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Publications (10 of 27) Show all publications
Johansson, L. (2020). Time to increase the involvement of persons with intellectual disability in palliative care and research [Letter to the editor]. Evidence-Based Nursing, Article ID 103188.
Open this publication in new window or tab >>Time to increase the involvement of persons with intellectual disability in palliative care and research
2020 (English)In: Evidence-Based Nursing, ISSN 1367-6539, E-ISSN 1468-9618, article id 103188Article in journal, Letter (Refereed) Epub ahead of print
Place, publisher, year, edition, pages
BMJ Publishing Group Ltd, 2020
Keywords
Adult palliative care, delirium & cognitive disorders, organisation of health services
National Category
Gerontology, specialising in Medical and Health Sciences
Identifiers
urn:nbn:se:hj:diva-48203 (URN)10.1136/ebnurs-2019-103188 (DOI)2-s2.0-85082062429 (Scopus ID)
Note

Commentary on: Voss H, Vogel A, Wagemans AMA, et al. Advance care planning in the palliative phase of people with intellectual disabilities: analysis of medical files and interviews. J Intellect Disabil Res. 2019;63:1262–72.

Available from: 2020-04-24 Created: 2020-04-24 Last updated: 2020-04-24
Johansson, L., Ernsth-Bravell, M. & Finkel, D. (2019). Health and social care in the most ill older persons. In: : . Paper presented at International Association of Gerontology and Geriatrics European Region Congress 2019, 23rd – 25th May 2019, Gothenburg, Sweden.
Open this publication in new window or tab >>Health and social care in the most ill older persons
2019 (English)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Gerontology, specialising in Medical and Health Sciences
Identifiers
urn:nbn:se:hj:diva-43785 (URN)
Conference
International Association of Gerontology and Geriatrics European Region Congress 2019, 23rd – 25th May 2019, Gothenburg, Sweden
Available from: 2019-05-27 Created: 2019-05-27 Last updated: 2019-06-12Bibliographically approved
Holmqvist, M., Thor, J., Ros, A. & Johansson, L. (2019). "I trust my physician but want to be involved"  - Older persons' Experiences of regarding evaluation of their medication treatment. In: : . Paper presented at International Association of Gerontology and Geriatrics European Region Congress 2019, 23rd – 25th May 2019, Gothenburg, Sweden.
Open this publication in new window or tab >>"I trust my physician but want to be involved"  - Older persons' Experiences of regarding evaluation of their medication treatment
2019 (English)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Gerontology, specialising in Medical and Health Sciences
Identifiers
urn:nbn:se:hj:diva-43790 (URN)
Conference
International Association of Gerontology and Geriatrics European Region Congress 2019, 23rd – 25th May 2019, Gothenburg, Sweden
Available from: 2019-05-27 Created: 2019-05-27 Last updated: 2019-06-03Bibliographically approved
Lu, Q., Mårtensson, J., Zhao, Y. & Johansson, L. (2019). Living on the edge: Family caregivers’ experiences of caring for post-stroke family members in China: A qualitative study. International Journal of Nursing Studies, 94, 1-8
Open this publication in new window or tab >>Living on the edge: Family caregivers’ experiences of caring for post-stroke family members in China: A qualitative study
2019 (English)In: International Journal of Nursing Studies, ISSN 0020-7489, E-ISSN 1873-491X, Vol. 94, p. 1-8Article in journal (Refereed) Published
Abstract [en]

Background: Globally, one-third of the 15 million people with stroke suffer permanent physical, cognitive, and emotional impairment. Because of traditional Chinese culture and the limited development of the primary healthcare system, most stroke survivors are cared for and live with their family after hospital discharge. However, previous literature shows a lack of qualitative studies on family caregivers’ experience of caring for their relatives in China.

Objectives: The aim of this study was to explore the experience of family caregivers taking care of stroke survivors in China.

Methods: An explorative design was used wherein qualitative semi-structured interviews were conducted with family caregivers in China. Family caregivers were selected from one city and three communities using a purposive sampling method until no new data were generated (n = 26). A thematic analysis was used for the data analysis in this study.

