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Bouwmeester Stjernetun, B., Gillsjö, C., Odzakovic, E. & Hallgren, J. (2024). ”It´s like walking in a bubble”, nursing students´ perspectives on age suit simulation in a home environment – group interviews from reflection seminars. BMC Nursing, 23, Article ID 124.
Open this publication in new window or tab >>”It´s like walking in a bubble”, nursing students´ perspectives on age suit simulation in a home environment – group interviews from reflection seminars
2024 (English)In: BMC Nursing, E-ISSN 1472-6955, Vol. 23, article id 124Article in journal (Refereed) Published
Abstract [en]

Older persons with age-related and complex health problems will increasingly depend on care provision from nurses in their own homes. However, a barrier to quality care is ageism and nursing students´ disinterest in geriatrics. In addition, nurse education often falls short in preparing students for the complexity of geriatric care. Welfare technology (WT) is progressively implemented in home care to help older persons live at home despite their health problems. However, this process is intricate and requires acceptance and digital literacy among caregivers and older persons. Despite these challenges, nurse education can address and change negative attitudes through innovative teaching methods such as age suit simulation. Therefore, the study aims to describe nursing students´ experiences of age suit simulation in a home-like environment with WT and technical aids, and will reveal their perspective on ageing and providing care to older adults.

Place, publisher, year, edition, pages
BioMed Central (BMC), 2024
Keywords
Age suit simulation, Education, Nursing students, Ageism, Older persons, Welfare technology, Experiential learning theory
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-63603 (URN)10.1186/s12912-024-01792-5 (DOI)GOA;;937977 (Local ID)GOA;;937977 (Archive number)GOA;;937977 (OAI)
Funder
The Kamprad Family Foundation, 20210227
Available from: 2024-02-16 Created: 2024-02-16 Last updated: 2024-02-19Bibliographically approved
Malm, J., Bielsten, T., Odzakovic, E., Finkel, D., Nilsen, C. & Kåreholt, I. (2023). Co-production to tailor a digital tool for monitoring symptoms of dementia in nursing home care in Sweden. Innovation in Aging, 7(Supplement 1), 743-743
Open this publication in new window or tab >>Co-production to tailor a digital tool for monitoring symptoms of dementia in nursing home care in Sweden
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2023 (English)In: Innovation in Aging, E-ISSN 2399-5300, Vol. 7, no Supplement 1, p. 743-743Article in journal, Meeting abstract (Refereed) Published
Abstract [en]

Symptoms of dementia change over time, resulting in complex situations that can negatively impact the person with dementia, as well as their relatives, and create challenges for staff members. Behavioral and Psychological Symptoms of Dementia (BPSD), such as delusions, hallucinations, agitation, depression, anxiety, apathy, irritability, aberrant motor behavior, and sleep disturbances, occur in approximately 90% of older people with dementia. The purpose of the study was to identify potential barriers and facilitators prior to introducing a web-based digital tool, the Daily-BPSD. Daily-BPSD is going to be used by staff members for daily registrations of severity levels of BPSD for persons with dementia in nursing home care in Sweden. Qualitative data collection was conducted in co-production with previous users of a similar digital tool in disability care (n = 11) and future users in dementia care (n = 32). The participants were assistant nurses, care managers, nurses, occupational therapists, and relatives. The responses highlight the importance of an accessible and time-effective registration procedure, a manageable number of variables and registrations occasions per day, and ensuring that the same information does not need to be documented in different systems. The findings will be used to tailor Daily-BPSD and adequately prepare staff members for large-scale data collection in the next step of the research project. Daily-BPSD could provide an extended foundation of knowledge of the person with BPSD, which could be used to provide more person-centered and appropriate care.

Place, publisher, year, edition, pages
Oxford University Press, 2023
National Category
Gerontology, specialising in Medical and Health Sciences Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
urn:nbn:se:hj:diva-63694 (URN)10.1093/geroni/igad104.2404 (DOI)
Available from: 2024-02-27 Created: 2024-02-27 Last updated: 2024-02-27Bibliographically approved
Odzakovic, E., Huus, K., Ahlberg, B. M., Bradby, H., Hamed, S., Thaper-Björkert, S. & Björk, M. (2023). Discussing racism in healthcare: A qualitative study of reflections by graduate nursing students. Nursing Open, 10(6), 3677-3686
Open this publication in new window or tab >>Discussing racism in healthcare: A qualitative study of reflections by graduate nursing students
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2023 (English)In: Nursing Open, E-ISSN 2054-1058, Vol. 10, no 6, p. 3677-3686Article in journal (Refereed) Published
Abstract [en]

Aim: The aim is to illustrate and analyse reflections from graduate nursing students over their experience of discussing racism in healthcare in an educational intervention.

