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Publications (10 of 45) Show all publications
Arvidsson, P., Dada, S., Granlund, M., Imms, C., Bornman, J., Elliott, C. & Huus, K. (2019). Content validity and usefulness of Picture My Participation for measuring participation in children with and without intellectual disability in South Africa and Sweden. Scandinavian Journal of Occupational Therapy
Open this publication in new window or tab >>Content validity and usefulness of Picture My Participation for measuring participation in children with and without intellectual disability in South Africa and Sweden
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2019 (English)In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014Article in journal (Refereed) Epub ahead of print
Abstract [en]

Background: Participation comprises attendance and involvement in everyday situations. Picture My Participation (PmP) is an instrument intended to measure participation in children with disabilities, particularly in low and middle income countries.

Aim: To investigate content validity and usefulness of PmP for measuring participation in children with intellectual disability (ID) in South Africa and Sweden.

Methods: A picture supported interview with 149 children, 6?18 years, with and without ID. Twenty everyday activities were provided. The three most important activities were selected by the child. Attendance was rated on all activities. Involvement was rated on the most important.

Results: All activities were selected as important by at least one child with ID in both countries. There were similarities in perceived importance between the children with and without ID from South Africa. The children from South Africa with ID were the only subgroup that used all scale points for rating attendance and involvement.

Conclusion: The 20 selected activities of PmP were especially relevant for children with ID in South Africa. The usefulness of the scales was higher for the children with ID in both countries. PmP is promising for assessing participation across different settings but psychometrical properties and clinical utility need further exploration.

Place, publisher, year, edition, pages
Taylor & Francis, 2019
Keywords
Low and middle income countries, everyday functioning, picture supported interview, cognitive support, self-ratings
National Category
Pediatrics Neurology
Identifiers
urn:nbn:se:hj:diva-45528 (URN)10.1080/11038128.2019.1645878 (DOI)000481225900001 ()31402722 (PubMedID)2-s2.0-85070823120 (Scopus ID);HHJCHILDIS,HHJSALVEIS,HLKCHILDIS (Local ID);HHJCHILDIS,HHJSALVEIS,HLKCHILDIS (Archive number);HHJCHILDIS,HHJSALVEIS,HLKCHILDIS (OAI)
Available from: 2019-08-12 Created: 2019-08-12 Last updated: 2019-08-30
Enskär, K., Darcy, L., Björk, M., Knutsson, S. & Huus, K. (2019). Experiences of Young Children With Cancer and Their Parents With Nurses' Caring Practices During the Cancer Trajectory. Journal of Pediatric Oncology Nursing, Article ID 1043454219874007.
Open this publication in new window or tab >>Experiences of Young Children With Cancer and Their Parents With Nurses' Caring Practices During the Cancer Trajectory
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2019 (English)In: Journal of Pediatric Oncology Nursing, ISSN 1043-4542, E-ISSN 1532-8457, article id 1043454219874007Article in journal (Refereed) Epub ahead of print
Abstract [en]

Children with cancer require repeated hospitalizations and the family's everyday life and routines undergo change. Concrete descriptions of how nurses act when caring for children with cancer throughout the various phases of care and treatment are sparsely highlighted in the literature. The aim of this study was to describe young children with cancer and their parents' experiences of nurses' caring practices over a 3-year period, from diagnosis to follow-up. This study is based on semistructured interviews with 25 children newly diagnosed with cancer, aged 1 to 6 years, and their parents, connected to a pediatric oncology unit in Sweden. Child and parent data were analyzed with a deductive content analysis using Swanson's theory of caring. The result shows that nurse care practices directed toward young children with cancer and their parents are to some extent similar across a 3-year period from diagnosis to follow-up but also differ in some ways. Nurses' caring practices aim to support children and parents in the transition to a "new normal." Child- and family-friendly care processes include the following: creating hope and a trustful relationship, asking rather than assuming, providing knowledge and information, performing tasks skillfully, displaying an interest in the child's and parents' life outside the hospital, and helping the family to trust in the future and other health care providers. Based on these results, we recommend the development of a standardized and structured nursing care plan or clinical guideline with detailed information on how to carry out clinical nurse care practices in the different phases.

