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Publications (10 of 25) Show all publications
Enskär, K., Darcy, L., Björk, M., Knutsson, S. & Huus, K. (2020). Experiences of young children with cancer and their parents with nurses' caring practices during the cancer trajectory. Journal of Pediatric Oncology Nursing, 37(1), 21-34
Open this publication in new window or tab >>Experiences of young children with cancer and their parents with nurses' caring practices during the cancer trajectory
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2020 (English)In: Journal of Pediatric Oncology Nursing, ISSN 1043-4542, E-ISSN 1532-8457, Vol. 37, no 1, p. 21-34Article in journal (Refereed) Published
Abstract [en]

Children with cancer require repeated hospitalizations and the family's everyday life and routines undergo change. Concrete descriptions of how nurses act when caring for children with cancer throughout the various phases of care and treatment are sparsely highlighted in the literature. The aim of this study was to describe young children with cancer and their parents' experiences of nurses' caring practices over a 3-year period, from diagnosis to follow-up. This study is based on semistructured interviews with 25 children newly diagnosed with cancer, aged 1 to 6 years, and their parents, connected to a pediatric oncology unit in Sweden. Child and parent data were analyzed with a deductive content analysis using Swanson's theory of caring. The result shows that nurse care practices directed toward young children with cancer and their parents are to some extent similar across a 3-year period from diagnosis to follow-up but also differ in some ways. Nurses' caring practices aim to support children and parents in the transition to a "new normal." Child- and family-friendly care processes include the following: creating hope and a trustful relationship, asking rather than assuming, providing knowledge and information, performing tasks skillfully, displaying an interest in the child's and parents' life outside the hospital, and helping the family to trust in the future and other health care providers. Based on these results, we recommend the development of a standardized and structured nursing care plan or clinical guideline with detailed information on how to carry out clinical nurse care practices in the different phases.

Place, publisher, year, edition, pages
Sage Publications, 2020
Keywords
Swanson caring theory, cancer, caring, children
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-46751 (URN)10.1177/1043454219874007 (DOI)000488438000001 ()31526068 (PubMedID)2-s2.0-85074264023 (Scopus ID)
Available from: 2019-10-30 Created: 2019-10-30 Last updated: 2020-01-07Bibliographically approved
Darcy, L., Granlund, M., Enskär, K. & Björk, M. (2020). The development of the Clinical Assessment Tool "Health and Everyday Functioning in Young Children with Cancer". Child Care Health and Development
Open this publication in new window or tab >>The development of the Clinical Assessment Tool "Health and Everyday Functioning in Young Children with Cancer"
2020 (English)In: Child Care Health and Development, ISSN 0305-1862, E-ISSN 1365-2214Article in journal (Refereed) Epub ahead of print
Abstract [en]

Key messages

  • The aim of this study was to select and validate the content of a clinical assessment tool (CAT) for health and everyday functioning in young children with cancer.
  • Items were developed based on frequently occurring ICF-CY codes identified in the transcripts of 12 interviews with young children with cancer and their parents.
  • The CAT consists of 52 items grouped in four dimensions, “The child her/himself”, “The child’s everyday life”, “The child’s need for support” and “The child’s contacts with health care”.
  • The items correlate well with known research results
  • The CAT can be used by both parents and health care personnel to highlight aspects of care for the young child with cancer
Place, publisher, year, edition, pages
John Wiley & Sons, 2020
National Category
Cancer and Oncology Pediatrics
Identifiers
urn:nbn:se:hj:diva-47484 (URN)10.1111/cch.12744 (DOI)31944353 (PubMedID)2-s2.0-85078771993 (Scopus ID)
Funder
Swedish Childhood Cancer Foundation
Available from: 2020-01-22 Created: 2020-01-22 Last updated: 2020-02-18
Miri, S. F., Javadi, M., Lin, C.-Y., Griffiths, M. D., Björk, M. & Pakpour, A. H. (2019). Effectiveness of cognitive-behavioral therapy on nutrition improvement and weight of overweight and obese adolescents: A randomized controlled trial. Diabetes & Metabolic syndrome: clinical Research & Reviews, 13(3), 2190-2197
Open this publication in new window or tab >>Effectiveness of cognitive-behavioral therapy on nutrition improvement and weight of overweight and obese adolescents: A randomized controlled trial
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2019 (English)In: Diabetes & Metabolic syndrome: clinical Research & Reviews, ISSN 1871-4021, E-ISSN 1878-0334, Vol. 13, no 3, p. 2190-2197Article in journal (Refereed) Published
Abstract [en]