Design: A qualitative, descriptive design was adopted.

Methods: Data were collected through written reflections and analysed through content analysis. In total, 81 students participated in the intervention; 39 paediatric and 42 public health care nursing students. Of those, 27 participants gave consent to have their written reflections included in the study.

Results: Three main categories were developed in the content analysis of student reflections: (a) the implicit embeddedness of racism in healthcare organization; (b) the effect of racism on interactions with patients; and (c) a growing awareness of one's own understanding of racism. This study indicates that student nurses discussed racism as relevant to understanding good clinical practice for the benefit of patients and work-based wellbeing of staff. This recognition of the organizational nature of racism warrants nursing leaders and managers to include racism as a social determinant of health in the undergraduate and graduate curricula to educate the next generation of nursing about racism.

Place, publisher, year, edition, pages
John Wiley & Sons, 2023
Keywords
article, awareness, child, clinical practice, content analysis, female, graduate nursing student, health care organization, human, leadership, major clinical study, male, manager, nurse, nursing education, public health service, qualitative research, racism, social determinants of health, wellbeing, graduate nursing education, healthcare, knowledge, qualitative study
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-59720 (URN)10.1002/nop2.1619 (DOI)000922006700001 ()36692244 (PubMedID)2-s2.0-85147115659 (Scopus ID)GOA;;860443 (Local ID)GOA;;860443 (Archive number)GOA;;860443 (OAI)
Funder
Swedish Research Council, 2016‐04078
Available from: 2023-02-06 Created: 2023-02-06 Last updated: 2023-09-04Bibliographically approved
Campbell, S., Clark, A., Keady, J., Manji, K., Odzakovic, E., Rummery, K. & Ward, R. (2023). 'I can see what's going on without being nosey…': What matters to people living with dementia about home as revealed through visual home tours.. International Journal of Geriatric Psychiatry, 38(9), Article ID e5999.
Open this publication in new window or tab >>'I can see what's going on without being nosey…': What matters to people living with dementia about home as revealed through visual home tours.
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2023 (English)In: International Journal of Geriatric Psychiatry, ISSN 0885-6230, E-ISSN 1099-1166, Vol. 38, no 9, article id e5999Article in journal (Refereed) Published
Abstract [en]

OBJECTIVES: This paper considers home from the perspective of people living with dementia supporting ongoing discourse around ageing in place and the significance of creating more inclusive communities.

METHODS: Forty-six home tour interviews led by people living with dementia were conducted in England and Scotland to better understand the connectivity between home and neighbourhood for people living with dementia. These interviews used a range of participatory and creative approaches including video, photographic images and in situ interviews. Data were analysed via reflexive thematic analysis.

RESULTS: Three themes were identified in data analysis. 1. Connected home and neighbourhood, where participants revealed the dynamic relationship between home and neighbourhood; 2. Practices of home, where participants discussed the everyday nature of their homes and routines; and 3. Displaying home and family, which reflected participant's biographical homes in the context of living with dementia.

DISCUSSION: The findings show that home holds multiple meanings for people living with dementia. For example, home is understood as a part of the neighbourhood and an extension of the home space into gardens and backyards, thus extending existing discourses that solely focus on the inside of people's homes. For people living with dementia, homes are also sites of negotiation and renegotiation where new meanings are created to reflect the changing nature and context of the home. There is not one fixed solution to these issues. Support and understanding for people living with dementia will need to evolve to adapt to the shifting dynamics and multiple meanings of home.