Place, publisher, year, edition, pages
Sage Publications, 2019
Keywords
Swanson caring theory, cancer, caring, children
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-46751 (URN)10.1177/1043454219874007 (DOI)000488438000001 ()31526068 (PubMedID)2-s2.0-85074264023 (Scopus ID)
Available from: 2019-10-30 Created: 2019-10-30 Last updated: 2019-11-12
Anderzén Carlsson, A., Wahlqvist, M., Björk, M. & Huus, K. (2019). Health and family climate in families where one parent has deafblindness. In: : . Paper presented at 17th Deafblind International World Conference, "Sharing the Knowledge to ACT: Accessibility. Communication. Technology", August 12-16, 2019, Gold Coast Australia.
Open this publication in new window or tab >>Health and family climate in families where one parent has deafblindness
2019 (English)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:hj:diva-46996 (URN)
Conference
17th Deafblind International World Conference, "Sharing the Knowledge to ACT: Accessibility. Communication. Technology", August 12-16, 2019, Gold Coast Australia
Available from: 2019-12-09 Created: 2019-12-09 Last updated: 2019-12-09Bibliographically approved
Lygnegård, F., Almqvist, L., Granlund, M. & Huus, K. (2019). Participation profiles in domestic life and peer relations as experienced by adolescents with and without impairments and long-term health conditions. Developmental Neurorehabilitation, 22(1), 27-38
Open this publication in new window or tab >>Participation profiles in domestic life and peer relations as experienced by adolescents with and without impairments and long-term health conditions
2019 (English)In: Developmental Neurorehabilitation, ISSN 1751-8423, E-ISSN 1751-8431, Vol. 22, no 1, p. 27-38Article in journal (Refereed) Published
Abstract [en]

PURPOSE: To investigate how individual and environmental factors relate to self-reported participation profiles in adolescents with and without impairments or long-term health conditions.

METHODS: A person-oriented approach (hierarchical cluster analysis) was used to identify cluster groups of individuals sharing participation patterns in the outcome variables frequency perceived importance in domestic life and peer relations. Cluster groups were compared using one-way analysis of variance (ANOVA).

RESULTS: A nine-cluster solution was chosen. All clusters included adolescents with impairment and long-term health conditions. Perceived importance of peer relations was more important than frequent attendance in domestic-life activities. Frequency of participation in dialogues and family interaction patterns seemed to affect the participation profiles more than factors related to body functions.

CONCLUSION: Type of impairment or long-term health condition is a weaker determinant of membership in clusters depicting frequency and perceived importance in domestic life or peer relations than dialogue and family environment.

Place, publisher, year, edition, pages
Taylor & Francis, 2019
Keywords
ICF-CY, Participation pattern, cluster analysis, everyday functioning, person-oriented method
National Category
Pediatrics
Identifiers
urn:nbn:se:hj:diva-38459 (URN)10.1080/17518423.2018.1424266 (DOI)000456885100005 ()29313401 (PubMedID)2-s2.0-85040965252 (Scopus ID)HOA HHJ 2019 (Local ID)HOA HHJ 2019 (Archive number)HOA HHJ 2019 (OAI)
Available from: 2018-01-11 Created: 2018-01-11 Last updated: 2019-02-20Bibliographically approved
Møller Christensen, B., Björk, M., Almqvist, L. & Huus, K. (2019). Patterns of support to adolescents related to disability, family situation, harassment, and economy. Child Care Health and Development, 45(5), 644-653
Open this publication in new window or tab >>Patterns of support to adolescents related to disability, family situation, harassment, and economy
2019 (English)In: Child Care Health and Development, ISSN 0305-1862, E-ISSN 1365-2214, Vol. 45, no 5, p. 644-653Article in journal (Refereed) Published
Abstract [en]

INTRODUCTION: Adolescents need support from family, friends, and teachers to increase their involvement in everyday life. Their environment and their own characteristics also influence their ability to participate in an everyday supportive environment.