Findings: Family caregivers’ experience was described as living on the edge, which pulled their lives in multiple directions, created an unstable situation, and reduced their well-being and health. The participants believed they had total responsibility and felt that this was expected from both themselves and society. Little external understanding and insufficient support was emphasised, resulting in the caregivers feeling all alone, drained by caring, and like prisoners in their own lives. The family caregivers had to face all of the family events and make all of the decisions by themselves. They expressed love for their family members with stroke, but this was often overshadowed by feelings of sadness, depression, sensitivity, and anger. This resulted in an inability to see how things could improve and in the family caregivers being uncertain about the future.

Conclusion: All of these findings increased understanding and added knowledge of this topic that has been seldom studied in China. Healthcare authorities and professionals should recognise and understand the lives and situations of family caregivers since their relatives had a stroke to further identify their difficulties and needs. Appropriate and effective support, both from government and society, should be planned and implemented for family caregivers to relieve them from caring for their relatives with stroke and maintaining the quality of their own lives.

Place, publisher, year, edition, pages
Elsevier, 2019
Keywords
China, Experience, Family caregiver, Interview, Qualitative research, Stroke
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-43453 (URN)10.1016/j.ijnurstu.2019.02.016 (DOI)000473120700003 ()30928717 (PubMedID)2-s2.0-85063428035 (Scopus ID);HHJADULTIS (Local ID);HHJADULTIS (Archive number);HHJADULTIS (OAI)
Available from: 2019-04-11 Created: 2019-04-11 Last updated: 2020-01-21Bibliographically approved
Holmqvist, M., Thor, J., Ros, A. & Johansson, L. (2019). Older persons’ experiences regarding evaluation of their medication treatment: An interview study in Sweden. Health Expectations, 22(6), 1294-1303
Open this publication in new window or tab >>Older persons’ experiences regarding evaluation of their medication treatment: An interview study in Sweden
2019 (English)In: Health Expectations, ISSN 1369-6513, E-ISSN 1369-7625, Vol. 22, no 6, p. 1294-1303Article in journal (Refereed) Published
Abstract [en]

Background: Older persons with polypharmacy are at increased risk of harm from medications, and this issue is a global patient safety challenge. Harm may arise at all stages of medication use and may cause hospital admission, additional resource uti ‐lization and lower patient satisfaction. Older persons’ participation in their own care may increase patient safety. Their views on the evaluation of their medication treat ‐ment, and their own involvement in it, are crucial yet poorly understood.

Objectives: To identify opportunities to make the medication use process safer, we explored and described older persons’ experiences of evaluation of their medicationtreatment.

Design: Semi‐structured interviews were performed with 20 community‐dwelling older persons (age 75‐91 years) in Sweden. Data were analysed using inductive quali ‐tative content analysis.

Results: These older persons reported having a responsibility to engage in their med ‐ication evaluations, although some felt unable to do so or considered themselves un ‐concerned. Evaluation, in their experience, was facilitated by continuity of care and an invitation to participate. However, some older persons experienced not receivinga comprehensive medication evaluation.

Discussion and conclusion: Older persons want to be actively involved in their medi ‐cation evaluations, and this may represent an underutilized resource in the pursuit of patient safety. Their trust in physicians to undertake evaluations on a regular basis, although that does not necessarily occur, may cause harm. Patient safety could benefit from a co‐production approach to medication evaluations, with health‐care professionals explicitly sharing information with older persons and agreeing on re ‐sponsibilities related to on‐going medication treatment.