Aim: To assess the effectiveness of a cognitive-behavioral treatment (CBT) program on weight reduction among Iranian adolescents who are overweight. Methods: Using a randomized controlled trial design, 55 adolescents who were overweight (mean [SD] age = 14.64 [1.69] years; zBMI = 2.18 [0.65]) were recruited in the CBT program and 55 in the treatment as usual (TAU; mean age = 14.88 [1.50]; zBMI = 2.09 [0.57]) group. All the participants completed several questionnaires (Child Dietary Self-Efficacy Scale; Weight Efficacy Lifestyle questionnaire; Physical Exercise Self-Efficacy Scale; Pediatric Quality of Life Inventory; and self-reported physical activity and diet) and had their anthropometrics measured (height, weight, waist and hip circumferences, and body fat). Results: The CBT group consumed significantly more fruits and juice, vegetables, and dairy in the 6-month follow-up as compared with the TAU group (p-values <0.001). The CBT group consumed significantly less sweet snacks, salty snacks, sweet drinks, sausages/processed meat, and oils in the six-month follow-up compared with the TAU group (p-values<0.001). Additionally, the waist circumference, BMI, waist-hip ratio, and fat mass were significantly decreased in the CBT group in the six-month follow-up compared with the TAU group (p-values<0.005). The CBT group significantly improved their psychosocial health, physical activity, and health-related quality of life (p-values<0.001). Conclusion: The CBT program showed its effectiveness in reducing weight among Iranian adolescents who were overweight. Healthcare providers may want to adopt this program to treat excess weight problems among adolescents. 

Place, publisher, year, edition, pages
Elsevier, 2019
Keywords
Adolescence, CBT, Nutrition, Obesity, Overweight
National Category
Nutrition and Dietetics
Identifiers
urn:nbn:se:hj:diva-44352 (URN)10.1016/j.dsx.2019.05.010 (DOI)000472598700078 ()31235156 (PubMedID)2-s2.0-85066156391 (Scopus ID)PP HHJ 2019 embargo 12;HHJCHILDIS (Local ID)PP HHJ 2019 embargo 12;HHJCHILDIS (Archive number)PP HHJ 2019 embargo 12;HHJCHILDIS (OAI)
Available from: 2019-06-11 Created: 2019-06-11 Last updated: 2019-07-12Bibliographically approved
Anderzén Carlsson, A., Wahlqvist, M., Björk, M. & Huus, K. (2019). Health and family climate in families where one parent has deafblindness. In: : . Paper presented at 17th Deafblind International World Conference, "Sharing the Knowledge to ACT: Accessibility. Communication. Technology", August 12-16, 2019, Gold Coast Australia.
Open this publication in new window or tab >>Health and family climate in families where one parent has deafblindness
2019 (English)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:hj:diva-46996 (URN)
Conference
17th Deafblind International World Conference, "Sharing the Knowledge to ACT: Accessibility. Communication. Technology", August 12-16, 2019, Gold Coast Australia
Available from: 2019-12-09 Created: 2019-12-09 Last updated: 2019-12-09Bibliographically approved
Møller Christensen, B., Björk, M., Almqvist, L. & Huus, K. (2019). Patterns of support to adolescents related to disability, family situation, harassment, and economy. Child Care Health and Development, 45(5), 644-653
Open this publication in new window or tab >>Patterns of support to adolescents related to disability, family situation, harassment, and economy
2019 (English)In: Child Care Health and Development, ISSN 0305-1862, E-ISSN 1365-2214, Vol. 45, no 5, p. 644-653Article in journal (Refereed) Published
Abstract [en]

INTRODUCTION: Adolescents need support from family, friends, and teachers to increase their involvement in everyday life. Their environment and their own characteristics also influence their ability to participate in an everyday supportive environment.