AIM: The aim of the study was to investigate patterns of support from parents, teachers, and very important persons such as peers to the ability of adolescents to participate in everyday life, as well as the importance of interpersonal relations as experienced by the adolescents.

METHOD: The study has a cross-sectional design. The data compiled and analysed in this study are part of a longitudinal study of adolescents and their development into adults-LoRDIA (Longitudinal Research on Development In Adolescence). A combination of person- and variable-oriented design was used to capture patterns of support.

RESULTS: Adolescents with a complicated home situation and low economic prerequisites who received little support from parents and friends participated to a lower degree in home activities. A substantial number of these adolescents had self-reported neurodevelopmental disorders and, as a group, were more often exposed to harassment. However, these adolescents participated to a higher extent in school activities, although they received little support from the teachers. The adolescents who received most support from parents and teachers were those with a country of origin other than Sweden and those who lived with both of their parents and had more siblings than average. However, this did not mean that they participated to a higher extent in home and school activities.

Place, publisher, year, edition, pages
John Wiley & Sons, 2019
Keywords
adolescents, cluster analysis, support
National Category
Occupational Therapy
Identifiers
urn:nbn:se:hj:diva-44377 (URN)10.1111/cch.12675 (DOI)000481448600004 ()30995346 (PubMedID)2-s2.0-85065670692 (Scopus ID)
Available from: 2019-06-11 Created: 2019-06-11 Last updated: 2019-09-02Bibliographically approved
Lin, C.-Y., Imani, V., Broström, A., Huus, K., Björk, M., Hodges, E. A. & Pakpour, A. H. (2019). Psychological distress and quality of life in Iranian adolescents with overweight/obesity: mediating roles of weight bias internalization and insomnia. Eating and Weight Disorders
Open this publication in new window or tab >>Psychological distress and quality of life in Iranian adolescents with overweight/obesity: mediating roles of weight bias internalization and insomnia
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2019 (English)In: Eating and Weight Disorders, ISSN 1124-4909, E-ISSN 1590-1262Article in journal (Refereed) Epub ahead of print
Abstract [en]

PURPOSE: To examine whether weight-related self-stigma (aka weight bias internalization) and insomnia are potential predictors of psychological distress and quality of life (QoL) among Iranian adolescents with overweight (OW)/obesity (OB). To examine whether weight-related self-stigma and insomnia are potential mediators in the relationship between excess weight and health outcomes of distress and QoL.

METHODS: All participants (n = 934; 444 males; mean age = 15.7 ± 1.2 years; zBMI = 2.8 ± 1.0) completed questionnaires on weight-related self-stigma and insomnia at baseline. Six months later, they completed questionnaires on psychological distress and QoL to assess health outcomes. Relationships among variables were tested using mediation analyses with bootstrapping method.

RESULTS: Weight-related self-stigma significantly mediated the effects of zBMI on psychological distress (effect = 0.22; bootstrapping SE = 0.09; 95% CI = 0.08, 0.45), psychosocial QoL (effect = - 0.64; bootstrapping SE = 0.19; 95% CI = - 1.10, - 0.32), and physical QoL (effect = - 1.35; bootstrapping SE = 0.54; 95% CI = - 2.43, - 0.26). Insomnia also significantly mediated the effects of zBMI on psychological distress (effect = 2.18; bootstrapping SE = 0.31; 95% CI = 1.61, 2.81), psychosocial QoL (effect = - 0.89; bootstrapping SE = 0.33; 95% CI = - 1.60, - 0.28), and physical QoL (effect = - 0.83; bootstrapping SE = 0.42; 95% CI = - 1.69, - 0.02). Full mediations were found in psychosocial QoL; partial mediations were found in psychological distress and physical QoL.