Place, publisher, year, edition, pages
John Wiley & Sons, 2023
Keywords
ageing in place, connections, dementia, display, everyday routines, gardens and outdoor spaces, home, home tours, neighbourhood, participatory, visual data
National Category
Gerontology, specialising in Medical and Health Sciences
Identifiers
urn:nbn:se:hj:diva-62418 (URN)10.1002/gps.5999 (DOI)001064057600001 ()37682244 (PubMedID)2-s2.0-85170158884 (Scopus ID)HOA;intsam;903003 (Local ID)HOA;intsam;903003 (Archive number)HOA;intsam;903003 (OAI)
Available from: 2023-09-11 Created: 2023-09-11 Last updated: 2023-10-17Bibliographically approved
Björk, M., Knutsson, S., Odzakovic, E., Hellström, A., Sandlund, C., Ulander, M., . . . Broström, A. (2023). Validation of two brief instruments (the SURE and CollaboRATE) to measure shared decision-making in patients with restless legs syndrome. Journal of Sleep Research
Open this publication in new window or tab >>Validation of two brief instruments (the SURE and CollaboRATE) to measure shared decision-making in patients with restless legs syndrome
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2023 (English)In: Journal of Sleep Research, ISSN 0962-1105, E-ISSN 1365-2869Article in journal (Refereed) Epub ahead of print
Abstract [en]

Restless legs syndrome (RLS) is a common neurological disorder characterised by an urge to move arms and legs, usually associated with discomfort, pain, motor restlessness, and sleep disturbance. An individually adapted treatment is needed but difficult to optimise, which makes shared decision-making (SDM) important. However, brief validated instruments on how patients with RLS perceive their involvement in treatment decisions are lacking. Therefore, the aim was to validate two instruments, SURE (Sure of myself, Understand information, Risk–benefit ratio, Encouragement, i.e., to assess decisional conflict) and CollaboRATE (brief patient survey focused on SDM, i.e., to assess SDM), in patients with RLS. A cross-sectional design, including 788 participants with RLS (65% females, mean [SD] age 70.8 [11.4] years) from a national patient organisation for RLS, was used. A postal survey was sent out to collect data regarding weight, height, comorbidities, demographics, and RLS-related treatment data. The following instruments were included: the SURE, CollaboRATE, Restless Legs Syndrome-6 Scale, and eHealth Literacy Scale. Confirmatory factor analysis and Rasch models were used to assess the validity and reliability of the SURE and CollaboRATE. Measurement invariance, unidimensionality, and differential item functioning (DIF) across age, gender, and medication groups were assessed. The SURE and CollaboRATE were both identified as unidimensional instruments with satisfactory internal consistency. No DIF across age and gender was identified, while significant DIF was observed for both the SURE and CollaboRATE regarding medication use categories. However, both the SURE and CollaboRATE are potential instruments to be used in research, but also as reflection tools by healthcare professionals, patients, and students to explore and assess SDM, and support its development in clinical care.

Place, publisher, year, edition, pages
John Wiley & Sons, 2023
Keywords
confirmatory factor analysis, decisional conflict, restless legs syndrome, shared decision-making, sleep, validity
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:hj:diva-62886 (URN)10.1111/jsr.14071 (DOI)001096207800001 ()37909257 (PubMedID)2-s2.0-85175544341 (Scopus ID)HOA;;915772 (Local ID)HOA;;915772 (Archive number)HOA;;915772 (OAI)
Funder
Medical Research Council of Southeast Sweden (FORSS), 969214The Kamprad Family Foundation, 20223144
Available from: 2023-11-15 Created: 2023-11-15 Last updated: 2023-11-28
Ward, R., Rummery, K., Odzakovic, E., Manji, K., Kullberg, A., Keady, J., . . . Campbell, S. (2022). Beyond the shrinking world: dementia, localisation and neighbourhood. Ageing & Society, 42(12), 2892-2913
Open this publication in new window or tab >>Beyond the shrinking world: dementia, localisation and neighbourhood
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2022 (English)In: Ageing & Society, ISSN 0144-686X, E-ISSN 1469-1779, Vol. 42, no 12, p. 2892-2913Article in journal (Refereed) Published
Abstract [en]

‘Dementia-friendly communities’ herald a shift toward the neighbourhood as a locus for the care and support of people with dementia, sparking growing interest in the geographies of dementia care and raising questions over the shifting spatial and social experience of the condition. Existing research claims that many people with dementia experience a ‘shrinking world’ whereby the boundaries to their social and physical worlds gradually constrict over time, leading to a loss of control and independence. This paper reports a five-year, international study that investigated the neighbourhood experience of people with dementia and those who care for and support them. We interrogate the notion of a shrinking world and in so doing highlight an absence of attention paid to the agency and actions of people with dementia themselves. The paper draws together a socio-relational and embodied-material approach to question the adequacy of the shrinking world concept as an explanatory framework and to challenge reliance within policy and practice upon notions of place as fixed or stable. We argue instead for the importance of foregrounding ‘lived place’ and attending to social practices and the networks in which such practices evolve. Our findings have implications for policy and practice, emphasising the need to bolster the agency of people living with dementia as a route to fostering accessible and inclusive neighbourhoods.