AIM: The aim of the study was to investigate patterns of support from parents, teachers, and very important persons such as peers to the ability of adolescents to participate in everyday life, as well as the importance of interpersonal relations as experienced by the adolescents.

METHOD: The study has a cross-sectional design. The data compiled and analysed in this study are part of a longitudinal study of adolescents and their development into adults-LoRDIA (Longitudinal Research on Development In Adolescence). A combination of person- and variable-oriented design was used to capture patterns of support.

RESULTS: Adolescents with a complicated home situation and low economic prerequisites who received little support from parents and friends participated to a lower degree in home activities. A substantial number of these adolescents had self-reported neurodevelopmental disorders and, as a group, were more often exposed to harassment. However, these adolescents participated to a higher extent in school activities, although they received little support from the teachers. The adolescents who received most support from parents and teachers were those with a country of origin other than Sweden and those who lived with both of their parents and had more siblings than average. However, this did not mean that they participated to a higher extent in home and school activities.

Place, publisher, year, edition, pages
John Wiley & Sons, 2019
Keywords
adolescents, cluster analysis, support
National Category
Occupational Therapy
Identifiers
urn:nbn:se:hj:diva-44377 (URN)10.1111/cch.12675 (DOI)000481448600004 ()30995346 (PubMedID)2-s2.0-85065670692 (Scopus ID)
Available from: 2019-06-11 Created: 2019-06-11 Last updated: 2019-09-02Bibliographically approved
Lin, C.-Y., Imani, V., Broström, A., Huus, K., Björk, M., Hodges, E. A. & Pakpour, A. H. (2019). Psychological distress and quality of life in Iranian adolescents with overweight/obesity: mediating roles of weight bias internalization and insomnia. Eating and Weight Disorders
Open this publication in new window or tab >>Psychological distress and quality of life in Iranian adolescents with overweight/obesity: mediating roles of weight bias internalization and insomnia
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2019 (English)In: Eating and Weight Disorders, ISSN 1124-4909, E-ISSN 1590-1262Article in journal (Refereed) Epub ahead of print
Abstract [en]

PURPOSE: To examine whether weight-related self-stigma (aka weight bias internalization) and insomnia are potential predictors of psychological distress and quality of life (QoL) among Iranian adolescents with overweight (OW)/obesity (OB). To examine whether weight-related self-stigma and insomnia are potential mediators in the relationship between excess weight and health outcomes of distress and QoL.

METHODS: All participants (n = 934; 444 males; mean age = 15.7 ± 1.2 years; zBMI = 2.8 ± 1.0) completed questionnaires on weight-related self-stigma and insomnia at baseline. Six months later, they completed questionnaires on psychological distress and QoL to assess health outcomes. Relationships among variables were tested using mediation analyses with bootstrapping method.

RESULTS: Weight-related self-stigma significantly mediated the effects of zBMI on psychological distress (effect = 0.22; bootstrapping SE = 0.09; 95% CI = 0.08, 0.45), psychosocial QoL (effect = - 0.64; bootstrapping SE = 0.19; 95% CI = - 1.10, - 0.32), and physical QoL (effect = - 1.35; bootstrapping SE = 0.54; 95% CI = - 2.43, - 0.26). Insomnia also significantly mediated the effects of zBMI on psychological distress (effect = 2.18; bootstrapping SE = 0.31; 95% CI = 1.61, 2.81), psychosocial QoL (effect = - 0.89; bootstrapping SE = 0.33; 95% CI = - 1.60, - 0.28), and physical QoL (effect = - 0.83; bootstrapping SE = 0.42; 95% CI = - 1.69, - 0.02). Full mediations were found in psychosocial QoL; partial mediations were found in psychological distress and physical QoL.

CONCLUSIONS: Weight-related self-stigma and insomnia were significant mediators in the effects of excess weight on health outcomes. Therefore, it is important to identify and treat weight-related self-stigma and insomnia for adolescents with OW/OB.

LEVEL OF EVIDENCE: Level V, cross-sectional descriptive study.