CONCLUSIONS: Weight-related self-stigma and insomnia were significant mediators in the effects of excess weight on health outcomes. Therefore, it is important to identify and treat weight-related self-stigma and insomnia for adolescents with OW/OB.

LEVEL OF EVIDENCE: Level V, cross-sectional descriptive study.

Place, publisher, year, edition, pages
Springer, 2019
Keywords
Insomnia, Mental health, Obese, Quality of life, Stigma
National Category
Psychiatry
Identifiers
urn:nbn:se:hj:diva-46799 (URN)10.1007/s40519-019-00795-5 (DOI)000493495000001 ()31673986 (PubMedID)2-s2.0-85074688918 (Scopus ID)
Available from: 2019-11-11 Created: 2019-11-11 Last updated: 2019-11-25
Anderzén Carlsson, A., Wahlqvist, M., Huus, K. & Björk, M. (2019). The experience of family life when one parent has deafblindness - From the perspective of the partner. In: : . Paper presented at 17th Deafblind International World Conference, "Sharing the Knowledge to ACT: Accessibility. Communication. Technology", August 12-16, 2019, Gold Coast Australia.
Open this publication in new window or tab >>The experience of family life when one parent has deafblindness - From the perspective of the partner
2019 (English)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:hj:diva-46999 (URN)
Conference
17th Deafblind International World Conference, "Sharing the Knowledge to ACT: Accessibility. Communication. Technology", August 12-16, 2019, Gold Coast Australia
Available from: 2019-12-09 Created: 2019-12-09 Last updated: 2019-12-09Bibliographically approved
Anderzén Carlsson, A., Wahlqvist, M., Huus, K. & Björk, M. (2019). The lived experience of family life when one parent has deafblindness - from the perspective of the partner. In: : . Paper presented at Nordic Network on Disability Research (NNDR), 15th interdisciplinary conference in disability research, "Inclusion and Exclusion in the Welfare Society", May 8-10, 2019, Copenhagen, Denmark.
Open this publication in new window or tab >>The lived experience of family life when one parent has deafblindness - from the perspective of the partner
2019 (English)Conference paper, Oral presentation with published abstract (Refereed)
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:hj:diva-47001 (URN)
Conference
Nordic Network on Disability Research (NNDR), 15th interdisciplinary conference in disability research, "Inclusion and Exclusion in the Welfare Society", May 8-10, 2019, Copenhagen, Denmark
Available from: 2019-12-09 Created: 2019-12-09 Last updated: 2019-12-09Bibliographically approved
Lygnegård, F., Augustine, L., Granlund, M., Kåreholt, I. & Huus, K. (2018). Factors Associated With Participation and Change Over Time in Domestic Life, Peer Relations, and School for Adolescents With and Without Self-Reported Neurodevelopmental Disorders. A Follow-Up Prospective Study. Frontiers in Education, 3, 1-13, Article ID 28.
Open this publication in new window or tab >>Factors Associated With Participation and Change Over Time in Domestic Life, Peer Relations, and School for Adolescents With and Without Self-Reported Neurodevelopmental Disorders. A Follow-Up Prospective Study
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2018 (English)In: Frontiers in Education, ISSN 2504-284X, Vol. 3, p. 1-13, article id 28Article in journal (Refereed) Published
Abstract [en]