Place, publisher, year, edition, pages
Cambridge University Press, 2022
Keywords
care, community, dementia, dementia-friendly, neighbourhood, environment
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-52071 (URN)10.1017/S0144686X21000350 (DOI)000742557300001 ()2-s2.0-85102881453 (Scopus ID)HOA;intsam;1539059 (Local ID)HOA;intsam;1539059 (Archive number)HOA;intsam;1539059 (OAI)
Available from: 2021-03-22 Created: 2021-03-22 Last updated: 2023-02-13Bibliographically approved
Bielsten, T., Odzakovic, E., Kullberg, A., Marcusson, J. & Hellström, I. (2022). Controlling the Uncontrollable: Patient Safety and Medication Management From the Perspective of Registered Nurses in Municipal Home Health Care. Global Qualitative Nursing Research, 9, Article ID 23333936221108700.
Open this publication in new window or tab >>Controlling the Uncontrollable: Patient Safety and Medication Management From the Perspective of Registered Nurses in Municipal Home Health Care
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2022 (English)In: Global Qualitative Nursing Research, E-ISSN 2333-3936, Vol. 9, article id 23333936221108700Article in journal (Refereed) Published
Abstract [en]

Most adverse events in health care are related to medication management and they are almost always preventable. Increased knowledge of patient safety related to medication management in home health care is an urgent issue to provide safe care for all patients regardless of where the health care takes place. This study explored patient safety within medication management in municipal home health care. Vignettes were used as stimulus during qualitative interviews with registered nurses. Three main themes with related subthemes were identified as challenges to patient safety within medication management in home health care: (1) challenges to information transfer, (2) challenges related to delegation, and (3) challenges of advanced medical treatments in the home. The issue of transfer of information permeated our findings. Coordinating medications, delegating tasks, along with more advanced care require clear communication between care providers to be compatible with patient safety within medication management in home health care.

Place, publisher, year, edition, pages
Sage Publications, 2022
Keywords
home health care, information transfer, medication management, patient safety, registered nurse, Sweden, adult, article, drug safety, home care, human, interview, medication therapy management, vignette
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-58051 (URN)10.1177/23333936221108700 (DOI)000827677600001 ()35832605 (PubMedID)2-s2.0-85133711813 (Scopus ID)GOA;;822884 (Local ID)GOA;;822884 (Archive number)GOA;;822884 (OAI)
Available from: 2022-07-26 Created: 2022-07-26 Last updated: 2023-02-13Bibliographically approved
Ward, R., Rummery, K., Odzakovic, E., Manji, K., Kullberg, A., Clark, A. & Campbell, S. (2022). Getting lost with dementia: Encounters with the time-space of not knowing. Health and Place, 78, Article ID 102940.
Open this publication in new window or tab >>Getting lost with dementia: Encounters with the time-space of not knowing
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2022 (English)In: Health and Place, ISSN 1353-8292, E-ISSN 1873-2054, Vol. 78, article id 102940Article in journal (Refereed) Published
Abstract [en]

In this paper we explore the experience and implications of getting lost with dementia. While getting lost has become culturally emblematic of dementia, speaking as it does to a widespread fear of losing our place in the world, it is marked by an overall absence of critical attention. We argue that this critical hesitancy is part of a broader unease with 'dementing' that reveals a paradox in dementia scholarship as growing emphasis on strengths-based and capacity-oriented approaches to the condition shift attention away from episodes of disorientation, forgetting and unknowing that commonly arise after onset. We therefore explore getting lost with dementia, not only as a route to better understanding what happens during such events and the meaning it holds but also to consider the implications for a broader politics of the social inclusion of people living with dementia. Reporting findings from a five-year international study of the neighbourhood experiences of people with dementia, we suggest that through such experiences as getting lost, people with dementia have a unique and distinctive contribution to make to the ever-evolving character of public space and civic culture. In particular, we argue that getting lost and the subsequent recovery or reconstitution that ensues can help inform efforts to reimagine public space. This includes looking beyond risk reduction in responses to dementia and public and outdoor settings to consider how freedom of movement for people with dementia might be enhanced rather than curtailed. Our learning points to the value of making the process of dementing more visible and central to the politics and practices of social inclusion.

