid tool to measure nausea intensity. The quality of daily summarised median nausea scores needs to be further explored before clinical use.

Relevance to clinical practice: The use of the NRS in assessments of nausea in postoperative care will facilitate communication between patients and health care professionals regarding nausea intensity. When documenting nausea, it seems unnecessary to distinguish nausea at rest from nausea during activity.

Place, publisher, year, edition, pages
John Wiley & Sons, 2019
Keywords
assessment, nausea, Numeric Rating Scale, postoperative, validation
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-42100 (URN)10.1111/jocn.14705 (DOI)000458362400024 ()30357970 (PubMedID)2-s2.0-85056162192 (Scopus ID)PP HHJ 2019 embargo 12 (Local ID)PP HHJ 2019 embargo 12 (Archive number)PP HHJ 2019 embargo 12 (OAI)
Available from: 2018-11-21 Created: 2018-11-21 Last updated: 2019-03-12Bibliographically approved
Lin, C.-Y., Broström, A., Griffiths, M. D. & Pakpour, A. H. (2019). Psychometric Evaluation of the Persian eHealth Literacy Scale (eHEALS) Among Elder Iranians With Heart Failure. Evaluation & the Health Professions, Article ID 163278719827997.
Open this publication in new window or tab >>Psychometric Evaluation of the Persian eHealth Literacy Scale (eHEALS) Among Elder Iranians With Heart Failure
2019 (English)In: Evaluation & the Health Professions, ISSN 0163-2787, E-ISSN 1552-3918, article id 163278719827997Article in journal (Refereed) Epub ahead of print
Abstract [en]

The purpose of the present study was to examine the psychometric properties of the eHealth Literacy Scale (eHEALS) using classical test theory and modern test theory among elderly Iranian individuals with heart failure (HF). Individuals with objectively verified HF ( n = 388, 234 males, mean age = 68.9 ± 3.4) completed the (i) eHEALS, (ii) Hospital Anxiety and Depression Scale, (iii) Short Form 12, (iv) 9-item European Heart Failure Self-Care Behavior Scale, and (v) 5-item Medication Adherence Report Scale. Two types of analyses were carried out to evaluate the factorial structure of the eHEALS: (i) confirmatory factor analysis (CFA) in classical test theory and (ii) Rasch analysis in modern test theory. A regression model was constructed to examine the associations between eHEALS and other instruments. CFA supported the one-factor structure of the eHEALS with significant factor loadings for all items. Rasch analysis also supported the unidimensionality of the eHEALS with item fit statistics ranging between 0.5 and 1.5. The eHEALS was significantly associated with all the external criteria. The eHEALS is suitable for health-care providers to assess eHealth literacy for individuals with HF.

Place, publisher, year, edition, pages
Sage Publications, 2019
Keywords
Iran, classical test theory, eHealth literacy, heart failure, modern test theory
National Category
Nursing Cardiac and Cardiovascular Systems
Identifiers
urn:nbn:se:hj:diva-43362 (URN)10.1177/0163278719827997 (DOI)30744419 (PubMedID)2-s2.0-85061618071 (Scopus ID);HHJADULTIS (Local ID);HHJADULTIS (Archive number);HHJADULTIS (OAI)
Available from: 2019-03-21 Created: 2019-03-21 Last updated: 2019-04-09
Vislapuu, M., Broström, A., Igland, J., Vorderstrasse, A. & Iversen, M. M. (2019). Psychometric properties of the Norwegian version of the short form of The Problem Areas in Diabetes scale (PAID-5): a validation study. BMJ Open, 9(2), Article ID e022903.
Open this publication in new window or tab >>Psychometric properties of the Norwegian version of the short form of The Problem Areas in Diabetes scale (PAID-5): a validation study
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2019 (English)In: BMJ Open, ISSN 2044-6055, E-ISSN 2044-6055, Vol. 9, no 2, article id e022903Article in journal (Refereed) Published
Abstract [en]

OBJECTIVES: To assess the psychometric properties of the short form of The Problem Areas in Diabetes scale (PAID-5) in Norwegian adult patients with type 1 or type 2 diabetes.

