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Publications (10 of 37) Show all publications
Lygnegård, F., Eriksson, L., Granlund, M., Kåreholt, I. & Huus, K. (2018). Factors Associated With Participation and Change Over Time in Domestic Life, Peer Relations, and School for Adolescents With and Without Self-Reported Neurodevelopmental Disorders. A Follow-Up Prospective Study. Frontiers in Education, 3, 1-13, Article ID 28.
Open this publication in new window or tab >>Factors Associated With Participation and Change Over Time in Domestic Life, Peer Relations, and School for Adolescents With and Without Self-Reported Neurodevelopmental Disorders. A Follow-Up Prospective Study
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2018 (English)In: Frontiers in Education, ISSN 2504-284X, Vol. 3, p. 1-13, article id 28Article in journal (Refereed) Published
Abstract [en]

Even though participation in everyday events is a vital part in the fulfilment of human rights, adolescents with neurodevelopmental disorders often face participation restrictions in every-day activities. Few studies have investigated the predictors for participation in different contexts, over time and in relation to the same outcome variables. The objective of the current study was therefore to investigate predictors of change in participation operationalized as frequency of attendance and perceived importance in domestic life activities, peer related activities, and school activities as experienced by adolescents with and without self-reported neurodevelopmental disorders. Method: Associations with participation, both in terms of frequency and perceived importance, in domestic life, peer relations, and the school setting were investigated using six independent variables measuring experience of time and self, sex, age, stress, support from siblings, and atmosphere in family at two-time (with approximately 2 years in between). The sample consisted of adolescents with and without self-reported neurodevelopmental disorders (n= 916). Adolescents with self-reported neurodevelopmental disorders were n=154 and adolescents without self-reported neurodevelopmental disorders was n= 762. Data was collected via self-reported questionnaires administered in schools. Results: Three key findings are presented. 1) more factors were associated with participation outcomes at time1 for adolescents without NDD than for adolescents with NDD, but this difference in the number of factors decreases with time; 2) few associations were related to time for both adolescents with and without NDD; and 3) patterns of predicting variables were different for adolescents with and without NDD. Conclusion: The findings indicate that the factors related to participation in and outside school differs between groups, when the impairment or disability is not considered as a predictor for participation. This study supports the need for using a multidimensional developmental and contextual perspective in addressing enhanced participation for adolescents with neurodevelopmental disorders.

Place, publisher, year, edition, pages
Frontiers Media S.A., 2018
National Category
Educational Sciences
Identifiers
urn:nbn:se:hj:diva-39341 (URN)10.3389/feduc.2018.00028 (DOI)
Available from: 2018-05-02 Created: 2018-05-02 Last updated: 2018-05-02Bibliographically approved
Lygnegård, F., Almqvist, L., Granlund, M. & Huus, K. (2018). Participation profiles in domestic life and peer relations as experienced by adolescents with and without impairments and long-term health conditions. Developmental Neurorehabilitation
Open this publication in new window or tab >>Participation profiles in domestic life and peer relations as experienced by adolescents with and without impairments and long-term health conditions
2018 (English)In: Developmental Neurorehabilitation, ISSN 1751-8423, E-ISSN 1751-8431Article in journal (Refereed) Epub ahead of print
Abstract [en]

PURPOSE: To investigate how individual and environmental factors relate to self-reported participation profiles in adolescents with and without impairments or long-term health conditions.

METHODS: A person-oriented approach (hierarchical cluster analysis) was used to identify cluster groups of individuals sharing participation patterns in the outcome variables frequency perceived importance in domestic life and peer relations. Cluster groups were compared using one-way analysis of variance (ANOVA).

RESULTS: A nine-cluster solution was chosen. All clusters included adolescents with impairment and long-term health conditions. Perceived importance of peer relations was more important than frequent attendance in domestic-life activities. Frequency of participation in dialogues and family interaction patterns seemed to affect the participation profiles more than factors related to body functions.

CONCLUSION: Type of impairment or long-term health condition is a weaker determinant of membership in clusters depicting frequency and perceived importance in domestic life or peer relations than dialogue and family environment.