Place, publisher, year, edition, pages
John Wiley & Sons, 2019
Keywords
attitudes, health knowledge, medication therapy management, older adult, patient participation, patient safety, practice, qualitative research, quality improvement
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-46400 (URN)10.1111/hex.12967 (DOI)000503237700012 ()31556232 (PubMedID)2-s2.0-85073981354 (Scopus ID)GOA HHJ 2019 (Local ID)GOA HHJ 2019 (Archive number)GOA HHJ 2019 (OAI)
Available from: 2019-09-30 Created: 2019-09-30 Last updated: 2020-01-03Bibliographically approved
Finkel, D., Lindmark, U., Johansson, L. & Ernsth-Bravell, M. (2019). Oral health predicts quality of life in data from Swedish National Quality Registries. In: : . Paper presented at International Association of Gerontology and Geriatrics European Region Congress 2019, 23rd – 25th May 2019, Gothenburg, Sweden.
Open this publication in new window or tab >>Oral health predicts quality of life in data from Swedish National Quality Registries
2019 (English)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Gerontology, specialising in Medical and Health Sciences
Identifiers
urn:nbn:se:hj:diva-43781 (URN)
Conference
International Association of Gerontology and Geriatrics European Region Congress 2019, 23rd – 25th May 2019, Gothenburg, Sweden
Available from: 2019-05-27 Created: 2019-05-27 Last updated: 2019-09-13Bibliographically approved
Fauth, B., Johannesson, S., Ernsth-Bravell, M., Johansson, L., Malmberg, B., Johansson, B. & Zarit, S. (2019). Sustained and successful model in international gerontological education: A short study abroad course fostering research collaboration and educational training for over a decade. In: : . Paper presented at International Association of Gerontology and Geriatrics European Region Congress 2019, 23rd – 25th May 2019, Gothenburg, Sweden.
Open this publication in new window or tab >>Sustained and successful model in international gerontological education: A short study abroad course fostering research collaboration and educational training for over a decade
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2019 (English)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Gerontology, specialising in Medical and Health Sciences
Identifiers
urn:nbn:se:hj:diva-43810 (URN)
Conference
International Association of Gerontology and Geriatrics European Region Congress 2019, 23rd – 25th May 2019, Gothenburg, Sweden
Available from: 2019-05-28 Created: 2019-05-28 Last updated: 2019-05-28Bibliographically approved
Östlund, L., Johansson, L. & Ernsth-Bravell, M. (2019). Wellbeing of persons with dementia without restraints and coercion. In: : . Paper presented at 9th International Association of Gerontology and Geriatrics European Region Congress (IAGG-ER2019), 23-25 May, 2019, Gothenburg, Sweden.
Open this publication in new window or tab >>Wellbeing of persons with dementia without restraints and coercion
2019 (English)Conference paper, Poster (with or without abstract) (Other academic)
National Category
Gerontology, specialising in Medical and Health Sciences
Identifiers
urn:nbn:se:hj:diva-47882 (URN)
Conference
9th International Association of Gerontology and Geriatrics European Region Congress (IAGG-ER2019), 23-25 May, 2019, Gothenburg, Sweden
Available from: 2020-02-24 Created: 2020-02-24 Last updated: 2020-02-24Bibliographically approved
Ernsth-Bravell, M., Johansson, L. & Östlund, L. (2019). Wellbeing without restraints and coercion, the zero vision. In: : . Paper presented at International Association of Gerontology and Geriatrics European Region Congress 2019, 23rd – 25th May 2019, Gothenburg, Sweden.
Open this publication in new window or tab >>Wellbeing without restraints and coercion, the zero vision
2019 (English)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Gerontology, specialising in Medical and Health Sciences
Identifiers
urn:nbn:se:hj:diva-43783 (URN)
Conference
International Association of Gerontology and Geriatrics European Region Congress 2019, 23rd – 25th May 2019, Gothenburg, Sweden
Available from: 2019-05-27 Created: 2019-05-27 Last updated: 2019-05-27Bibliographically approved
Johansson, L. (2018). Effects of using a preventive care model among persons with dementia in ordinary home and nursing home with poor nutritional status. In: : . Paper presented at 5th International Conference on Evidence-based Policy in Long-term Care, 10-12 September 2018, Vienna, Austria.
Open this publication in new window or tab >>Effects of using a preventive care model among persons with dementia in ordinary home and nursing home with poor nutritional status
2018 (English)Conference paper, Oral presentation with published abstract (Refereed)
National Category
Gerontology, specialising in Medical and Health Sciences
Identifiers
urn:nbn:se:hj:diva-42703 (URN)
Conference
5th International Conference on Evidence-based Policy in Long-term Care, 10-12 September 2018, Vienna, Austria
Available from: 2019-01-23 Created: 2019-01-23 Last updated: 2019-01-23Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0001-7101-3165

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