DESIGN: Cross-sectional survey design.

METHODS: Participants (n=143) were included from three Western-Norway endocrinology outpatient clinics. Demographic and clinical data were collected in addition to questionnaires concerning diabetes-related distress, fear of hypoglycaemia, symptoms of depression, emotional well-being and perception of general health. Psychometric evaluation of the PAID-5 included confirming its postulated one-factor structure using confirmatory factor analysis (CFA) and assessing convergent validity, discriminant validity, internal consistency and test-retest reliability. The retest questionnaire was sent out 35±15 days after the initial assessment to those who agreed (n=117).

RESULTS: The CFA for the PAID-5 scale showed excellent one-factor structure, and there was high internal consistency (α=0.89) and good test-retest reliability (Intraclass Correlation Coefficient, ICC=0.81). The PAID-5 correlated positively with fear of hypoglycaemia (r=0.598) and depression (r=0.380) and negatively with emotional well-being (r=-0.363) and perception of general health (r=-0.420), thus satisfying convergent validity. Patients who had experienced episodes of serious hypoglycaemia in the past 6 months had a significantly higher PAID-5 mean score (7.5, SD=4.95) than those who had not had these episodes (5.0, SD=4.2 (p=0.043)).

CONCLUSION: The Norwegian PAID-5 was shown to be a reliable and valid short questionnaire for assessing diabetes-related distress among people with type 1 or type 2 diabetes. However, its ability to discriminate between groups needs to be tested further in larger samples. The PAID-5 scale can be a particularly valuable screening instrument in outpatient clinics, as its brevity makes it easy to use as a tool in patient-provider encounters. This short questionnaire is useful in the national diabetes registry or population cohort studies as it enables increased knowledge regarding the prevalence of diabetes-related distress.

Place, publisher, year, edition, pages
BMJ Publishing Group Ltd, 2019
Keywords
diabetes, distress, problem areas in diabetes, psychometric properties
National Category
Endocrinology and Diabetes
Identifiers
urn:nbn:se:hj:diva-43336 (URN)10.1136/bmjopen-2018-022903 (DOI)30796115 (PubMedID)2-s2.0-85062020674 (Scopus ID)GOA HHJ 2019;HHJADULTIS (Local ID)GOA HHJ 2019;HHJADULTIS (Archive number)GOA HHJ 2019;HHJADULTIS (OAI)
Available from: 2019-03-13 Created: 2019-03-13 Last updated: 2019-03-13Bibliographically approved
Stadin, M., Nordin, M., Broström, A., Magnusson Hanson, L., Westerlund, H. & Fransson, E. I. (2019). Repeated exposure to high ICT demands at work, and development of suboptimal self-rated health: findings from a 4-year follow-up of the SLOSH study. International Archives of Occupational and Environmental Health
Open this publication in new window or tab >>Repeated exposure to high ICT demands at work, and development of suboptimal self-rated health: findings from a 4-year follow-up of the SLOSH study
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2019 (English)In: International Archives of Occupational and Environmental Health, ISSN 0340-0131, E-ISSN 1432-1246Article in journal (Refereed) Epub ahead of print
Abstract [en]

Purpose

The knowledge about the association between Information and Communication Technology (ICT) demands at work and self-rated health (SRH) is insufficient. The aim of this study was to examine the association between repeated exposure to high ICT demands at work, and risk of suboptimal SRH, and to determine modifications by sex or socioeconomic position (SEP).

Methods

A prospective design was used, including repeated measurement of ICT demands at work, measured 2 years apart. SRH was measured at baseline and at follow-up after 4 years. The data were derived from the Swedish Longitudinal Occupational Survey of Health (SLOSH), including 4468 gainfully employees (1941 men, 2527 women) with good SRH at baseline.