Place, publisher, year, edition, pages
Taylor & Francis, 2018
Keyword
ICF-CY, Participation pattern, cluster analysis, everyday functioning, person-oriented method
National Category
Pediatrics
Identifiers
urn:nbn:se:hj:diva-38459 (URN)10.1080/17518423.2018.1424266 (DOI)XYZ ()29313401 (PubMedID)2-s2.0-85040965252 (Scopus ID)
Available from: 2018-01-11 Created: 2018-01-11 Last updated: 2018-04-17
Björkman, B., Gimbler Berglund, I., Faresjö, M., Enskär, K. & Huus, K. (2017). Are radiographers prepared to meet children with special needs, when seen for an examination?. Paper presented at 62nd Nordic Congress of Radiology & 23rd Nordic Congress of Radiography. Acta Radiologica, 58(1 Suppl.), 16-16
Open this publication in new window or tab >>Are radiographers prepared to meet children with special needs, when seen for an examination?
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2017 (English)In: Acta Radiologica, ISSN 0284-1851, E-ISSN 1600-0455, Vol. 58, no 1 Suppl., p. 16-16Article in journal, Meeting abstract (Refereed) Published
Abstract [en]

Introduction: Anxiety is often experienced by children undergoing health care procedures, and children with autism spectrum disorders (ADS) experience more anxiety than typically developed children. A prerequisite for obtaining an optimum procedure is firstly based on the health care provider’s knowledge about children with ASD, but may also depend on the use of guidelines. Two previous national surveys showed, that none radiology or paediatric departments and a minority of anaesthesiology departments throughout Sweden use specific guidelines when seeing children with ASD. Following, the purpose was to develop guidelines to use when caring for and preparing children with ASD in those settings.

Methods: A modified Delphi method was used, including19 experts identified from the two afore mentioned surveys. The questions considered in the process, proceeded from previous research and the results from the surveys. The experts’ responses regarding the importance of each item, were analysed and scrutinized between each round.

Results: The Delphi process resulted in guidelines consisting of 15 items and a checklist with 16 aspects. The items cover the areas: planning and involving parents, features in the environment, use of time, communication, thehealth care professionals. The checklist covers the child’spattern of communication, anxiety, sensory stimuli, special interests and likes/dislikes.

Conclusions: To obtain an optimum caring encounter when a child with ASD is seen in the preoperative and radiology setting, a meticulous planning is important and the environment should be adjusted for the needs of the child. To accomplish this, guidelines need to be in place and be followed.

Place, publisher, year, edition, pages
Sage Publications, 2017
National Category
Nursing Radiology, Nuclear Medicine and Medical Imaging
Identifiers
urn:nbn:se:hj:diva-37303 (URN)000404621700013 ()
Conference
62nd Nordic Congress of Radiology & 23rd Nordic Congress of Radiography
Available from: 2017-09-13 Created: 2017-09-13 Last updated: 2018-04-23Bibliographically approved
Olsson, L., Elgmark Andersson, E., Granlund, M. & Huus, K. (2017). Habilitation service utilization patterns among children with mild intellectual disability. Journal of Policy and Practice in Intellectual Disabilities, 14(3), 233-239
Open this publication in new window or tab >>Habilitation service utilization patterns among children with mild intellectual disability
2017 (English)In: Journal of Policy and Practice in Intellectual Disabilities, ISSN 1741-1122, E-ISSN 1741-1130, Vol. 14, no 3, p. 233-239Article in journal (Refereed) Published
Abstract [en]

Background

There is a need for more knowledge about the utilization of habilitation services outside school among children with mild intellectual disability (ID). Specific aims. The aim of this study was to describe the patterns of habilitation service utilization among children with mild ID living in Sweden.

Method

A quantitative cross-sectional total population study was performed using data from service providers’ existing records.

Findings

The most common types of services utilized were those by physicians, counselors, and psychologists. Compared with children with mild ID who were in special classes, children with mild ID who were integrated into mainstream classes utilized significantly fewer types of services. Increasing age of the child was associated with a lower number of service types utilized. Children integrated into mainstream classes were significantly less likely to utilize habilitation services than children attending special classes. The likelihood of utilizing habilitation services decreased with age. Approximately two-thirds of the children utilized habilitation services.

Discussion

It is urgent that integration/inclusion in one organizational system, that is, school, does not result in exclusion in another system, such as pediatric habilitation services, which also aim to promote active participation in society. Pediatric habilitation professionals, teachers, and health units at schools need to interact in a manner so that children with mild ID, independent of type of school setting, have access to disability-related services outside school.