Place, publisher, year, edition, pages
Elsevier, 2022
National Category
Neurology Nursing
Identifiers
urn:nbn:se:hj:diva-58959 (URN)10.1016/j.healthplace.2022.102940 (DOI)000903758300004 ()36403420 (PubMedID)2-s2.0-85141956081 (Scopus ID)HOA;intsam;1712487 (Local ID)HOA;intsam;1712487 (Archive number)HOA;intsam;1712487 (OAI)
Available from: 2022-11-22 Created: 2022-11-22 Last updated: 2023-02-13Bibliographically approved
Ward, R., Rummery, K., Odzakovic, E., Manji, K., Kullberg, A., Keady, J., . . . Campbell, S. (2022). Taking time: The temporal politics of dementia, care and support in the neighbourhood. Sociology of Health and Illness, 44(9), 1427-1444
Open this publication in new window or tab >>Taking time: The temporal politics of dementia, care and support in the neighbourhood
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2022 (English)In: Sociology of Health and Illness, ISSN 0141-9889, E-ISSN 1467-9566, Vol. 44, no 9, p. 1427-1444Article in journal (Refereed) Published
Abstract [en]

Dementia is a global health challenge and currently the focus of a coordinated international response articulated through the notion of 'dementia-friendly communities and initiatives' (DFCIs). Yet, while increasing research attention has been paid to the social and spatial dimensions to life with dementia in a neighbourhood setting, the temporalities of dementia have been largely overlooked. This article sets out different aspects of the lived experience of time for people with dementia and unpaid carers, before exploring the temporal politics of formal dementia care and support. The authors show that time is a site for material struggle and a marker of unequal relations of power. People with dementia and unpaid carers are disempowered through access to formal care, and this is illustrated in their loss of (temporal) autonomy and limited options for changing the conditions of the care received. The authors advocate for a time-space configured understanding of the relationship with neighbourhood and foreground a tempo-material understanding of dementia. Set against the backdrop of austerity policy in the UK, the findings reveal that ongoing budgetary restrictions have diminished the capacity for social care to mediate in questions of social justice and inequality, at times even compounding inequity.

Place, publisher, year, edition, pages
John Wiley & Sons, 2022
Keywords
austerity, care, dementia, social care, time
National Category
Nursing
Identifiers
urn:nbn:se:hj:diva-58516 (URN)10.1111/1467-9566.13524 (DOI)000849754800001 ()36062552 (PubMedID)2-s2.0-85137318448 (Scopus ID)HOA;intsam;832459 (Local ID)HOA;intsam;832459 (Archive number)HOA;intsam;832459 (OAI)
Available from: 2022-09-20 Created: 2022-09-20 Last updated: 2023-02-13Bibliographically approved
Ward, R., Rummery, K., Odzakovic, E., Manji, K., Kullberg, A., Keady, J., . . . Campbell, S. (2021). Enabling the neighbourhood: the case for rethinking dementia-friendly communities. In: R. Ward, A. Clark & L. Phillipson (Ed.), Dementia and Place: Practices, Experiences and Connections (pp. 94-112). Bristol: Policy Press
Open this publication in new window or tab >>Enabling the neighbourhood: the case for rethinking dementia-friendly communities
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2021 (English)In: Dementia and Place: Practices, Experiences and Connections / [ed] R. Ward, A. Clark & L. Phillipson, Bristol: Policy Press, 2021, p. 94-112Chapter in book (Refereed)
Place, publisher, year, edition, pages
Bristol: Policy Press, 2021
National Category
Neurology Nursing
Identifiers
urn:nbn:se:hj:diva-54900 (URN)9781447349006 (ISBN)9781447349020 (ISBN)9781447349037 (ISBN)
Available from: 2021-10-20 Created: 2021-10-20 Last updated: 2021-10-20Bibliographically approved
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Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0002-8163-5045

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