Results

In the total study sample, repeated exposure to high ICT demands at work was associated with suboptimal SRH at follow-up (OR 1.34 [CI 1.06–1.70]), adjusted for age, sex, SEP, health behaviours, BMI, job strain and social support. An interaction between ICT demands and sex was observed (p = 0.010). The risk was only present in men (OR 1.53 [CI 1.09–2.16]), and not in women (OR 1.17 [CI 0.85–1.62]). The risk of suboptimal SRH after consistently high ICT demands at work was most elevated in participants with high SEP (OR 1.68 [CI 1.02–2.79]), adjusted for age, sex, health behaviours, BMI and job strain. However, no significant interaction between ICT demands and SEP regarding SRH was observed.

Conclusion

Repeated exposure to high ICT demands at work was associated with suboptimal SRH at follow-up, and the association was modified by sex.

Place, publisher, year, edition, pages
Springer, 2019
Keywords
ICT demands at work; Occupational health; Work-related stress; Self-rated health; Gender differences; Socioeconomic position
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:hj:diva-42592 (URN)10.1007/s00420-019-01407-6 (DOI)XYZ ()30684000 (PubMedID)
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2013-1141
Available from: 2019-01-11 Created: 2019-01-11 Last updated: 2019-01-29
Gullvåg, M., Gjeilo, K. H., Fålun, N., Norekvål, T. M., Mo, R. & Broström, A. (2019). Sleepless nights and sleepy days: a qualitative study exploring the experiences of patients with chronic heart failure and newly verified sleep-disordered breathing.. Scandinavian Journal of Caring Sciences
Open this publication in new window or tab >>Sleepless nights and sleepy days: a qualitative study exploring the experiences of patients with chronic heart failure and newly verified sleep-disordered breathing.
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2019 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712Article in journal (Refereed) Epub ahead of print
Abstract [en]

BACKGROUND: Sleep-disordered breathing, including obstructive sleep apnoea and central sleep apnoea, is a common disorder among patients with chronic heart failure. Obstructive sleep apnoea is often treated with continuous positive airway pressure, but central sleep apnoea lacks a clear treatment option. Knowledge of how sleep-disordered breathing is experienced (e.g. difficulties and care needs) and handled (e.g. self-care actions) by the patients is limited, but needed, to provide patient-centred care.

AIM: To explore how newly verified sleep-disordered breathing is experienced by patients with chronic heart failure.

METHODS: Data were collected through semi-structured interviews and analysed with qualitative content analysis. Seventeen participants (14 men, three women), mean age 60 years (range 41-80) diagnosed with chronic heart failure and objectively verified sleep-disordered breathing (nine obstructive, seven central and one mixed) were strategically selected from heart failure outpatient clinics at two Norwegian university hospitals.

RESULTS: Patients with chronic heart failure and newly verified sleep-disordered breathing (SDB) described experiences of poor sleep that had consequences for their daily life and their partners. Different self-care strategies were revealed, but they were based on 'common sense' and were not evidence-based. The awareness of having SDB was varied; for some, it gave an explanation to their trouble while others were surprised by the finding.

CONCLUSION: Patients with chronic heart failure and sleep-disordered breathing experienced reduced sleep quality, influencing their daily life. Possible underlying causes of disrupted sleep, such as sleep-disordered breathing, should be identified to establish proper patient-centred treatment strategies. There is a need for new strategies to approach patients with chronic heart failure (i.e. those with central sleep apnoea) who are not subject to continuous positive airway pressure treatment for their sleep-disordered breathing.

Place, publisher, year, edition, pages
John Wiley & Sons, 2019
Keywords
chronic heart failure, patient experience, qualitative content analysis, sleep apnoea, sleep-disordered breathing
National Category
Nursing Cardiac and Cardiovascular Systems
Identifiers
urn:nbn:se:hj:diva-43411 (URN)10.1111/scs.12672 (DOI)30866061 (PubMedID)2-s2.0-85062991612 (Scopus ID)HHJADULTIS (Local ID)HHJADULTIS (Archive number)HHJADULTIS (OAI)
Available from: 2019-04-02 Created: 2019-04-02 Last updated: 2019-04-02
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0003-1884-5696

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