Place, publisher, year, edition, pages
John Wiley & Sons, 2017
Keyword
children; habilitation; mild intellectual disability; service utilization
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:hj:diva-28789 (URN)10.1111/jppi.12174 (DOI)000411722300007 ()2-s2.0-85029948793 (Scopus ID)
Note

Included in thesis in its submitted manuscript form with the title "Habilitation service utilization patterns among children with mild intellectual disability: The differences between children who are integrated into mainstream classes and children in self-contained classes".

Available from: 2015-12-28 Created: 2015-12-28 Last updated: 2018-03-06Bibliographically approved
Gimbler Berglund, I., Björkman, B., Enskär, K., Faresjö, M. & Huus, K. (2017). Management of children with Autism Spectrum Disorder in the anesthesia and radiographic context. Journal of Developmental and Behavioral Pediatrics, 38(3), 187-196
Open this publication in new window or tab >>Management of children with Autism Spectrum Disorder in the anesthesia and radiographic context
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2017 (English)In: Journal of Developmental and Behavioral Pediatrics, ISSN 0196-206X, E-ISSN 1536-7312, Vol. 38, no 3, p. 187-196Article in journal (Refereed) Published
Abstract [en]

Objective: As a primary objective, this study purports to develop guidelines to better care for children with autism spectrum disorder (ASD), particularly regarding these children's preparation for anesthesia and radiologic procedures.

Methods: Using a Delphi method with an online distribution of questionnaire, guidelines for caring for children with ASD were created. Twenty-one participants were included in the expert panel. These participants were working with children with ASD in several anesthesia and radiology departments in Sweden. A list of items was created from a previous survey and the literature. In the first round, the items with <60% agreement were discarded. Items were merged, and a new list was created. Two more similar rounds were performed. In the last 2 rounds, 21 participants responded, and 80% agreement was considered to be consensus.

Results: The final guidelines consisted of 14 items and a checklist of 16 factors. The 5 areas covered by the items and the checklist were as follows: planning involving parents/guardians, features in the environment, and use of time, communication, and the health care professionals. The organization was important in making it possible for the health care professional to care for the individual child according to the child's needs. It was important to involve the parents/guardians to obtain knowledge about the functioning of the child.

Conclusion: A caring encounter involving a child with ASD in the anesthesia and radiology contexts requires advance planning, catered specifically to the individual needs of each child. To accomplish this, general knowledge regarding ASD and ASD's particular manifestation in the child entrusted to their care, is required from the health care workers. The organization needs to have structures in place to facilitate this process.

Place, publisher, year, edition, pages
Wolters Kluwer, 2017
National Category
Nursing Anesthesiology and Intensive Care
Identifiers
urn:nbn:se:hj:diva-35267 (URN)10.1097/DBP.0000000000000432 (DOI)000399585500004 ()28333847 (PubMedID)2-s2.0-85015965039 (Scopus ID)
Available from: 2017-03-28 Created: 2017-03-28 Last updated: 2017-05-12Bibliographically approved
Huus, K., Olsson, L. M., Elgmark Andersson, E., Granlund, M. & Augustine, L. (2017). Perceived needs among parents of children with a mild intellectual disability in Sweden. Scandinavian Journal of Disability Research, 19(4), 307-317
Open this publication in new window or tab >>Perceived needs among parents of children with a mild intellectual disability in Sweden
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2017 (English)In: Scandinavian Journal of Disability Research, ISSN 1501-7419, E-ISSN 1745-3011, Vol. 19, no 4, p. 307-317Article in journal (Refereed) Published
Abstract [en]

Parents of children with a mild intellectual disability experience more distress and require more support than other parents. The aim was to investigate the perceived family needs of parents of children with an MID and to investigate the relationship between parents’ perceived self-efficacy in their parental role and in collaborating with professionals as well as with their perceived needs for support. Interviews were based on questionnaires to the parents of 38 children. The results revealed that parents perceived need for information, respite, and venues in which to meet other parents in similar situations. The informational needs were related to parental self-efficacy and obtaining support. A lower need for information was related to higher perceived control over services. In conclusion, it appears that professionals need to work to strengthen parents’ ability to ask for support and to express the needs. Well-informed parents will develop stronger parental self-efficacy and perceived control over services.

Place, publisher, year, edition, pages
Taylor & Francis, 2017
Keyword
Child, intellectual disability, need assessment, self-efficacy
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:hj:diva-28791 (URN)10.1080/15017419.2016.1167773 (DOI)000419256200003 ()2-s2.0-84964078822 (Scopus ID)
Note

Included in doctoral thesis in its submitted manuscript form (2015).