Place, publisher, year, edition, pages
Springer, 2019
Keywords
Insomnia, Mental health, Obese, Quality of life, Stigma
National Category
Psychiatry
Identifiers
urn:nbn:se:hj:diva-46799 (URN)10.1007/s40519-019-00795-5 (DOI)000493495000001 ()31673986 (PubMedID)2-s2.0-85074688918 (Scopus ID)
Available from: 2019-11-11 Created: 2019-11-11 Last updated: 2019-11-25
Björklund, A.-C., Granlund, M., Santacroce, S. J., Enskär, K. & Björk, M. (2019). The documentation of everyday functioning in children with brain tumors in medical care, habilitation services and school – is there a coherent description?. In: : . Paper presented at The 51th Congress of the “Société Internationale d’Oncologie Pédiatrique” (SIOP), October 23-26, 2019, Lyon, France.
Open this publication in new window or tab >>The documentation of everyday functioning in children with brain tumors in medical care, habilitation services and school – is there a coherent description?
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2019 (English)Conference paper, Published paper (Refereed)
National Category
Cancer and Oncology Pediatrics
Identifiers
urn:nbn:se:hj:diva-46992 (URN)
Conference
The 51th Congress of the “Société Internationale d’Oncologie Pédiatrique” (SIOP), October 23-26, 2019, Lyon, France
Available from: 2019-12-06 Created: 2019-12-06 Last updated: 2019-12-06Bibliographically approved
Björklund, A.-C., Granlund, M., Santacroce, S. J., Enskär, K. & Björk, M. (2019). The Documentation of Everyday Functioning in Children with Brain Tumors in Medical Care, Habilitation Services and School - is There a Coherent Description?. Pediatric Blood & Cancer, 66(4, SI), S437-S437
Open this publication in new window or tab >>The Documentation of Everyday Functioning in Children with Brain Tumors in Medical Care, Habilitation Services and School - is There a Coherent Description?
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2019 (English)In: Pediatric Blood & Cancer, ISSN 1545-5009, E-ISSN 1545-5017, Vol. 66, no 4, SI, p. S437-S437Article in journal, Meeting abstract (Refereed) Published
Place, publisher, year, edition, pages
John Wiley & Sons, 2019
National Category
Cancer and Oncology Hematology Pediatrics
Identifiers
urn:nbn:se:hj:diva-46828 (URN)000488458005010 ();HHJCHILDIS,HLKCHILDIS (Local ID);HHJCHILDIS,HLKCHILDIS (Archive number);HHJCHILDIS,HLKCHILDIS (OAI)
Available from: 2019-11-19 Created: 2019-11-19 Last updated: 2020-01-27Bibliographically approved
Anderzén Carlsson, A., Wahlqvist, M., Huus, K. & Björk, M. (2019). The experience of family life when one parent has deafblindness - From the perspective of the partner. In: : . Paper presented at 17th Deafblind International World Conference, "Sharing the Knowledge to ACT: Accessibility. Communication. Technology", August 12-16, 2019, Gold Coast Australia.
Open this publication in new window or tab >>The experience of family life when one parent has deafblindness - From the perspective of the partner
2019 (English)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:hj:diva-46999 (URN)
Conference
17th Deafblind International World Conference, "Sharing the Knowledge to ACT: Accessibility. Communication. Technology", August 12-16, 2019, Gold Coast Australia
Available from: 2019-12-09 Created: 2019-12-09 Last updated: 2019-12-09Bibliographically approved
Anderzén Carlsson, A., Wahlqvist, M., Huus, K. & Björk, M. (2019). The lived experience of family life when one parent has deafblindness - from the perspective of the partner. In: : . Paper presented at Nordic Network on Disability Research (NNDR), 15th interdisciplinary conference in disability research, "Inclusion and Exclusion in the Welfare Society", May 8-10, 2019, Copenhagen, Denmark.
Open this publication in new window or tab >>The lived experience of family life when one parent has deafblindness - from the perspective of the partner
2019 (English)Conference paper, Oral presentation with published abstract (Refereed)
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:hj:diva-47001 (URN)
Conference
Nordic Network on Disability Research (NNDR), 15th interdisciplinary conference in disability research, "Inclusion and Exclusion in the Welfare Society", May 8-10, 2019, Copenhagen, Denmark
Available from: 2019-12-09 Created: 2019-12-09 Last updated: 2019-12-09Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0001-6419-2417

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