Even though participation in everyday events is a vital part in the fulfilment of human rights, adolescents with neurodevelopmental disorders often face participation restrictions in every-day activities. Few studies have investigated the predictors for participation in different contexts, over time and in relation to the same outcome variables. The objective of the current study was therefore to investigate predictors of change in participation operationalized as frequency of attendance and perceived importance in domestic life activities, peer related activities, and school activities as experienced by adolescents with and without self-reported neurodevelopmental disorders. Method: Associations with participation, both in terms of frequency and perceived importance, in domestic life, peer relations, and the school setting were investigated using six independent variables measuring experience of time and self, sex, age, stress, support from siblings, and atmosphere in family at two-time (with approximately 2 years in between). The sample consisted of adolescents with and without self-reported neurodevelopmental disorders (n= 916). Adolescents with self-reported neurodevelopmental disorders were n=154 and adolescents without self-reported neurodevelopmental disorders was n= 762. Data was collected via self-reported questionnaires administered in schools. Results: Three key findings are presented. 1) more factors were associated with participation outcomes at time1 for adolescents without NDD than for adolescents with NDD, but this difference in the number of factors decreases with time; 2) few associations were related to time for both adolescents with and without NDD; and 3) patterns of predicting variables were different for adolescents with and without NDD. Conclusion: The findings indicate that the factors related to participation in and outside school differs between groups, when the impairment or disability is not considered as a predictor for participation. This study supports the need for using a multidimensional developmental and contextual perspective in addressing enhanced participation for adolescents with neurodevelopmental disorders.

Place, publisher, year, edition, pages
Frontiers Media S.A., 2018
National Category
Educational Sciences
Identifiers
urn:nbn:se:hj:diva-39341 (URN)10.3389/feduc.2018.00028 (DOI)
Available from: 2018-05-02 Created: 2018-05-02 Last updated: 2019-06-07Bibliographically approved
Björkman, B., Gimbler Berglund, I., Faresjö, M., Enskär, K. & Huus, K. (2017). Are radiographers prepared to meet children with special needs, when seen for an examination?. Paper presented at 62nd Nordic Congress of Radiology & 23rd Nordic Congress of Radiography. Acta Radiologica, 58(1 Suppl.), 16-16
Open this publication in new window or tab >>Are radiographers prepared to meet children with special needs, when seen for an examination?
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2017 (English)In: Acta Radiologica, ISSN 0284-1851, E-ISSN 1600-0455, Vol. 58, no 1 Suppl., p. 16-16Article in journal, Meeting abstract (Refereed) Published
Abstract [en]

Introduction: Anxiety is often experienced by children undergoing health care procedures, and children with autism spectrum disorders (ADS) experience more anxiety than typically developed children. A prerequisite for obtaining an optimum procedure is firstly based on the health care provider’s knowledge about children with ASD, but may also depend on the use of guidelines. Two previous national surveys showed, that none radiology or paediatric departments and a minority of anaesthesiology departments throughout Sweden use specific guidelines when seeing children with ASD. Following, the purpose was to develop guidelines to use when caring for and preparing children with ASD in those settings.

Methods: A modified Delphi method was used, including19 experts identified from the two afore mentioned surveys. The questions considered in the process, proceeded from previous research and the results from the surveys. The experts’ responses regarding the importance of each item, were analysed and scrutinized between each round.

Results: The Delphi process resulted in guidelines consisting of 15 items and a checklist with 16 aspects. The items cover the areas: planning and involving parents, features in the environment, use of time, communication, thehealth care professionals. The checklist covers the child’spattern of communication, anxiety, sensory stimuli, special interests and likes/dislikes.

Conclusions: To obtain an optimum caring encounter when a child with ASD is seen in the preoperative and radiology setting, a meticulous planning is important and the environment should be adjusted for the needs of the child. To accomplish this, guidelines need to be in place and be followed.

Place, publisher, year, edition, pages
Sage Publications, 2017
National Category
Nursing Radiology, Nuclear Medicine and Medical Imaging
Identifiers
urn:nbn:se:hj:diva-37303 (URN)000404621700013 ()
Conference
62nd Nordic Congress of Radiology & 23rd Nordic Congress of Radiography
Available from: 2017-09-13 Created: 2017-09-13 Last updated: 2018-04-23Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0003-4599-155X

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