Available from: 2015-12-28 Created: 2015-12-28 Last updated: 2018-02-05Bibliographically approved
Björkman, B., Gimbler Berglund, I., Enskär, K., Faresjö, M. & Huus, K. (2017). Peri-radiographic guidelines for children with autism spectrum disorder: a nationwide survey in Sweden. Child Care Health and Development, 43(1), 31-36
Open this publication in new window or tab >>Peri-radiographic guidelines for children with autism spectrum disorder: a nationwide survey in Sweden
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2017 (English)In: Child Care Health and Development, ISSN 0305-1862, E-ISSN 1365-2214, Vol. 43, no 1, p. 31-36Article in journal (Refereed) Published
Abstract [en]

OBJECTIVE: This study aimed to investigate the prevalence of guidelines and routines used nationwide when children with autism spectrum disorder (ASD) are taken care of and examined in a radiology department during a peri-radiographic process.

METHOD: A nationwide survey was compiled and distributed to 94 radiology departments throughout Sweden, i.e. those performing more than 100 000 radiographic examinations annually. The survey was designed as a web questionnaire with seven questions on possible guidelines and/or routines for the departments when preparing and taking care of children with ASD in conjunction with a radiographic procedure. The data were scrutinized, using descriptive statistics.

RESULTS: In total, 86 radiology departments responded to the survey (response rate 92%). Of those departments, 40 did not examine children with ASD. None of the departments included in the study had existing guidelines underpinning the routines when preparing and performing radiographic examinations for children diagnosed with ASD. A few departments (n = 8) would set aside more time for the procedure if it were known in advance that the child to be examined had been diagnosed with ASD. Also, some departments (n = 7) had radiographers who were more experienced in the care of children who would be appointed to perform examinations for children with ASD.

CONCLUSION: It is suggested that guidelines should be developed in order to increase interaction in a supportive way and decrease anxiety during the peri-radiographic process with children with ASD.

Place, publisher, year, edition, pages
Wiley-Blackwell, 2017
Keyword
autism spectrum disorder (ASD); children; guidelines; preparation; radiographic procedure
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-32259 (URN)10.1111/cch.12427 (DOI)000396460600003 ()27807874 (PubMedID)2-s2.0-84997047807 (Scopus ID)
Available from: 2016-11-10 Created: 2016-11-10 Last updated: 2017-04-21Bibliographically approved
Petersson, C., Huus, K., Åkesson, K., Enskär, K. & Golsäter, M. (2017). To promote child involvement – healthcare professionals' use of a health-related quality of life assessment tool during paediatric encounters. European Journal for Person Centered Healthcare, 5(1)
Open this publication in new window or tab >>To promote child involvement – healthcare professionals' use of a health-related quality of life assessment tool during paediatric encounters
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2017 (English)In: European Journal for Person Centered Healthcare, ISSN 2052-5648, E-ISSN 2052-5656, Vol. 5, no 1Article in journal (Refereed) Published
Abstract [en]

Background: Children and healthcare professionals should be provided with easy-to-use tools which could lead to actionable results.

Objectives: There is increasing interest in the use of patient reported outcomes to aid management of individual care; therefore, the use of health-related qualityof life (HRQOL) assessments during consultations need to be studied. The aim of this study was to explore how healthcare professionals use a HRQOL assessment tool during paediatric encounters.

Design: A descriptive, explorative design with a qualitative approach based on video recordings was chosen.

Methods: Twenty-one video recordings, from nine different healthcare professionals’ consultations where an assessment tool of HRQOL were used were analysed by content analysis.

Results: The healthcare professionals were using different strategies and when they combined these strategies three approaches emerged. The instructing approach was characterized by healthcare professionals giving a summary of the results, leading to children becoming passive bystanders in the encounter. Based on an inviting approach, the children’s perceptions of their situation were requested while the items were explored. This resulted in involving the children in the conversations. In the engaging approach, an open dialogue and a common interpretation were sought to guide further care which was interpreted as children becoming actively involved.

Conclusions: The child’s involvement could be facilitated depending on which approach is being used. When an inviting and engaging approach is used, actions in a non-linear set of interactions is co-produced with the child.

Relevance to practice: The use of an HRQOL assessment tool change the management during consultations and could promote child involvement dependent on which approach the healthcare professionals are using.

Place, publisher, year, edition, pages
University of Buckingham Press, 2017
Keyword
Child and family-centered care, child engagement, clinical communication, engagement styles, health-related QOL assessment, paediatric encounters, person-centered healthcare, open dialogue
National Category
Pediatrics
Identifiers
urn:nbn:se:hj:diva-34143 (URN)10.5750/ejpch.v5i1.1201 (DOI)
Available from: 2016-12-01 Created: 2016-12-01 Last updated: 2017-08-17Bibliographically approved
Hasselberg, M., Huus, K. & Golsäter, M. (2016). Breastfeeding preterm infants at a neonatal care unit in rural Tanzania. Journal of Obstetric, Gynecologic and Neonatal Nursing, 45(6), 825-835
Open this publication in new window or tab >>Breastfeeding preterm infants at a neonatal care unit in rural Tanzania
2016 (English)In: Journal of Obstetric, Gynecologic and Neonatal Nursing, ISSN 0884-2175, E-ISSN 1552-6909, Vol. 45, no 6, p. 825-835Article in journal (Refereed) Published
Abstract [en]

OBJECTIVE: To describe the breastfeeding experiences of mothers with preterm and low-birth-weight infants in a neonatal unit in Tanzania.

DESIGN: A qualitative research design.

SETTING: A neonatal unit at a referral hospital in rural Tanzania.

PARTICIPANTS: Convenience sample of 10 new mothers with preterm infants. Additionally, to triangulate the data, five nurses affiliated with the neonatal unit were interviewed.

METHODS: A semistructured interview guide was used for data collection. All interviews were audiotaped and transcribed verbatim. Data were analyzed with inductive qualitative content analysis.

RESULTS: One main category, The mother has to adapt to the new situation to make breastfeeding natural, and three generic categories, The challenges of breastfeeding a premature infant, Enhancing the feeding situation, and The need for support, were used to describe breastfeeding challenges. Challenges consisted of the perception that the infant was different than healthy infants and the infant's and mother's health problems and needs. To improve the feeding situation, mothers learned how to feed their infants using timing strategies. Confidence and security were achieved with support from family and friends, the other mothers, and the health care staff.

CONCLUSION: Mothers perceived breastfeeding as natural but needed support to overcome the challenges of breastfeeding preterm infants. Through support and education they were empowered, adapted to their new situations, and felt confident with breastfeeding.

Keyword
breastfeeding; mothers' experience; preterm infant; qualitative content analysis; support; Tanzania
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-34083 (URN)10.1016/j.jogn.2016.07.010 (DOI)000388846500009 ()27718365 (PubMedID)2-s2.0-84994556205 (Scopus ID)
Available from: 2016-11-24 Created: 2016-11-24 Last updated: 2017-11-29Bibliographically approved
Huus, K., Ngoc, L. D., Dam, K. A., Ljusegren, G., Enskär, K. & Gimbler Berglund, I. (2016). Caring for children in pain: a Vietnamese perspective. Annals of Nursing and Practice, 3(7), Article ID 1071.
Open this publication in new window or tab >>Caring for children in pain: a Vietnamese perspective
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2016 (English)In: Annals of Nursing and Practice, ISSN 2379-9501, Vol. 3, no 7, article id 1071Article in journal (Refereed) Published
Abstract [en]

Purpose: The purpose of this study was to identify and describe Vietnamese nurse’s pain management in children.

Methods: A quantitative cross-sectional study using a questionnaire measuring 110 registered Vietnamese nurse’s perception of pain and pain management in children.

Results: The results showed that many nurses in Vietnam are using pain assessment instruments as well as non-pharmacological alleviations methods extensively. Vietnamese nurses had high levels of knowledge in physiology of pain. Nurses’ knowledge about the use of pain medication was correlated to attitudes. The higher level of knowledge the nurses had about pain medication, the more positive was their attitude towards pain management in general.

Conclusion: In conclusion, the most commonly used non-pharmacology pain alleviation method among the nurses was talking to the child and be close to the child. This method to attempt to relive pain is valuable as it doesn’t require any specific equipment. Vietnamese nurses had high levels of knowledge about physiology of pain.

Keyword
Child, Non pharmacological, Nurses, Pain management
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-34142 (URN)HHJCHILDIS (Local ID)HHJCHILDIS (Archive number)HHJCHILDIS (OAI)
Available from: 2016-12-01 Created: 2016-12-01 Last updated: 2017-04-18Bibliographically approved
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ORCID iD: ORCID iD iconorcid.org/0000-0003-4599-155X

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